How long to recover after accidentally eating gluten

[pokey449]

I’m gluten sensitive. My GI doc says I don’t have celiac per se. I accidentally ate something the other day that it turns out had gluten in it and started having gut pain. Things aren’t back to baseline yet. How long can I expect it to take to simmer down again? A few days or longer??  I’m a neophyte here and this a new reality for me. Thanks. 

[Scott Adams]

I'm sorry to hear that you got glutened. Recovery can vary greatly from person to person. I have very few symptoms if I accidently get small amounts of gluten, but some people have terrible symptoms with even the tiniest amounts.

Similarly, recovery times after ingestion varies  greatly from person to person, and for some it is a day or two, while others have reported it taking weeks to feel normal again.

This article may be helpful:

 

[pokey449]

  On 4/15/2021 at 4:50 PM, Scott Adams said:

I'm sorry to hear that you got glutened. Recovery can vary greatly from person to person. I have very few symptoms if I accidently get small amounts of gluten, but some people have terrible symptoms with even the tiniest amounts.

Similarly, recovery times after ingestion varies  greatly from person to person, and for some it is a day or two, while others have reported it taking weeks to feel normal again.

This article may be helpful:

 

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Scott: thank you. I mistakenly ate something I should have know better. Live and learn.  Im having a hard time figuring out what all is going on with my gut. I had SIBO this past summer. Treated that successfully, went on a low FODMAP, gluten and lactose free diet. My symptoms are much better but now my GI doc thinks maybe I need to have my gallbladder out as I had a HIDA scan this week and had a low ejection fraction. Been dealing with back pain too. Im a bit confused about what all is causing what

[knitty kitty]

@pokey449,

There's a connection between gallbladder problems, SIBO, continuing gastrointestinal problems band thiamine insufficiency.  It's called Gastrointestinal Beriberi.  

Ask your doctor.  Since blood tests aren't accurate, the best test for thiamine deficiency is a rapid response to thiamine supplementation (500mg/day) for several weeks.  

Thiamine is a water soluble B vitamin that can be depleted in as little as nine days because it can't be stored in the body.  Thiamine can be depleted quickly when you have diarrhea, constipation, vomiting, absorption disorders like Celiac.   

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6739701/

Thiamine is safe to take.  Thiamine has no toxicity.  

Wish someone had told me before I had my gallbladder removed.  My thiamine deficiency got much worse. 

Thiamine works with the other B vitamins and magnesium, so a B Complex, thiamine, and magnesium supplementation would improve health.  

 

[pokey449]

  On 4/15/2021 at 10:21 PM, knitty kitty said:

@pokey449,

There's a connection between gallbladder problems, SIBO, continuing gastrointestinal problems band thiamine insufficiency.  It's called Gastrointestinal Beriberi.  

Ask your doctor.  Since blood tests aren't accurate, the best test for thiamine deficiency is a rapid response to thiamine supplementation (500mg/day) for several weeks.  

Thiamine is a water soluble B vitamin that can be depleted in as little as nine days because it can't be stored in the body.  Thiamine can be depleted quickly when you have diarrhea, constipation, vomiting, absorption disorders like Celiac.   

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6739701/

Thiamine is safe to take.  Thiamine has no toxicity.  

Wish someone had told me before I had my gallbladder removed.  My thiamine deficiency got much worse. 

Thiamine works with the other B vitamins and magnesium, so a B Complex, thiamine, and magnesium supplementation would improve health.  

 

Expand Quote  

Knitty Kitty. What’s the connection between thiamine and gallbladder dysfunction. I supposedly have gallbladder dyskinesia. My GB does not contract adequately when CCK is given. CCK is what makes your GB contract naturally. GB ejection fractions below 35% are considered abnormal. Mine was 28%. The advice is to have it out. Is there some thiamine can improve my EF??

[knitty kitty]

@pokey449,

Here's an article that explains how the vagus nerve controls your digestive tract.  Without enough thiamine, things don't work right.  

Thiamine is needed to make and secrete CCK, digestive enzymes, and insulin, among other things.

 

https://www.hormonesmatter.com/sibo-ibs-constipation-thiamine-deficiency/

 

 

And quoting from this article....

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6739701/

 

"The clinical manifestations and imaging tests denoted severe gastroparesis and delayed bowel motility on top of the gallbladder dyskinesia."

And...

"Thiamine is critical for normal mitochondrial function [6]. Energy-intensive neurons are susceptible to thiamine deficiency. In this case, the authors hypothesize that thiamine deficiency can result in gastroparesis, delayed bowel motility, and gallbladder dyskinesia. More specifically, thiamine deficiency can result in autonomic nervous failure of the gastrointestinal system. The authors also hypothesized that the inflammatory gallbladder on the pathological report could be reactive to the gallbladder dyskinesia. Apparently, the gallbladder inflammation was not the sole cause of the gastrointestinal symptoms since the cholecystectomy did not relieve the patient's symptoms at all."

 

[knitty kitty]

@pokey449,

I take Benfotiamine and Allithiamine....... over the counter vitamins.  

 

https://www.lifeextension.com/vitamins-supplements/item00925/mega-benfotiamine?gclid=EAIaIQobChMI4p2A8eWB8AIVaTizAB2I0wEWEAQYASABEgJhMfD_BwE

And....

https://www.lifeextension.com/search#q=Allithiamine&t=coveo4A2453FD

 

Imho, doctors have forgotten the value and importance of vitamins in favor of surgery and pharmaceuticals from which they profit.  Doctors don't recognize thiamine deficiency symptoms outside of alcoholism, but malabsorption caused by Celiac Disease has the same effect.

Response to high dose thiamine occurs within hours....Thiamine is nontoxic. 

[pokey449]

  On 4/16/2021 at 3:23 AM, knitty kitty said:

@pokey449,

I take Benfotiamine and Allithiamine....... over the counter vitamins.  

 

https://www.lifeextension.com/vitamins-supplements/item00925/mega-benfotiamine?gclid=EAIaIQobChMI4p2A8eWB8AIVaTizAB2I0wEWEAQYASABEgJhMfD_BwE

And....

https://www.lifeextension.com/search#q=Allithiamine&t=coveo4A2453FD

 

Imho, doctors have forgotten the value and importance of vitamins in favor of surgery and pharmaceuticals from which they profit.  Doctors don't recognize thiamine deficiency symptoms outside of alcoholism, but malabsorption caused by Celiac Disease has the same effect.

Response to high dose thiamine occurs within hours....Thiamine is nontoxic. 

Expand Quote  

I’m taking 40mg of thiamine per day. Enough? To little??

[knitty kitty]

@pokey449

High dose thiamine supplementation is needed to reverse thiamine deficiency.

High dose Thiamine is 500 mg or more (some take 1000 mg or more) a day for weeks to months.

I started with 100 mg three times a day and added 50 to 100 mg until I was up to 1000 mg a day.  

I took 50 - 100 mg every three hours.  Smaller doses throughout the day works best.

I take benfotiamine and allithiamine both.  

Not medical advice.  This is what worked for me.  

 

 

[AlwaysLearning]

If you have gallbladder issues, I would definitely try making changes to your diet before allowing a doctor to remove your gallbladder. If you have gallstones, celiac (or any autoimmune disease) could be a part of the problem. White blood cells, the cells that go out and fight off invaders in our bodies as part of an immune response, are one of the ingredients needed to form gallstones. So to avoid gallstones, you would need to both reduce the fat/cholesterol in your diet and calm down the immune response that is providing the white blood cells.

I have only had a full-on glutening once since going gluten free, but it took me about three weeks to recover. My reactions to gluten are much worse after going gluten free, so I think you can take some solace in the idea that your really rough reaction now is an indication that you've been doing really well at staying 100% gluten free the rest of the time. For me, the lingering symptom that took longest to bounce back from was arthritic (the only time I've ever had arthritis). I don't think there was a joint in my body that didn't hurt.

Any time I feel as if I have to overcome something I ate, I will do everything I can to give my organs a break and to give them what they need to do their jobs. So lots of water, few other beverages. Mostly fruits and vegetables so mainly good fats. Low processed sugar and definitely no artificial sweeteners. Lower-temperature cooking (boiling and less baking/grilling) to avoid the carcinogens that form in high-temperature cooking. Low histamines if needed. I could go on, but you get the picture. The good news, eating this way makes you feel better even if you aren't having a gluten reaction.

And light exercise. Walking.

I would not trust any doctor's opinion about not having celiac. There is so much we don't yet know about gluten reactions and so many variables in testing that I don't think anyone can give a definitive diagnosis to those who have clinical reactions to gluten but still test negative. Trust your instincts that if gluten is a problem for you, that you have celiac (or some yet-to-be-named cousin of celiac), even if the medical community has yet to develop a test that works for you.

You'll get through this! And you'll do better at making gluten mistakes in the future.

[Scott Adams]

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I would not trust any doctor's opinion about not having celiac. 

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I think most doctors can properly diagnose celiac disease nowadays, however, the biggest mistakes I see which are still made regularly have to do with not informing their patients that they must continue eating gluten daily until all testing is completed (at least 2 weeks before a biopsy, and 6 weeks before blood tests). Errors like these leave many people in limbo, and cause unnecessary suffering should they decide to do a gluten challenge to re-do their tests.

I think non-celiac gluten sensitivity, and the lack of a proper way of diagnosing it (they are working on a way to test for it), is the single biggest issue facing those who are sensitive.

[pokey449]

Celiac, gluten sensitivity, SIBO, IBS, low gallbladder EF (28%) all terms/conditions/considerations that have crossed my path the last few months as possible explanations for my myriad GI symptoms. Before being diagnosed with SIBO May 2020 I had atrial flutter and had to have an ablation.  Its overwhelming and very hard to sort out the symptoms, pain, fatigue and malaise and what is causing what. I'm having back pain issues as well that's wearing me out. I feel like warmed over dog poop much of the time. My doctors are baffled as am I. So Id be happy if I truly had celiac and that's all I had....but I do think my GB is a problem. In 2012 I had a HIDA scan and my EF was 25%. Anything below 35% is considered dyskinesia and considered as a possible cause of cholecystitis and that cant be fixed by diet alone. Just sayin I cant blame all of whats going on on "possible celiac" that to date has not been confirmed