Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Challenge UK - Feeling rubbish


Hev75

Recommended Posts

Hev75 Rookie

 Hi - I'm nearly at the four week mark of the UK gluten challenge before going for a blood test. After not having this much gluten daily for what seems like forever, is it normal that as the days/weeks go by on the challenge, that I will notice just generally feeling more rubbish and be more 'aware' of my stomach all the time. Today I've been conscious of a dull ache or cramp moving around my stomach. I even Googled Appendicitis yesterday as I was a bit worried about it. It seemed to be located more on the lower right of my stomach yesterday, but today is seems to be moving all around, with no respite. Still feels a bit like someone is jabbing my insides with a needle repeatedly. Is this normal??

I had a big bowl of Bran flakes this morning so not sure if that might be why. Do they contain an excessive amount of gluten? 

Any input would be appreciated as I feel pretty rubbish today. 😌

Thank you. 

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cristiana Veteran

Hi Hev and welcome to the forum!

If you haven't had any gluten/much gluten for a while, and you do have undiagnosed coeliac disease or non-coeliac gluten intolerance, your gut might well be protesting about it!   

As regards Bran Flakes, I had a particularly hard time with fibre around the time of my diagnosis when my coeliac was at its worse and I found lentils, oats and some other high fibre food made me feel really bloated, uncomfortable and sore. You may find that the high fibre content plus the gluten is creating the symptoms you describe.  Dairy was an issue then too.  

You may wish to avoid the bran flakes while you are on the challenge.

That said, it might just be the gluten that is doing things to your digestion.

If the pain persists or worsens do put a call through to your doctor.  

Do come back to us if you have any more questions and all the very best with the remaining weeks on the trial.

Cristiana

 

Link to comment
Share on other sites
Hev75 Rookie

Hi Cristiana, thanks for the reply. I had already cut back on dairy before I thought gluten might be an issue, but some is still sneaking in - particularly over the Easter break! I'll maybe give the bran flakes a wide berth for now. 

Link to comment
Share on other sites
cristiana Veteran

You are more than welcome, Hev.

Yes... dairy might also be a factor, although hopefully a temporary one.  Once your gut is healed (if you are a coeliac) things will most likely improve on the dairy front.

Take care.

C

Edited by cristiana
Link to comment
Share on other sites
Hev75 Rookie

I'd also forgotten to ask if dizziness can be a factor whilst doing the gluten challenge as I'm aware of feeling a bit woozy several times during the last couple of weeks. Is this normal or should I be worried? 

Link to comment
Share on other sites
cristiana Veteran
15 minutes ago, Hev75 said:

I'd also forgotten to ask if dizziness can be a factor whilst doing the gluten challenge as I'm aware of feeling a bit woozy several times during the last couple of weeks. Is this normal or should I be worried? 

Hi Hev

I feel dizzy when I'm glutened.  Over Christmas I was handed a piece of cake which was meant to be gluten free and it was made using wheat flour.  Within a couple of hours I couldn't stand up with the dizziness - I'd describe it as something akin to motion sickness.   

In your case,  it could be gluten or perhaps just be something like an inner ear infection, and totally unrelated?

C.

 

Edited by cristiana
Link to comment
Share on other sites
Scott Adams Grand Master

Vertigo and dizziness were a big symptom for me, and are a common symptom. 

 

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CMCM Rising Star

Same here....vertigo and dizziness.  

Also....I remember I once heard or read that people can be attracted to foods they are allergic to or intolerant to....I don't know if that's actually true, but it sure seemed true to me.  I used to love cereals such as Weetabix, Shredded Wheat, Grape Nuts, Wheat Bran and other similar wheat based cereals, and when I combined wheat cereals with milk (which I am also highly sensitive to) it was a recipe for an upset digestive system and I knew it before even eating the cereal.

Edited by CMCM
Link to comment
Share on other sites
cristiana Veteran

I was raised on Weetabix  -loved it-  and my parents took a cine film of me eating it when I was a toddler!  I haven't had it since my gluten challenge - but I do miss it!

Link to comment
Share on other sites
Scott Adams Grand Master

I also craved gluten almost constantly before my diagnosis. I pretty much ate high gluten foods 2-3 times a day, and usually had a bagel with cream cheese for breakfast each day.

Link to comment
Share on other sites
morganastar Rookie

I am 11 days away from the blood test and definitely have had more dizzy spells/ just not really feeling 'with it' over the last 4ish weeks since upping the gluten (to such an extent that I have been put off getting back into driving, as I don't really trust my reactions at the moment) Just so sooo tired and achey and would love my stomach to decide what sort of upset it would be in a more consistent manner hah!

Link to comment
Share on other sites
Hev75 Rookie
3 minutes ago, morganastar said:

I am 11 days away from the blood test and definitely have had more dizzy spells/ just not really feeling 'with it' over the last 4ish weeks since upping the gluten (to such an extent that I have been put off getting back into driving, as I don't really trust my reactions at the moment) Just so sooo tired and achey and would love my stomach to decide what sort of upset it would be in a more consistent manner hah!

That's exactly how I'm feeling. I was really nervous of driving home from work yesterday as I'd had a couple of dizzy spells at work. I HAVE noticed these on occasions before removing gluten a few month ago and then adding back in for this challenge. Sometimes I would get them whilst just sitting down! But since adding the gluten back in, as with the other symptoms, they seem to be more prevalent at the moment. 

Link to comment
Share on other sites
Hev75 Rookie
19 hours ago, Scott Adams said:

Vertigo and dizziness were a big symptom for me, and are a common symptom. 

 

I just read this article (thank you) and yet another symptom which I'd not seen before, I can totally relate to in recent years - Epistaxis—nose bleeds. I've been getting them on and off for a while. I first noticed them just after I had my daughter, some 14 years ago. She also has them regularly too and hers are quite bad. Another one to add to the list of symptoms when I speak to the doctor about being tested! 

Link to comment
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      125,744
    • Most Online (within 30 mins)
      7,748

    TootsSherry
    Newest Member
    TootsSherry
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.8k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Dhruv
      , I m writing this email for my 18 years old son. We are resident in USA from past 18 years. My son is born in India, and I got him here when he was 3 months.   He has been playing cricket since he is 4 years. In 2015 we went to india for a vacation, there he had severe stomach pain for 10 days, we went to hospital and they found out gastro! He got all ok, since then he was having stomach pain when he eats bread, only bread not other wheat recipes. Hence we saw GI to make sure,they did bloodwork and diagnosis was celiac weak postive, so they decided to do endoscopy to make sure hence got endoscopy done, endoscopy came negative so Doctor did not inform us about celiac! Although its was shoing weak positive,But after that luckily he started having regular bowl moments which he was bit off earlier, then his appetite got better, he never complained about any stomach issues. Now he is 18 and 5"8 tall and a good athlete. He is a national cricket player,  He is left arm spinner and righty batsman. He works out daily, goes for practice and eats all healthy home made food, sometimes junk but very rare. Since 2021 his billirubin came high in every annual bloodwork, so this year's his Doctor asked us to visit GI, billirubin is 1.4 not more in last 3 years. It's not that high high but out of range.   Now we went to GI, he ran multiple test and now his bloodwork shows celiac positive. (tTG)IgA >100 (tTG)IgG 57 is result reflectting on bloodwork. He is totally asymptomatic, no complaints touch wood. His GI is recommended to go for another endoscopy to make sure. Being mom i m very stressed now. He has national selection next week in California, and don't know what to do. They asked him to stop gluten, we will definitely do but I need correct guidance on few questions.    1. If we do endoscopy and he comes negative , he will be positive or negative for celiac? I do not want to be mislead.   2. In endoscopy do they check small intestines health? If any damage over the period due to not following gluten free diet?   3. What can cause in long run if he fail to follow gluten free diet if he is positive for celiac?   4. It's very difficult to keep him off chapati as that's the most source for his carbs. He does not like rice that much. Being india it's very hard for me too ,to keep him away from chapati.(wheat tortila) And at home I could still manage with bhakri/ or gluten free, but what when he goes on tour?    5. Do you suggest endoscopy? I don't want to poke him if it's not required.   
    • Patty harrigan
      That’s exactly what happens to me. I have been unconscious twice, vomiting afterwards for up to 9 hours and then the bone breaking chills start. I have never vomited while unconscious, thank god.  It’s an unusual presentation and my doctors were reluctant to think it was due to gluten ingestion. However, I know it was gluten as both times it happened within 2-2.5 hrs of eating. I no longer eat food that I haven’t prepared myself and it’s been 6 yrs since it happened.  I was behind the wheel once and was lucky to get off the road before I went out. I feel, and all my doctors reluctantly agree, that it’s a vasovagal reaction. If I can lay down it seems I don’t pass out but I still vomit and get the chills. It’s terrifying to say the least. I could have killed myself or others. I’m as strict as I can be for that reason. 
    • trents
      I assume you were on antibiotics for the E-coli infection? C-diff almost always is the result of prolonged and/or repeated antibiotic treatment. And there is a growing consensus that celiac disease is connected with gut dysbiosis which in turn is likely connected with first world overuse of antibiotics, preservatives and carbohydrate intensive/low nutrient diets. We are wrecking our gut microbiomes and those with genetic potential for celiac disease are reaping the fruit of it.  Can you repost post those antibody test scores but this time include the ranges for positive vs. negative. Each lab uses their own scale for these. There is no industry standard yet. Recently revised "gluten challenge" guidelines recommend the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for at least two weeks leading up to the antibody testing blood draw. To be sure, I would extend that to four weeks. Sadly, many practitioners neglect to (or don't know to) inform their patients of this before testing and so much testing done results in unclear outcomes. In your original post you mentioned lab analysis done from a colonoscopy. Colonoscopies cannot be used to diagnose celiac disease because they cannot get into the small bowel from the bottom end. Celiac disease causes damage to the lining of the small bowel which is accessed by an endoscopy. They take biopsies and send them to a lab for microscopic analysis.
    • Scott Adams
      A simple blood test should be done, and is usually the first step in diagnosing celiac disease. To do this you need to be eating lots of gluten daily for 6-8 weeks before doing the test. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
    • Sking
      Trents,  Thank you for the informative information. It's interesting that you suggested an infection or something 'triggers' celiac disease. I have been wondering if this happened because I was hospitalized with E-Coli last December and then hospitalized in June with C-Diff. So, they did do the Antibody Testing but never told me anything about needing to prep by eating a good amount of gluten for several weeks prior. My doctor thinks we would have to re-test as she isn't sure the results were entirely accurate. I did not 'abstain' from gluten but I didn't know I was supposed to purposely eat a certaim amount of gluten for 6 weeks prior. They failed to tell me this before I got the blood test. Here are the results of my antibody testing from September: Deamidated Gliadin Abs, IgG: 27 t-Transglutaminase (tTG) IgA: 3 Endomysial Antibody IgA: Negative Immunoglobulin A, Qn, Serum: 111   Thanks for any input, I appreciate this site.
×
×
  • Create New...