Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Joint disease and gluten intolerance.


Юлия

Recommended Posts

Юлия Newbie

Hello everyone. I wonder if there are people on the site who were diagnosed with arthritis or spondyloarthropathy and these diseases were the result of gluten intolerance.

  • Scott Adams changed the title to Joint disease and gluten intolerance.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mbrookes Community Regular

I have arthritis. In fact, I just had a shoulder replaced. Mine seems to have nothing to do with Celiac. Mine is a result of the joints just wearing out. I am 76, so that is to be expected.

ekh Newbie

I had joint pain from the age of 6 until I was diagnosed with probable Celiac at age 40 (1978). Interesting that the joint pain and stomach problems went away after going off Gluten.  My diagnoses prior to the "probable Celiac" was either Lupus or Rheumatoid Arthritis.   The Dr.'s did not want me to go  back on gluten so Celiac could be confirmed through biopsies, I was that sick!

I am now almost 83 and some pain has returned but more because of age than ingesting gluten.  We live in a retirement community and, fortunately, the chefs are aware of the problems for many of us if we ingest gluten!   

Scott Adams Grand Master

Welcome to the forum @ekh, and it's great to hear that there are retirement communities that offer gluten-free meals. We ran an article back in 2016 which made the prospect of finding gluten-free food for those in full care facilities to be rather difficult:

 

GFinDC Veteran

Sometimes people who are intolerance to nightshades can have joint pain.  Nightshades we eat are potatoes, peppers, eggplant and tomatoes.  Cutting those out of your diet may help with pain in joints.  For me it took over a month for the joint pain to go away.  But it did, so goodbye potatoes!

ekh Newbie

Since my mother was  allergic to potatoes, I try not to eat anything in the nightshade family very often.  Many people with joint pain can clear that up by staying away from the nightshade family, so very happy that it worked for you!  I am quite allergic to soy and fortunately the chefs here help me avoid that, especially since I experienced a (scary for them) allergic reaction soon after we moved in!   In the past, when giving workshops on allergies/celiac and gluten problems I have asked people what is your favorite food that you will not/cannot live with out?  Remove that from your diet for a month and  then reintroduce it into your diet and ascertain what happens.  Interesting to hear people's responses!

By the way the pain I now experience is due to pinched nerves, I am avoiding surgery if at all possible!

 

   

wellman crazy cat lady Newbie

I had symptoms of celiac from the age of 18 months, but was never correctly diagnosed, poisoning myself with gluten for over 50 years. I figured it out at age 53, when a niece and a nephew were diagnosed. I went gluten free, and very quickly my GI symptoms cleared up completely. However, in my opinion, the damage to my joints, bone on bone arthritis at age 50, was caused by the undiagnosed/ untreated celiac. This is osteoarthritis, not rheumatoid, and there is no family history of anyone having severe arthritis at this young of an age. I have other problems, that I also suspect of being caused by the untreated celiac- a severe reflux, severe "sleep" apnea (my throat collapses when I am relaxed, not even asleep), two hernias and crappy lungs - all examples of lack of integrity of tissues in the body. There is no way to prove it, of course. But that is my suspicion. Oh, and from the age of 53 to now, 63, with my celiac treated,  I grew wisdom teeth up top. I never had more than tiny particles of calcium up top, and nothing on the bottom. Now I have full grown wisdom teeth. 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



trents Grand Master

Not sure about the apnea, lungs and hernias being linked to long term exposure to gluten but the other problems you mention are statistically linked to undiagnosed celiac disease. You and I were diagnosed at about the same age and looking back over my life there were some symptoms I experienced even as a child. But when I was about 37 yr. old there was laboratory evidence of celiac disease because of idiopathic elevation of liver enzymes. It took 13 more years to find out what caused that and the culprit was celiac disease. It is a shame that there is not more awareness in the medical community about celiac disease and it takes so long for many to get it diagnosed. It's better than it used to be but not that much.

GodsGal Community Regular
On 5/13/2021 at 2:03 PM, Юлия said:

Hello everyone. I wonder if there are people on the site who were diagnosed with arthritis or spondyloarthropathy and these diseases were the result of gluten intolerance.

I have not been diagnosed with it myself, but I do have a friend that was diagnosed with rheumatoid arthritis related to gluten intolerance.

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,136
    • Most Online (within 30 mins)
      7,748

    kfkynett
    Newest Member
    kfkynett
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.2k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      Hello, I'd have been here sooner, but I got tangled up in yarn... Restless leg syndrome (RLS) I've had. It's often associated with iron deficiency and B12 deficiency, but can also show up with any deficiencies in Vitamin C, copper, Vitamin D, and Thiamine, Pyridoxine, and magnesium.  B12, Thiamine, and Pyridoxine will also help with peripheral neuropathy, that burning sensation.   (See... https://pmc.ncbi.nlm.nih.gov/articles/PMC9804944/ ) Long Covid can be the result of nutritional deficiencies, as well.  Zinc, Selenium, Vitamin D, B12, Thiamine, Riboflavin, Pyridoxine, Niacin, and Choline.  (See... https://pmc.ncbi.nlm.nih.gov/articles/PMC10015545/  and https://pubmed.ncbi.nlm.nih.gov/36587225/ ) I agree with @Wheatwacked to get Vitamin D level higher, 80 ng/ml.  Taking high doses of Vitamin D to correct a deficiency has been found to be beneficial.  I took Vitamin D3 supplements throughout the day when I had a severe deficiency.  It got my level up quickly and I started feeling much better.   (See... https://pubmed.ncbi.nlm.nih.gov/28167237/ , https://pmc.ncbi.nlm.nih.gov/articles/PMC4824637/) Vitamin D is a fat soluble vitamin.  Fats can be difficult to digest and absorb, so most of the newly diagnosed can be low in the four fat soluble vitamins (A,D,E,K).  A deficiency in Vitamin A can cause dry eyes.  Omega Threes and Evening Primrose Oil help with dry eyes, too.  (https://pmc.ncbi.nlm.nih.gov/articles/PMC10363387/) Blood tests are not accurate measurements of vitamin levels.  Blood tests will reflect any supplements being taken.  Blood tests do not measure how much of a vitamin is stored inside cells.  Supplementing with all eight essential B vitamins for several months will boost your ability to absorb the needed nutrients. A deficiency in Cobalamine, B12, can be aggravated by anesthesia.  Cobalt in Cobalamine binds irrevocably, irreversibly with the Nitrogen in anesthesia, rendering B12 useless.  Supplementing with B12 after exposure to anesthesia is beneficial.  (https://pubmed.ncbi.nlm.nih.gov/8250714/) Pyridoxine B6 and Riboflavin B2 as well as B12 are needed to lower histamine levels (produced during the inflammation process that occurs in Celiac Disease). This can help relieve the sinus pressure.  Riboflavin B2 and Thiamine B1 are helpful with headaches.   We need more Thiamine when we are emotionally stressed, physically ill, and physically active.  Benfotiamine, a form of Thiamine, has been shown to promote intestinal healing.  Thiamine is helpful in relieving anxiety.   (https://pmc.ncbi.nlm.nih.gov/articles/PMC10682628/  , https://pmc.ncbi.nlm.nih.gov/articles/PMC8451766/ ) Celiac Disease causes malabsorption of vitamins and minerals.  It is rare to have a single vitamin deficiency.  Malabsorption in celiac disease affects all the nutrients we need.  Some vitamins just run out sooner than others because they can't be stored or we have a metabolic need for more.  (https://pmc.ncbi.nlm.nih.gov/articles/PMC10106602/ ) Hope this helps!
    • StaciField
      There’s a Cosco in Auckland in New Zealand. It’s a bit away from where I live but it’s worth the travel for me. Very appreciative of your advice.
    • Wheatwacked
      It seems you have proven that you cannot eat gluten.  You've done what your doctors have not been able to do in 40 years. That's your low vitamin D, a common symptom with Celiac Disease.  Zinc is also a common defiency.  Its an antiviral.  that's why zinc gluconate lozenges work against airborne viruses.  Vitamin D and the Immune System+ Toe cramps, I find 250 mg of Thiamine helps.   When I started GFD I counted 19 symptoms going back to childhood that improved with Gluten Free Diet and vitamin D. I still take 10,000 IU a day to maintain 80 ng/ml and get it tested 4 times a year. Highest was 93 ng/ml and that was at end of summer.  Any excess is stored in fat or excreted through bile.   The western diet is deficient in many nutrients including choline and iodine.  Thats why processed foods are fortified.  Celiac Disease causes malabsorption of vitamins and minerals from the small intestine damage.  GFD stops the damage, but you will still have symptoms of deficiency until you get your vitamins repleted to normal.  Try to reduce your omega 6:3 ratio.  The Standard American Diet is 14:1 or greater.  Healthy is 3:1.  Wheat flour is 22:1.  Potatoes are 3:1 while sweet potatoes are 14:1.  So those sweet potatos that everyone says is better than Russet: they are increasing your inflammation levels.   
    • John.B
      Hello, Target recently changed their branding on the Up & Up Loratadine and no long have it labeled gluten free. I've not been able to find any meds labeled gluten free for allergies. Some lists showed them but the the packaging isn't labeled.  Wondering if anyone knows of or has a list that would be safe for Celiac kiddos.
    • Scott Adams
      My mother also has celiac disease, and one of her symptoms for many years before her diagnosis was TMJ. I believe it took her many years on a gluten-free diet before this issue went away.
×
×
  • Create New...