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Migraines?


erica

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erica Rookie

Anyone else have migraines that stopped once you went gluten-free. Is Celiac related to migraines?


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Guest jhmom

I have heard that migraines are related to Celiac Disease. I have been gluten free 4 months TODAY (YIPEE!!!) and still have headaches on and off. I am sure they will go away completely after being gluten-free for a little while longer.

Hope this helps, good luck to you :)

Connie R-E Apprentice

In my opinion, migraines are related to food intollerences/allergies--not just celiac!

I get a horrible migraine from Honey (of all things)!

It starts 24 hours after I eat it, and lasts for 48 hours....Boy, was it was difficult to track down! :wacko:

Connie

midnightjewel40 Newbie

:huh: OH yes i had them before and then when i went gluten-free i havent had one since abot 14 months now it is linked or so they say hope this helps you

jacque :(

seeking-wholeness Explorer

I cut caffeine completely out of my diet (even decaf coffee and tea) and noticed a dramatic reduction in my migraine frequency and intensity. Now the only times I have gotten them are when I have a gluten accident. Someday, after I have gone awhile with no accidents, I plan to test caffeine again to see whether it is a separate problem for me or whether all of the caffeinated products I was using happened to be carriers of gluten as well. Looking back on it, I actually can't be sure (which is pretty scary)! Oh, how I hope I can someday have green tea again--and chocolate!

I hope this helps!

midnightjewel40 Newbie

:lol: i am finding that coffee make me double up with pain and i have cut down on tea might get some decafe tea has anyone had decafe tea and does it make a difference

:(

seeking-wholeness Explorer

Jacque,

Even decaf coffee and tea still contain a significant amount of caffeine, so if you are extremely caffeine-sensitive it might NOT make a difference. The only way to know is to try it, though. Another avenue of inquiry I would suggest is switching to organic coffee and tea. I can't remember who it was, but someone here on the board reported that organic coffee didn't cause the unpleasant side effects that conventional coffee did for him/her.

I hope you find a drink that works for you!


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midnightjewel40 Newbie

:D Thanks sarah i will try that i just remembered a nurse i know drinks decafe so i will give it a go thanks you for your input

:rolleyes:

  • 2 weeks later...
Guest jhmom

I found this article regarding Migraines linked to celiac disease:

Migraine Linked to Celiac Disease

Laurie Barclay, MD

March 25, 2003

  • 2 years later...
ms-sillyak-screwed Enthusiast

Good article. Thanx for posting it.

I've suffered with them my entire life. They started with the cycle of my periods as a teen. Mine have all the classic triggers.

HORMONE (I got a migraine every-month-with-out-fail before, durning or after my period.)

STRESS or NERVES

FOODs - coffee, tea, chocolate & nuts.

LACK of SLEEP

ENVIRONMENT smoky room, dust, mole, meldew, CATS.

intensely blindingly GLARE in my eyes.

What has made the most difference in the frequency is [getting OFF of HRT] (hormone replacement) slowed them down a little enough to notice. Which tends to make me think mine are hormonal. Over all, I will say in the last 5 years my migraine frequency has changed only a bit, at best.

flagbabyds Collaborator

I get migraines whenever I get gluten.

tarnalberry Community Regular

I have/had migraines. Didn't get them very often at all until recently - I went gluten free two and a half years ago, and dairy free a year and a half ago. I tried eliminating a number of common (and uncommon) triggers (sleep, foods, caffeine, scents, light, temperature, exercise, etc.); I tried natural remedies (except the icy cold shower method, research shows it works, but I'm a chicken) and homeopathic remedies and prescription stuff.

Not much made a big difference, and it got the point where I was getting migraines about twice a week and they'd last five days - meaning, constant migraine. They weren't severe enough that I couldn't function at all during that time, but I couldn't function well... it definitely impacted my work and home life significantly.

I finally had to go on preventative medication, Topamax, an anti-epileptic. I generally get side-effects from drugs very easily, and this one is no exception; at one quarter of the standard maintenance dose, I am getting a bit of tingling in my feet/hands, a little bit of fatigue, and a little loss of appetite (except during my period, still ravenous then!), but even that dose has managed to knock them back to one every other week at most so far, and they are milder and shorter in duration (four days or so).

A number of people have found that the gluten-free diet, or another dietary trigger elimination, has made a big difference for them, and eliminated their migraines, and I hope that works for you! But if it doesn't, don't give up hope, and keep working with your doctor (or find one who will work with you) to get them under control if they are causing significant impact to your life.

(My current guess on my trigger? Weather pattern change. I could be off on this one, and need to collect data, if I can on the meds. But with the move to the PacNorthWest, that could have been all my poor little brain could stand, with the weather swinging wildly every other day around here.)

Guest mmc

I get migraines like crazy. I suffer from at least 6 per month that last anywhere from 2 to 7 days. Normal pain medications, natural remedies, showers, ect do not help at all. I am completely unable to function during them, cannot even step foot in a room with a light on. The only thing that has relieved the pain for me is a shot of hardcore pain medicine at the hospital after 4 or so days. And that is all but pleasant. I'm hoping that going gluten-free (after the blood tests ect) will help with them.

ms-sillyak-screwed Enthusiast

tarnalberry -- "(except the icy cold shower method, research shows it works, but I'm a chicken) "

I'll share my secret. -- At my house we call it a 'brain-freeze' :rolleyes: ice packs forehead and neck, but take it a step further... your cold shower concept works.

What I do run a warm bath, use a few drops of lavender fragant oils (if you can tolerate it) and get in the tub and relax put the 'brain-free' on your head. Relax... and the difference in the the tub temp and the ice on your head, you won't feel cold. It works for me at times... try it :)

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    • Scott Adams
      The first set of results show two positive results for celiac disease, so at the very least it looks like you could have it, or at the least NCGS.   Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.      
    • Scott Adams
      Elevated tissue transglutaminase IgA (tTG-IgA) levels are highly specific for celiac disease, and they are a key biomarker used in its diagnosis. However, there are some rare instances where elevated tTG-IgA levels have been reported in conditions other than celiac disease. While these cases are not common, they have been documented in the literature. Below are some examples and references to studies or reviews that discuss these scenarios:  1. Non-Celiac Gluten Sensitivity (NCGS)    - NCGS typically does not cause elevated tTG-IgA levels, as it is not an autoimmune condition. However, some individuals with NCGS may have mild elevations in tTG-IgA due to intestinal inflammation or other factors, though this is not well-documented in large studies.    - Reference: Catassi, C., et al. (2013). *Non-Celiac Gluten Sensitivity: The New Frontier of Gluten-Related Disorders*. Nutrients, 5(10), 3839–3853. [DOI:10.3390/nu5103839](https://doi.org/10.3390/nu5103839)  2. Autoimmune Diseases    - Elevated tTG-IgA levels have been reported in other autoimmune conditions, such as type 1 diabetes, autoimmune hepatitis, and systemic lupus erythematosus (SLE). This is thought to be due to cross-reactivity or polyautoimmunity.    - Reference: Sblattero, D., et al. (2000). *The Role of Anti-Tissue Transglutaminase in the Diagnosis and Management of Celiac Disease*. Autoimmunity Reviews, 1(3), 129–135. [DOI:10.1016/S1568-9972(01)00022-3](https://doi.org/10.1016/S1568-9972(01)00022-3)  3. Chronic Liver Disease    - Conditions like chronic hepatitis or cirrhosis can sometimes lead to elevated tTG-IgA levels, possibly due to increased intestinal permeability or immune dysregulation.    - Reference: Vecchi, M., et al. (2003). *High Prevalence of Celiac Disease in Patients with Chronic Liver Disease: A Role for Gluten-Free Diet?* Gastroenterology, 125(5), 1522–1523. [DOI:10.1016/j.gastro.2003.08.031](https://doi.org/10.1016/j.gastro.2003.08.031)  4. Inflammatory Bowel Disease (IBD)    - Some patients with Crohn’s disease or ulcerative colitis may have elevated tTG-IgA levels due to intestinal inflammation and damage, though this is not common.    - Reference: Walker-Smith, J. A., et al. (1990). *Celiac Disease and Inflammatory Bowel Disease*. Journal of Pediatric Gastroenterology and Nutrition, 10(3), 389–391. [DOI:10.1097/00005176-199004000-00020](https://doi.org/10.1097/00005176-199004000-00020)  5. Infections and Parasites    - While infections (e.g., giardiasis) are more commonly associated with false-positive tTG-IgA results, chronic infections or parasitic infestations can sometimes lead to elevated levels due to mucosal damage.    - Reference: Rostami, K., et al. (1999). *The Role of Infections in Celiac Disease*. European Journal of Gastroenterology & Hepatology, 11(11), 1255–1258. [DOI:10.1097/00042737-199911000-00010](https://doi.org/10.1097/00042737-199911000-00010)  6. Cardiac Conditions    - Rarely, heart failure or severe cardiovascular disease has been associated with elevated tTG-IgA levels, possibly due to gut ischemia and increased intestinal permeability.    - Reference: Ludvigsson, J. F., et al. (2007). *Celiac Disease and Risk of Cardiovascular Disease: A Population-Based Cohort Study*. American Heart Journal, 153(6), 972–976. [DOI:10.1016/j.ahj.2007.03.019](https://doi.org/10.1016/j.ahj.2007.03.019)  Key Points: - Elevated tTG-IgA levels are highly specific for celiac disease, and in most cases, a positive result strongly suggests celiac disease. - Other conditions causing elevated tTG-IgA are rare and often accompanied by additional clinical findings. - If celiac disease is suspected, further testing (e.g., endoscopy with biopsy) is typically required for confirmation. If you’re looking for more specific studies, I recommend searching PubMed or other medical databases using terms like "elevated tTG-IgA non-celiac" or "tTG-IgA in non-celiac conditions." Let me know if you’d like help with that!
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    • trents
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    • Jack Common
      Hello! I want to share my situation. I had symptoms like some food intolerance, diarrhea, bloating, belching one year ago. I thought I could have celiac disease so I did the blood tests. The results were ambiguous for me so I saw the doctor and he said I needed to do tests to check whether I had any parasites as well. It turned out I had giardiasis. After treating it my symptoms didn't disappear immediately. And I decided to start a gluten free diet despite my doctor said I didn't have it. After some time symptoms disappeared but that time it wasn't unclear whether I'd had them because of eliminating gluten or that parasite. The symptoms for both are very similar. Giardiasis also damages the small intestine. The only way to check this was to start eating bread again as I thought. Now about my results.   These are my first test results (almost a year ago) when I had symptoms: The Tissue Transglutaminase IgA antibody - 0.5 U/ml (for the lab I did the tests 0.0 - 3.0 is normal) The Tissue Transglutaminase IgG antibody - 6.6 U/ml (for the lab I did the tests 0.0 - 3.0 is normal) Immunoglobulin A - 1.91 g/l (for the lab I did the tests 0.7 to 4 g/l is normal) IgA Endomysial antibody (EMA) - < 1:10 titer (for the lab I did the tests < 1:10 titer is normal) IgG Endomysial antibody (EMA) - < 1:10 titer (for the lab I did the tests < 1:10 titer is normal) Deamidated gliadin peptide IgA - 0.3 U/ml (for the lab I did the tests 0.0 - 6.0 is normal) Deamidated gliadin peptide IgG - 46.1 U/ml (for the lab I did the tests 0.0 - 6.0 is normal)   Then I didn't eat gluten for six months. Symptoms disappeared. And I started a gluten challenge. Before the challenge I did some tests. My results: The Tissue Transglutaminase IgG antibody - 0.5 U/ml (for the lab I did the tests < 20 U/ml is normal)) Deamidated gliadin peptide IgG - 28 U/ml (for the lab I did the tests < 20 U/ml is normal)   During the challenge I ate 6 slices of wheat bread. After the challenge my results are: The Tissue Transglutaminase IgA antibody - 2.0 U/ml (for the lab I did the tests < 20 U/ml is normal) The Tissue Transglutaminase IgG antibody - 2.0 U/ml (for the lab I did the tests < 20 U/ml is normal) Immunoglobulin A - 1.31 g/l (for the lab I did the tests 0.7 to 4 g/l is normal) Deamidated gliadin peptide IgA - 2.0 U/ml (for the lab I did the tests < 20 U/ml is normal) Deamidated gliadin peptide IgG - 2.13 U/ml (for the lab I did the tests < 20 U/ml is normal)   To be sure I continued consuming gluten. I ate a lot each day. Two months after I did the tests again. My results I got today are: The Tissue Transglutaminase IgA antibody - 0.7 U/ml (for the lab I did the tests < 20 U/ml is normal) Immunoglobulin A - 1.62 g/l (for the lab I did the tests 0.7 to 4 g/l is normal) Deamidated gliadin peptide IgG - 25.6 U/ml (for the lab I did the tests < 20 U/ml is normal)   Nowadays I didn't have any symptoms except tiredness but I think it's just work. I think it was this parasite because two years ago, for example, and before I didn't have these symptoms and I always ate gluten food. But I'm still not sure especially because the Deamidated gliadin peptide IgG results are sometimes high. What do you think? @Scott Adams
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