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Possible Accidental Gluten Ingestion ?

Jilli
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Jilli Rookie
Jilli
Posted

Hi,  I am 49 years old and 9 months ago, I was given a confirmed diagnosis of Celiac disease.  I have been gluten free and vigilant ever since.  However, I have only marginally improved in terms of stomach issues.   And the reason I'm writing this is because I think I accidentally ingested gluten 4 times in the last 7 weeks, which resulted in horrific pain in my abdomen each time. But this last time, I can't find anything I ate that might remotely have gluten.  So I'm wondering if there's another trigger.  And I'm wondering if there is a medication, either prescription or over the counter, that could counteract an accident gluten ingestion (AGI?), if that is, in fact, what's going on with me.  My husband wonders if my stomach issues outside of the celiac, are related to dairy, coffee, diet sodas or tea.  Maybe he's right but having to give up gluten is tough enough--just thinking about giving up anything else makes me heart-broken and disillusioned.  If anyone has advice, thoughts or info, I'd really appreciate it.  Thank you!

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Scott Adams Grand Master
Scott Adams
Posted

Welcome to the forum!

I'm sorry to hear about your ongoing issues.

The article below may be helpful to you if you believe that you're not getting gluten in your diet, which is the first thing to look at. Yes, medications can contain undeclared gluten, so it's important to look at anything you are ingesting.

 

trents Grand Master
trents
Posted

Many celiacs are also sensitive to CMP (cow's milk protein) and oats. About 10% of celiacs react to oat protein the way they do gluten in wheat, barley and rye and CMP can also cause inflammation of the small bowel lining that mimics gluten.

Certain medications can produce inflammation that damages the villi of the small bowel like gluten does. Among them are some blood pressure meds on the "sartin" family, NSAIDS and other anti-inflammatory medications and there is some evidence that PPIs can do it too.

Having said that, in any given individual, there can be other foods that generate gut inflammation. I have only listed the most common. Have you tried a food diary yet to check for patterns?

Jilli Rookie
Jilli
Posted
  • Author

I need to try a food diary--my husband tells me that all the time.  Thanks for the insight!

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    • trents
      Awaiting diagnosis

      By trents · Posted

      I would ask for a total IGA test (aka, Immunoglobulin A (IgA) and other names as well) to check for IGA deficiency. That test should always be ordered along with the TTG IGA. If someone is IGA deficient, their individual celiac IGA test scores will be artificially low which can result in false negatives. Make sure you are eating generous amounts of gluten leading up to any testing or diagnostic procedure for celiac disease to ensure validity of the results. 10g of gluten daily for a period of at least 2 weeks is what current guidelines are recommending. That's the amount of gluten found in about 4-6 slices of wheat bread.
    • jlp1999
      Awaiting diagnosis

      By jlp1999 · Posted

      There was not a total IGA test done, those were the only two ordered. I would say I was consuming a normal amount of gluten, I am not a huge bread or baked goods eater
    • trents
      Awaiting diagnosis

      By trents · Posted

      Were you consuming generous amounts of gluten in the weeks leading up to the blood draw for the antibody testing? And was there a Total IGA test done to test for IGA deficiency?
    • jlp1999
      Awaiting diagnosis

      By jlp1999 · Posted

      Thank you for the reply. It was the TTG IGA that was within normal limits
    • trents
      Awaiting diagnosis

      By trents · Posted

      Welcome to the forum, @jlp1999! Which IGA test do you refer to as being normal? TTG-IGA? Total IGA? DGP-IGA? Yes, any positive on an IGA or an IGG test can be due to something other than celiac disease and this is especially true of weak positives. Villous atrophy can also be cause by other things besides celiac disease such as some medications, parasitic infections and even some foods (especially dairy from an intolerance to the dairy protein casein). But the likelihood of that being the case is much less than it being caused by celiac disease.
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