Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Doctor won’t test me because I don’t have blood in stool

Crescentmoon
 Share

Recommended Posts

Crescentmoon Newbie
Crescentmoon
Posted

Hi everyone, I’m brand new so sorry if I put this in the wrong forum. Anyways my title says it all and I feel so frustrated I feel like crying. I finally stopped ignoring my symptoms after a year and scheduled an appointment with my doctor. I told her everything that was happening and she automatically dismissed me and made me feel like s$#&. I told her all of the symptoms I have which are: diarrhea,
vomiting, fatigue, Heartburn, bloating, Abdominal pain, burning throat, headaches and even more. She basically ignored all of this and said since I don’t have blood in my stool and since I don’t know if it runs in the family (i don’t know my fathers side of the family so I can’t say for sure) I probably don’t have celiac. I literally can’t even eat a piece of bread without throwing it back up. I’m tired of feeling sick all of the time and being nauseous all day at work.  Is there anything else I can say to try to convince her or should I just say screw it and find a new doctor? Anyone else have a similar experience because this sounds off to me? Thanks in advance! 

 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


trents Grand Master
trents
Posted

Get a new doc. If my doc was that ignorant and stubborn I would switch in a minute.

And welcome to the forum, Crescentmoon!

GFinDC Veteran
GFinDC
Posted

Ignorance comes in many forms, including the doctor form,  Agreeing with Trents find a new doc.  Try a search for celiac and doctor and your city or state name,

Be aware that you need to keep eating a small amount of gluten until all testing is done.  Otherwise the testing is inaccurate.

Many doctors are unaware of proper testing for celiac disease.

Scott Adams Grand Master
Scott Adams
Posted

There is a home test you can order for under $100, but you need to be eating gluten on a daily basis for ~12 weeks before blood tests can be done:

https://www.imaware.health

It’s definitely time for a new doctor no matter what happens, as yours clearly doesn’t have your best interest—your health—in mind!

woly-boly Newbie
woly-boly
Posted

My doctor told me the same thing after telling her my biological father was recently diagnosed with Crohn's disease which I suspect was a misdiagnosis based on my own allergies and intolerance for wheat products. I'm still waiting on answers myself and am eagerly waiting a Celiac screening.

I hope you find answers and a new doctor that takes you serious.

Remember, you are your own biggest health advocate! 

 

CMCM Rising Star
CMCM
Posted

Good grief, so sad to see there are still so many clueless doctors out there.  Keep eating gluten, and like others have said,  I'd suggest immediately ordering the imaware celiac test suggested by Scott as it's cheap and easy.  I recently ordered that test myself.  I got the test and sent it back and then got results within about 10 days.  After you get your test results, you may have a better idea of what is going on.  Sure sounds like either celiac or non-celiac gluten sensitivity.  Your described symptoms are pretty common in both cases, I had almost all of them.  

So many of us here have had to take matters into our own hands in many cases because doctors just don't know enough, even in 2021.  So get your own information where you can and go from there.  

GodsGal Community Regular
GodsGal
Posted

Hi! I'm glad you are here. I agree with the others that you are going to need a new doctor. No one person can know everything. And, with as many diseases and ailments as there are out there, even the best doctors don't know everything.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • 2 weeks later...
BuddhaBar Collaborator
BuddhaBar
Posted

Pour some Halloween-blood on your poo, take a pic and show her. "Look dawktor, I haz some blaaaaawd in ma stooool".
You have to lower yourself to her level in order for her to understand you.

Or you could find a real doctor instead of someone who paid a few thousand bucks for a diploma on the deep web.


 
 

nora-n Rookie
nora-n
Posted

Try with some fact pages, like http://www.cureceliacdisease.org/faq/what-are-some-of-the-symptoms-of-celiac-disease/

GF-Cate Enthusiast
GF-Cate
Posted

Definitely find a new doctor who will take you seriously.

You can also order your own bloodwork and labs for celiac panels, nutrient levels, etc  (at least in the US) through companies like Ulta Lab Tests. 

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
 Share
Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      126,138
    • Most Online (within 30 mins)
      7,748
    kfkynett
    Newest Member
    kfkynett
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.2k
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • sh00148
      Poo changes after 2 weeks

      By sh00148 · Posted

      Thank you. That’s all really helpful. I think it must have been something she ate as the poo colour has settled now.    Starting to see improvements in her tummy, slowly but surely!
    • Yaya
      Muscle Twitching

      By Yaya · Posted

      I take all vitamins and supplements.  My cardiologist has me taking B12 5,000 once per weeks.  He gives me complete blood work every 6 months.  He's still building my D levels which is now in 60s.  He wants them in low 80s.  I take 5,000 IU's daily.  With this dosage I've gone from 42 to 65 over a period of about 5 years.  It builds very slowly.   As far as iron, I take a double dose of gentle iron with C on an empty stomach on alternate nights.  Yes, iron is a component for many of us with RLS, but mostly "brain iron" that in some people may require iron transfusions.   
    • trents
      Help with results please. As I have a appt after the New Year.

      By trents · Posted

      The positive DGP-IGA indicates the possibility of celiac disease. It is typical for someone who does have celiac disease to have some antibody tests be negative and others positive. This is not unique to celiac disease diagnosis. It is why doctors typically run many tests when seeking diagnosis of a suspected disease.  The DGP-IgA test is considered to have high sensitivity and specificity. In general, the DGP-IgA test has been reported to have a sensitivity ranging from 75% to 95% and a specificity ranging from 90% to 100%. Overall, the DGP tests, including DGP-IgA and DGP-IgG, exhibit a sensitivity of approximately 85-95% and a specificity of about 95-98%. The above paragraph is taken from this article which gives an overview of the various tests that can be run for celiac disease and their reliability: What symptoms are you experiencing?
    • trents
      Allergy Meds

      By trents · Posted

      Check Costco's store brand.
    • trents
      Celiac Maybe a Possibility?

      By trents · Posted

      Yes, get serum antibody testing done for celiac disease. You could also have NCGS (Non Celiac Gluten Sensitivity). NCGS shares many of the same symptoms of celiac disease but does not damage the lining of the small bowel as does celiac disease. There is no test for it. A diagnosis for NCGS depends on first ruling out celiac disease. It is 10x more common than celiac disease. Some experts feel it can be a precursor to the development of celiac disease. Eliminating gluten from your life is the antidote for both.
×
×
  • Create New...