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other autoimmune and liver disorders


MADMOM

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MADMOM Community Regular

i have read several articles about celiacs getting other autoimmunr diseases including autoimmune hepatitis etc and just wondering how much of a percentage do we have of getting any of these because of celiac?  if we are removing gluten and following a gluten free diet and staying healthy - why would we have liver issues etc / it scares me to death 


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trents Grand Master

It's like many health risks, I guess. Take smoking, for instance. People who smoked heavily for 20-30 years and then quit cannot necessarily expect to avoid future consequences. Most of us who have been diagnosed with celiac disease/gluten sensitivity lived with the toxic effect of gluten on our bodies for quite a few years before diagnosis. Should we expect to reverse all damage to body systems, especially the immune system, because we then go gluten free?

Chill out, MADMOM! Take one thing at a time. We aren't promised tomorrow so don't let worry about future things that may or may not happen ruin the joy you can have for today.

MADMOM Community Regular

ty sir you’re very positive and i just go into panic mode - it just boggles my mind to read about all these other issues we can have when anyone can - celiac or not 👍🏼

Scott Adams Grand Master

The general rule of thumb is that many of the risks associated with celiac disease decrease in time after going gluten-free, and some of the disorders that you may already have may also go away over time as well. Over years gluten-free the risks of many associated disorders drop to near zero, provided you stay 100% glutenf-ree.

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    • VioletM
      Hi Cristiana, we're italians, we eat pasta everyday so I guess consuming gluten won't be a problem. Thanks for the help Violet
    • cristiana
      Hi Violet That's great that he is consuming gluten.  When I was tested a few years ago we were told to to include "gluten in more than one meal a day for at least six weeks before testing."   @Scott Adams or another Mod might update this, as I believe the thinking is changing on this. Re: Coeliac screening.  Yes, the fact that your boyfriend was negative all those years ago does not mean that he does not have it now.  He might have developed it since.  My nephew is diabetic, Type I, and in fact he has to be routinely tested every three years because Type I diabetics can be prone to developing it.  That just goes to show it can develop at any time.  My own children have already been tested twice, when they encountered gastric problems at different times. I hope that helps. Cristiana      
    • VioletM
      Hi Cristiana He says he was tested when he was very young and was negative, but I heard that celiac can just "activate" at any age, is that true?  He is consuming gluten, thanks for telling me that. Violet
    • cristiana
      Hello Violet The fact that you are posting from Italy is good - we coeliacs on this forum hear a lot of good stories about Italy being ahead of the game, testing all  children at 6 years of age, I seem to recall?  Also, Italian doctors should be aware of the work of Dr Alessio Fasano, and his work on gluten and coeliac disease, including neurological issues. Is your boyfriend actually consuming gluten?  He will need to be if he is to be tested. Cristiana
    • VioletM
      Hi @plumbago All of the symptoms existed before valproate prescription. He also checked blood values and valrpoate is in sub-therapeutic range, for which the psychiatrist is considering an higher dose. Thank you for your reply, Violet
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