Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Challenge and Covid Vaccine


Hev75

Recommended Posts

Hev75 Rookie

Hi - I'm now 5 weeks into the gluten challenge and I have my first Covid vaccine booked for next Friday here in the UK. A sudden thought that I wanted to just query - if my body is currently having crappy reactions to gluten (be it Coeliac or not), does this mean I could potentially have a worse reaction to the vaccine than say my partner, who does not have issues with gluten? Might I currently be more prone to reacting against something foreign in my system, given how the body reacts to Covid in the first instance?

Has anyone else had experience of this? It's clear my body is going through some 'stuff' at the moment and of course I want to have the vaccine as soon as I can so I can resume a normal life again, but wondered if this might be something which I should flag up with them when I go for the jab. I'll be going for it on the exact 6 week mark of starting the challenge so not sure if that's a good or a bad thing! 

Any thoughts would be appreciated. ☺️


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Scott Adams Grand Master

It's unfortunate to hear that you have to go through a gluten challenge. I seriously doubt the people who administer the vaccine would have an answer for you, but given the known risks associated with getting covid-19 I would still proceed with the vaccine. I've not seen any published studies on this specifically, but you can review some of the articles we've down on covid and celiac disease here:

https://www.celiac.com/search/?q=covid-19&type=cms_records2&updated_after=any&sortby=newest&search_in=titles

  • 8 months later...
RNGayle Enthusiast
On 4/16/2021 at 4:24 AM, Hev75 said:

Hi - I'm now 5 weeks into the gluten challenge and I have my first Covid vaccine booked for next Friday here in the UK. A sudden thought that I wanted to just query - if my body is currently having crappy reactions to gluten (be it Coeliac or not), does this mean I could potentially have a worse reaction to the vaccine than say my partner, who does not have issues with gluten? Might I currently be more prone to reacting against something foreign in my system, given how the body reacts to Covid in the first instance?

Has anyone else had experience of this? It's clear my body is going through some 'stuff' at the moment and of course I want to have the vaccine as soon as I can so I can resume a normal life again, but wondered if this might be something which I should flag up with them when I go for the jab. I'll be going for it on the exact 6 week mark of starting the challenge so not sure if that's a good or a bad thing! 

Any thoughts would be appreciated. ☺️

Just wanted to see how everything turned out for you getting the vax during your gluten challenge. I was gluten free when I got Covid in the Summer of 2021. It wasn’t any worse than a case of bronchitis.  I understand that natural immunity is better than the vax.  I hope you did okay with the jab.

Scott Adams Grand Master
On 1/6/2022 at 3:19 PM, RNGayle said:

I understand that natural immunity is better than the vax.

If you are lucky enough to have mild or few symptoms after getting covid this may be true, but the best approach to reduce your risk of severe covid symptoms and death would be to get a safe and effective covid vaccine, rather than to get covid. 

RNGayle Enthusiast
On 1/7/2022 at 12:37 PM, Scott Adams said:

If you are lucky enough to have mild or few symptoms after getting covid this may be true, but the best approach to reduce your risk of severe covid symptoms and death would be to get a safe and effective covid vaccine, rather than to get covid. 

Respectfully, I disagree. My husband barely got any symptoms at all and only got tested because he was exposed to me who was exposed to my sister who picked it up from her adult grandson. The only severe cases that I know of,personally, that ended poorly involved morbid obesity and/or diabetes. My husband and I regularly take good multivitamin supplements, Vit D3, Vit C, Zinc and Magnesium. In the last few months we added Quercetin which helps absorption of Zinc. It comes from Apple peels. Just my two cents.

Scott Adams Grand Master

Hopefully you realize that the tiny number of personal experiences that you are sharing here are scientifically insignificant. Using science and statistics is the best way to protect the most people. Using anecdotal evidence from one person is not a good way to try to protect society from a pandemic.

RNGayle Enthusiast
On 1/9/2022 at 12:49 PM, Scott Adams said:
On 1/9/2022 at 12:49 PM, Scott Adams said:

Hopefully you realize that the tiny number of personal experiences that you are sharing here are scientifically insignificant. Using science and statistics is the best way to protect the most people. Using anecdotal evidence from one person is not a good way to try to protect society from a pandemic.

I do hope people can think for themselves. Science should always have the capacity to be questioned.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Scott Adams Grand Master

The definition of "Science is the pursuit and application of knowledge and understanding of the natural and social world following a systematic methodology based on evidence. Scientific methodology includes the following: Objective observation: Measurement and data (possibly although not necessarily using mathematics as a tool) Evidence."

So when it comes to controlling infectious diseases, science is by far the best tool mankind has ever created. 

In order to question the current scientific consensus on the best way to deal with this pandemic it would take a great deal of scientific training and knowledge on your part, not to mention the accumulation of better evidence if your hypothesis doesn't agree with the scientific consensus, and just saying "I hope people can think for themselves" isn't enough. What does that even mean? I thought for myself when I got vaccinated, the first two times, and got my booster last month--and I wasn't just thinking of only myself when I did this, but thought of others in society whom I'll never meet, because my choice will help protect them too--and I thought for myself when I realized that there is a broad consensus among medical experts that this approach will save lives, and will be the fastest way to end the pandemic.

Science and vaccines have ended worse pandemics in the past, and have even eradiated diseases like small pox from the planet, so why would this approach not work now? Should we stop using engineers and science to build air planes, computers, cell phones, etc., or do you think that people should "think for themselves" and get into airplanes designed by people like Mike Hughes, a self taught engineer? https://www.bbc.com/news/world-us-canada-51602655. No thanks, I'll stick to following science, and the advice of those who are a lot smarter than I am when it comes to such things.

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jacki Espo replied to Itsabit's topic in Dermatitis Herpetiformis
      3

      SkinSafe

    2. - Russ H replied to Itsabit's topic in Dermatitis Herpetiformis
      3

      SkinSafe

    3. - trents replied to Itsabit's topic in Dermatitis Herpetiformis
      3

      SkinSafe

    4. - Itsabit posted a topic in Dermatitis Herpetiformis
      3

      SkinSafe

    5. - trents replied to Cathijean90's topic in Introduce Yourself / Share Stuff
      1

      I’m terrified it’s too late for me😭


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,314
    • Most Online (within 30 mins)
      7,748

    stephla
    Newest Member
    stephla
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.8k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jacki Espo
      For me I gave up oat products and it finally cleared. I had a whole body reaction for months. Two additional culprits for me: shared grill at a restaurant or a shared toaster.  Hope you have relief soon. 
    • Russ H
      It can take between 6 months and 2 years for the dermatitis herpetiformis rash to resolve. The symptoms of dermatitis herpetiformis arise from deposits of certain antibodies building up in the skin. These deposits attract immune cells leading to inflammation and blistering. It can take 10 years for the deposits to be reabsorbed although symptoms resolve long before this.
    • trents
      Welcome to the forum, Linda! Many on this forum can sympathize with you. It can be extremely difficult to get reliable information about gluten when it comes to meds, supplements and oral hygiene products. This is especially true since so much of this stuff is generic and comes from over seas. I will deflect with regard to your question about meds and oral products but take you in another direction. Have you tried a low iodine diet. Iodine is known to exacerbate dermatitis herpetiformis and some find that a low iodine diet helps reduce the number of outbreaks. By the way, have you had your celiac antibodies retested recently? If they are elevated that might be a clue that you are getting gluten in your oral hygiene products or meds.
    • Itsabit
      Hi. I’m 70 years old, and a 22 year survivor of head and neck cancer treated with chemo-radiation, which resulted in non-existent submandibular salivary glands and extreme dry mouth and altered oral mucosa. I have been using dry mouth toothpaste, Rx oral dentrifices and moisturizers for years.  I’ve recently been diagnosed with severe celiac dermatitis herpetiformis. I was being treated with oral Dapsone, but it was not effective and I developed some serious side effects. So, the medication was stopped and I was started on Doxycycline (another antibiotic) for inflammation. I’ve been using Rx Betamethasone steroid ointment with little to no effect. I have tried every oral and topical antihistamine treatment available OTC. None have touched this horrible relentless itching. That is my history.  Now to my question. Does anybody know about gluten free toothpastes and mouth moisturizers? I ask because a very common dry mouth brand stated to me that they were indeed gluten free. But as I am not getting any better with my dermatitis herpetiformis, I was wondering if I was getting glutenized some way other than diet as  I have been following a strict clean gluten free diet, but I am not seeing any improvement at all. So, I started looking up the toothpastes and moisturizer ingredients individually and nine (9) of the eleven (11) or so listed showed up as   containing gluten or that may have gluten! Am I getting glutenized orally by these products?  As an aside, I checked on my favorite lavender scented baby lotion which is supposed to be gluten free, but many of those ingredients when investigated separately, show they  do contain or may contain gluten as well. I stopped using the lotion. But I cannot forgo my dental care. I was unable to get any information from the manufacturer of my current brand of chewable multivitamins either. They told me to check with my doctor. If THEY don’t know what’s in their product, how do they think a PCP will?  In light of all this, I am confused and angry that I might keep getting contaminated with gluten through products I am using that are supposedly gluten safe. *I should also state that I have a nickel allergy since I was about 12-13 years old. And I developed a contact allergy to latex (gloves) when I was a student nurse at 19 years old.  I know and I’m sorry that this is so lengthy. I’m trying to do everything I can to combat this condition, and I’m feeling very confused, anxious and angry about not getting adequate information as I try to educate and advocate for myself. I’m hoping someone here is more knowledgeable than me of how to navigate through all of this. Can anyone offer any advice?  Thank you for your time.  Respectfully,  Linda
    • trents
      Welcome to the forum, @Cathijean90! I went 13 years from the first laboratory evidence of celiac disease onset before I was diagnosed. But there were symptoms of celiac disease many years before that like a lot of gas. The first laboratory evidence was a rejected Red Cross blood donation because of elevated liver enzymes. They assume you have hepatitis if your liver enzymes are elevated. But I was checked for all varieties of hepatitis and that wasn't it. Liver enzymes continued to slowly creep up for another 13 years and my PCP tested me for a lot of stuff and it was all negative. He ran out of ideas. By that time, iron stores were dropping as was albumin and total protein. Finally, I took it upon myself to schedule an appointment with a GI doc and the first thing he did was test me for celiac disease. I was positive of course. After three months of gluten free eating the liver enzymes were back in normal range. That was back in about 1992. Your story and mine are more typical than not. I think the average time to diagnosis from the onset of symptoms and initial investigation into causes for symptom is about 10 years. Things are improving as there is more general awareness in the medical community about celiac disease than there used to be years ago. The risk of small bowel lymphoma in the celiac population is 4x that of the general population. That's the bad news is.  The good news is, it's still pretty rare as a whole. Yes, absolutely! You can expect substantial healing even after all these years if you begin to observe a strict gluten free diet. Take heart! But I have one question. What exactly did the paperwork from 15 years ago say about your having celiac disease? Was it a test result? Was it an official diagnosis? Can you share the specifics please? If you have any celiac blood antibody test results could you post them, along with the reference ranges for each test? Did you have an endoscopy/biopsy to confirm the blood test results?
×
×
  • Create New...