Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Should I Keep Pushing?


woly-boly

Recommended Posts

woly-boly Newbie

I had a bad allergic reaction to a jalapeno cheddar bagel from Winco Foods, March 30th 2021. This lead me to the ER and eventually an allergy specialist. I'm allergic to wheat, barley, corn, soybeans, oats and tomatoes. I also can't drink beer as it causes me to go into anaphylactic shock, I've known about the beer thing for about 10 years. 

After the bagel incident, I stopped eating bread and anything bread related. I met with a doctor and convinced him to test me, he ordered a Celiac Panel Reflex To Titer on 5/6/2021, however, when I brought up the fact that I had not eaten bread or gluten in several weeks, he told me it did not matter?! I explained to him all the literature I've read said otherwise and I was afraid the results to the panel would come back negative based on that. 

I tested negative. 

Should I keep pushing this issue? I feel like I wasted my time and they billed my medical for no reason. 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Scott Adams Grand Master

If it was a celiac disease blood panel, your doctor was incorrect, and you must eat gluten daily for 6-8 weeks before a test for it to be accurate. The only way you could get re-tested would be doing this again, and eating gluten daily for at least that long, but 12 weeks may be required:

In your case it doesn't sound like a safe thing to do, so I wouldn't recommend it. You should try to get your money back, provided your doctor knew you were gluten-free (although he should have asked you this, or at least mentioned it when he scheduled the test).

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,141
    • Most Online (within 30 mins)
      7,748

    Meghan W
    Newest Member
    Meghan W
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.2k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • sh00148
      Thank you. That’s all really helpful. I think it must have been something she ate as the poo colour has settled now.    Starting to see improvements in her tummy, slowly but surely!
    • Yaya
      I take all vitamins and supplements.  My cardiologist has me taking B12 5,000 once per weeks.  He gives me complete blood work every 6 months.  He's still building my D levels which is now in 60s.  He wants them in low 80s.  I take 5,000 IU's daily.  With this dosage I've gone from 42 to 65 over a period of about 5 years.  It builds very slowly.   As far as iron, I take a double dose of gentle iron with C on an empty stomach on alternate nights.  Yes, iron is a component for many of us with RLS, but mostly "brain iron" that in some people may require iron transfusions.   
    • trents
      The positive DGP-IGA indicates the possibility of celiac disease. It is typical for someone who does have celiac disease to have some antibody tests be negative and others positive. This is not unique to celiac disease diagnosis. It is why doctors typically run many tests when seeking diagnosis of a suspected disease.  The DGP-IgA test is considered to have high sensitivity and specificity. In general, the DGP-IgA test has been reported to have a sensitivity ranging from 75% to 95% and a specificity ranging from 90% to 100%. Overall, the DGP tests, including DGP-IgA and DGP-IgG, exhibit a sensitivity of approximately 85-95% and a specificity of about 95-98%. The above paragraph is taken from this article which gives an overview of the various tests that can be run for celiac disease and their reliability: What symptoms are you experiencing?
    • trents
      Check Costco's store brand.
    • trents
      Yes, get serum antibody testing done for celiac disease. You could also have NCGS (Non Celiac Gluten Sensitivity). NCGS shares many of the same symptoms of celiac disease but does not damage the lining of the small bowel as does celiac disease. There is no test for it. A diagnosis for NCGS depends on first ruling out celiac disease. It is 10x more common than celiac disease. Some experts feel it can be a precursor to the development of celiac disease. Eliminating gluten from your life is the antidote for both.
×
×
  • Create New...