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New - please help understand blood work

mrsdelore
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mrsdelore Rookie
mrsdelore
Posted

I've attached the results I got from my Celiac panel - and it's safe to say I'm confused. LOL. Two negative results, two positive ones. The lab basically said I was low risk for Celiac, so how does that work with 2 positive results?
Symptoms: fatigue, chronic joint pain, chronic itching of scalp and just one arm/hand without any rash/redness. Have tested negative for Lyme and RA.

I'm wondering at this point if I should pursue additional testing or just start weeding out gluten and see if I feel better?

179680331_2639854932971511_4032505756648892948_n.png

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GFinDC Veteran
GFinDC
Posted
49 minutes ago, mrsdelore said:

I've attached the results I got from my Celiac panel - and it's safe to say I'm confused. LOL. Two negative results, two positive ones. The lab basically said I was low risk for Celiac, so how does that work with 2 positive results?
Symptoms: fatigue, chronic joint pain, chronic itching of scalp and just one arm/hand without any rash/redness. Have tested negative for Lyme and RA.

I'm wondering at this point if I should pursue additional testing or just start weeding out gluten and see if I feel better?

179680331_2639854932971511_4032505756648892948_n.png

It only takes one positive antibody type to do damage to your gut.  Have you talked to your GI about the results?  Generally the next step after positive blood results is an endoscopy to check for damage to the small intestine lining.  You need to keep eating gluten until all testing is complete.  So talking to your doc would be a good idea to find out if they plan to do an endoscopy and how long it will take to get scheduled.

plumbago Experienced
plumbago
Posted

Hi,

Hopefully you will be talking to the medical professional who ordered these tests! But my notes say, "If both DGP are high, celiac disease almost certain." Your doctor - or maybe others on here - may be able to tell you why the Ttg was neg but the DGP positive and what all that means. Good luck!

trents Grand Master
trents
Posted

This is a good read: https://www.niddk.nih.gov/health-information/professionals/clinical-tools-patient-management/digestive-diseases/celiac-disease-health-care-professionals

The tTG-IGA test is the most specific for celiac disease but if IGA levels are low or damage to the small bowel villi is not extensive it may be negative because it is not as sensitive as some of the other tests which are less specific for celiac disease.

 

mrsdelore Rookie
mrsdelore
Posted
  • Author
10 minutes ago, plumbago said:

Hi,

Hopefully you will be talking to the medical professional who ordered these tests! But my notes say, "If both DGP are high, celiac disease almost certain." Your doctor - or maybe others on here - may be able to tell you why the Ttg was neg but the DGP positive and what all that means. Good luck!

the test was a self requested one, but I have shared the results with my primary and am waiting to hear back from them.

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      Hi guys. Apologies for the late reply. Many many thanks for the replies. Hi - I am eating both white rice and wholegrain brown rice, due to it being very difficult to just eat brown rice. In regards to histamine foods - I am taking 10mg loratadine to combat this issue, however haven't seen any positive results as of yet. I have noticed if I am on a strict gluten free diet for around 1 week, the insomnia instantly pops up, and I have to eat around half a slice of bread for it to stop. I am trying to lower this amount, however the insomnia is still present. I have searched these forums and the internet but there seem to be no solution to this issue. I thought if I gradually reduce from half a slice and a little less, the issue will be resolved. However this is not the case.
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      Would you also agree that being so close to the IgA deficient cut off is significant? We just have been told he’s not as just over into the not deficient category…   thank you so much for all the help so far, it’s been so helpful!
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