Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Joint disease and gluten intolerance.


Юлия

Recommended Posts

Юлия Newbie

Hello everyone. I wonder if there are people on the site who were diagnosed with arthritis or spondyloarthropathy and these diseases were the result of gluten intolerance.

Link to comment
Share on other sites
  • Scott Adams changed the title to Joint disease and gluten intolerance.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mbrookes Community Regular

I have arthritis. In fact, I just had a shoulder replaced. Mine seems to have nothing to do with Celiac. Mine is a result of the joints just wearing out. I am 76, so that is to be expected.

Link to comment
Share on other sites
ekh Newbie

I had joint pain from the age of 6 until I was diagnosed with probable Celiac at age 40 (1978). Interesting that the joint pain and stomach problems went away after going off Gluten.  My diagnoses prior to the "probable Celiac" was either Lupus or Rheumatoid Arthritis.   The Dr.'s did not want me to go  back on gluten so Celiac could be confirmed through biopsies, I was that sick!

I am now almost 83 and some pain has returned but more because of age than ingesting gluten.  We live in a retirement community and, fortunately, the chefs are aware of the problems for many of us if we ingest gluten!   

Link to comment
Share on other sites
Scott Adams Grand Master

Welcome to the forum @ekh, and it's great to hear that there are retirement communities that offer gluten-free meals. We ran an article back in 2016 which made the prospect of finding gluten-free food for those in full care facilities to be rather difficult:

 

Link to comment
Share on other sites
GFinDC Veteran

Sometimes people who are intolerance to nightshades can have joint pain.  Nightshades we eat are potatoes, peppers, eggplant and tomatoes.  Cutting those out of your diet may help with pain in joints.  For me it took over a month for the joint pain to go away.  But it did, so goodbye potatoes!

Link to comment
Share on other sites
ekh Newbie

Since my mother was  allergic to potatoes, I try not to eat anything in the nightshade family very often.  Many people with joint pain can clear that up by staying away from the nightshade family, so very happy that it worked for you!  I am quite allergic to soy and fortunately the chefs here help me avoid that, especially since I experienced a (scary for them) allergic reaction soon after we moved in!   In the past, when giving workshops on allergies/celiac and gluten problems I have asked people what is your favorite food that you will not/cannot live with out?  Remove that from your diet for a month and  then reintroduce it into your diet and ascertain what happens.  Interesting to hear people's responses!

By the way the pain I now experience is due to pinched nerves, I am avoiding surgery if at all possible!

 

   

Link to comment
Share on other sites
wellman crazy cat lady Newbie

I had symptoms of celiac from the age of 18 months, but was never correctly diagnosed, poisoning myself with gluten for over 50 years. I figured it out at age 53, when a niece and a nephew were diagnosed. I went gluten free, and very quickly my GI symptoms cleared up completely. However, in my opinion, the damage to my joints, bone on bone arthritis at age 50, was caused by the undiagnosed/ untreated celiac. This is osteoarthritis, not rheumatoid, and there is no family history of anyone having severe arthritis at this young of an age. I have other problems, that I also suspect of being caused by the untreated celiac- a severe reflux, severe "sleep" apnea (my throat collapses when I am relaxed, not even asleep), two hernias and crappy lungs - all examples of lack of integrity of tissues in the body. There is no way to prove it, of course. But that is my suspicion. Oh, and from the age of 53 to now, 63, with my celiac treated,  I grew wisdom teeth up top. I never had more than tiny particles of calcium up top, and nothing on the bottom. Now I have full grown wisdom teeth. 

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



trents Grand Master

Not sure about the apnea, lungs and hernias being linked to long term exposure to gluten but the other problems you mention are statistically linked to undiagnosed celiac disease. You and I were diagnosed at about the same age and looking back over my life there were some symptoms I experienced even as a child. But when I was about 37 yr. old there was laboratory evidence of celiac disease because of idiopathic elevation of liver enzymes. It took 13 more years to find out what caused that and the culprit was celiac disease. It is a shame that there is not more awareness in the medical community about celiac disease and it takes so long for many to get it diagnosed. It's better than it used to be but not that much.

Link to comment
Share on other sites
GodsGal Community Regular
On 5/13/2021 at 2:03 PM, Юлия said:

Hello everyone. I wonder if there are people on the site who were diagnosed with arthritis or spondyloarthropathy and these diseases were the result of gluten intolerance.

I have not been diagnosed with it myself, but I do have a friend that was diagnosed with rheumatoid arthritis related to gluten intolerance.

Link to comment
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Julianne101 replied to Julianne101's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Seeking proper diagnosis

    2. - trents replied to Julianne101's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Seeking proper diagnosis

    3. - Julianne101 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Seeking proper diagnosis

    4. - Wheatwacked replied to glucel's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      3 month retest

    5. - Scott Adams replied to Debstaats's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      It sounds like celiac


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      124,654
    • Most Online (within 30 mins)
      7,748

    Ilka
    Newest Member
    Ilka
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.7k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Julianne101
      Thank you for the feedback!  I realize the restaurant meal was probably contaminated but I had no idea a reaction to gluten could last so long!  I’m hoping I find a doctor who will take me seriously.   Is Imodium or Pepto Bismol safe to take to manage symptoms?  
    • trents
      Welcome to the forum, @Julianne101! Your experience is exceedingly common in the celiac community. First, regardless of how gluten free the food was in the restaurant experience you described actually started out to be, you have no idea what measures were taken in the cooking, preparation and handling to prevent cross contamination. Sounds like to me you are either getting gluten from some unexpected source or you have developed additional food intolerances. It is very common in the celiac community to be intolerant to dairy (CMP or Cow's Milk Protein) or to oats (even gluten free oats, the protein avenin) which have proteins similar in structure to gluten and can be cross reactors.
    • Julianne101
      I'm new to this forum.  My sister was diagnosed with Celiac disease 20 years ago right around the time my 2 year-old daughter developed a swollen belly, prolapsed bowell (constipated), intense sweating, etc.  So, my sister suggested maybe it might have something to do with gluten.  My daughter's gastroenterologist said he didn't want to put her through an endoscopy (her blood test was negative) but I was welcome to try the strict gluten-free diet if I felt like it.   I did, and sure enough, withing a couple of days all of her symptoms disappeared.  I was shocked the first time I got her up from her nap and she wasn't literally drenched in sweat.  So, I decided to try the strict gluten-free diet too.  I was very sick with my pregnancy for my daughter and never really felt good since, lots of GI issues (gas and bloating primarily). I found that my symptoms also disappeared on the gluten-free diet.  So, I have been gluten-free ever since.  I avoid milk (except for cheese) because it causes gas and bloating.  Fast foward 19 years to just 1 year ago.  I started taking a new probiotic to try to ease menopause symptoms.  The next day I had sever diarrhea.  I thought that was weird, so I stopped taking the probiotic and started to feel better, but then the diarrhea came back a day or two later and remained on and off every few days for three months! It was nothing like food poisoning or the GI bug.   I got tested for parasites and other infectious diseases but everything came back negative.  So, I thought maybe I was developing a more severe form of gluten intolerance.  I also found out that right around the same time that I got the diarrhea, my brand of oat milk had changed their formula and was no longer using gluten-free oats, so maybe that was the cause. AFter three months, the diarrhea finally cleared up and I became much more vigilent about gluten contamination.  A couple months later I ate out at a restaurant.  The meal was labeled gluten-free, I clarified with the waitress, but the next day the severe diarrhea was back and this time it lasted two months but finally cleared up!  A couple months later, and I am cuurently in my third episode of diarrhea, and I have no idea what may have caused it. I've been to a Gastroenterologist who has tested me for everything under the sun and finds nothing wrong with me.  My colonoscopy is perfect, endoscopy perfect, IgA 184 (normal range), and several other tests all normal except for high eosinophils.  I've lost 20 pounds and struggle with dehydration.  I'm very curious, has anyone else with Celiac disease ever experienced anything like this?  Can people have a gluten contamination reaction last for 2-3 months like this?  The NP I saw in the GI Clinic claims my diarrhea has nothing to do with gluten, but I'm not so sure.  I've asked for a referrral to a specialist.  
    • Wheatwacked
      Growing up I wondered why restaurants always put parsley on the plates when no one ate it.  ten grams of parsley sprigs have Vitamin K (phylloquinone)164µg. The RDA of vitamin K is 19+ years male: 120 mcg  female: 90 mcg. Maybe your doctor would agree instead of the pills? The USDA Food Data Centra is a good source of nutrition. USDA Food Data Parsley, fresh I'd be interested in your test results vis a vis the Celiac vitamins.
    • Scott Adams
      If you are doing great on a gluten-free diet and see no reason to get a formal diagnosis of celiac disease, then it's perfectly fine for you to just stay gluten-free.  In the Europe the current protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children!    
×
×
  • Create New...