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Gluten Widrawal?


Scarlletts

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Scarlletts Newbie

Hi I have a now 4 year old son that was diagnosed with Celiacs disease a couple of months ago.  He was 3 at the time.  We have been gluten free for about 7 wks with one incident where he got glutened during snack time.  Because he is so young it’s hard to understand if his behavior (emotional at times with mood swings) are do to just being a young 4 yr old or if there is something else going on?  Is gluten withdrawal a thing?  If so how long does it last and what are the symptoms that I can maybe attribute to it?  (Ps he is also dairy free and has been for almost a year now)


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Scott Adams Grand Master

Gluten withdrawal is a real thing, but he should be past this after 4 months. Is it possible he's getting gluten in his diet at school? My kids both have medium peanut allergies, and their daycare was terrible about not dealing with it. This article covers gluten withdrawal in more detail:

 

Awol cast iron stomach Experienced

Oh yes. My husband and children over the years can tell when I get glutened. I am  sure the article above will explain we can become cranky, irritable, and upset. Brain is inflammed and we feel it. Along with gi and everywhere else.

I hope your little one recovers quickly. 

In closing for me we found it was best if the whole house is gluten-free, and we don't eat out.  As for work I eat in my car because I found that is what works best at my current workplace. In my other work places if I had own desk etc I would eat there.

So you may want to inquire if there is a designated safe table for your little one. I personally would bring milk that was safe for our kiddos to our daycare providers when my kids were young. We weren't gluten-free then, but later when we became completely gluten-free my kids bring all their own food from home for school. Would you be comfortable sending your child with a safe snack sent from home? Something to consider if this is possible.

Good luck

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    • trents
      @cristiana, I'm thinking the intensity of our response to the same amount of gluten can vary from time to time. Our bodies are a dynamic entity. 
    • Scott Adams
      I'm going to try Jersey Mike's soon--we have one nearby. Thanks for sharing!
    • cristiana
      Hi @trents Two things can happen:  1/ For a very small gluten hit, I will get a slightly sore stomach for a few days, maybe a day or two following the glutening, and (TMI warning) maybe slightly loose BMs with mucus  for a couple of days.  2/ For a substantial glutening, and thankfully it's only happened once in recent years,  I get bad chills, followed by vomiting, and my heartbeat is all over the place and I can hardly stand.  It's pretty extreme.  That happens within about 2 hours of eating the gluten.  I might feel slightly dizzy for a couple of days after the glutening episode. Interestingly I've just been out to a cafe which hitherto has made a big thing about how their french fries are cooked in a separate fryer.  I shared some with a friend and they were served with chilli sauce, jalapenos, cheddar cheese and fried onions.  Definitely not health food!  Anyway,  I'd eaten half when I realised I'd not checked the menu to ensure that this dish is still gluten-free - and it turns out it isn't!!!  They've changed the ingredients and the fried onions are now cooked with wheat.   I came home expecting to feel dreadful as I had no idea how much gluten I have consumed but so far if anything I feel just little queasy.  I think I'd have thrown up by now had there been a lot of gluten in the onions.  
    • trents
      It might be wise to start him on small amounts and work up to 10g. Monitor how he reacts. Some people simply cannot complete the gluten challenge because it makes them too ill. By the way, you can buy powdered gluten in health food stores, at least here in the states you can. With a food scale, it would be easy to measure the amount being consumed in a day. I'm not sure what the intensity of reaction to gluten tells you about what's actually going on with regard to celiac disease. I mean there are some celiacs like me who don't seem to react to minor exposure amounts but who get violently ill with larger exposures. Then there are celiacs who get some kind of reaction to even the tiniest amount of exposure but don't necessarily get violently ill. And how the reaction manifests itself is very different for different people. Some, like me, experience emesis and diarrhea. Others just get brain fog. Others get joint pain. It's all over the map.
    • melthebell
      That's interesting - that's a lot of gluten! I'll be very curious to see how my son responds to the gluten. In some ways, I guess having a strong reaction would tell us something? It's tough navigating this as a parent and having it be not so clear cut ;\
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