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Sourdough bread and gluten challenge


Cagirlintexas

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Cagirlintexas Newbie

Can’t find a good answer.  I have consistently been eating 2 pieces of sourdough bread a day for  at least 3-4 months.  Diagnosed with sibo 2 years ago, testing negative now but still symptoms.   Doctor tested for celiacs and came back negative.  Was this enough gluten.  Going to do genetic test but also considering redoing gluten challenge using vital wheat gluten.    


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trents Grand Master

There have been some studies that suggested sourdough bread is less "toxic" than other breads made from gluten containing flour. And there are some anecdotal accounts where people with celiac disease claim they can eat sourdough bread without repercussions, symptomatically speaking. But I don't think the scientific community or the celiac community is ready to give it a green light yet. And it may vary from celiac to celiac.

At any rate, if you are planning on going in for testing, the pretest gluten consumption guidelines for the blood antibody test are 6-8 weeks of the gluten equivalent of 2 slices of wheat bread (not sourdough) daily and for the endoscopy/biopsy, at least two weeks of daily gluten consumption in the same amount. Because of the question marks about the effect of the sourdough process on gluten toxicity, I would not count it toward pretest gluten consumption.

Cagirlintexas Newbie

Thank you!  That makes complete sense to me.  I had asked the doctor if sourdough was okay and he said it was fine but I had my doubts.  I will redo the test using vital wheat gluten.  Any idea how much needs to be consumed per day.  Just got a bag at the store.  I know that is low FODMAP so was hoping I wouldn’t react as strongly but we will see.

 

trents Grand Master

As far as grams of gluten per day needing to be consumed pretest I can not give you an amount but if you re-read my first post it is the equivalent of what is found in two slices of wheat bread per day. Might be easier just to buy a commercially produced loaf of bread.

Ennis-TX Grand Master

I think the vital what gluten was used before, I think the person did a few tsp a day of it? I do not think they ever got back to us. Vital Wheat gluten should be the gluten proteins left after the starch has been washed away. Google says a slice of bread is 4.8grams of gluten, so 2 slices per req. would be roughly 10 grams or 2tsp. For good measure double that with vital wheat protein would be my bet. 

Scott Adams Grand Master

I agree with @trents that enough gluten could have been removed from the sourdough bread to make you pass the test, and here are some articles on this:

https://www.celiac.com/search/?q=sourdough&quick=1&type=cms_records2&search_in=titles

Can I ask about why it's so important to get a positive test? Most people have non-celiac gluten sensitivity (~12%), and there are currently no tests for this. 

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    • Rogol72
      @Richardo, I'm in the same boat as you! I can't handle certified gluten free oats at all. Quinoa is the worst, even when I soak it in water and then wash under the tap for 10 minutes ... I have a reaction. It must be an immune system reaction to the proteins in these gluten-free grains. 
    • trents
      We are all different and our immune systems are unique. I will say, however, that I have not gotten the impression as a moderator and reading hundreds and hundreds of posts on this forum over the years that a dermatitis herpetiformis outbreak caused by grains other than wheat, barley and rye is common. But perhaps it is more common than we have realized and it could be why it it is seems to be common that those who suffer from dermatitis herpetiformis struggle to keep it under control. Perhaps there are qualities found in all cereal grains besides gluten that are contributing factors. Also, have you tried a low iodine diet to see if it helps with your dermatitis herpetiformis? Reportedly, reducing iodine helps some folks afflicted with dermatitis herpetiformis.
    • Richardo
      Ok thanks Trents. I had the lesions biopsied and confirmed dermatitis herpetiformis, so I guess dermatitis herpetiformis can be associated with other grains not typically gluten. I appreciate your comment and I'll give Dr Osborne the benefit of the doubt because without him I would never have known of my grain intolerance and would still be suffering today. I simply never read anyone explain how grains could worsen dermatitis herpetiformis and I feel that information should be made much more readily available. Hey if someone tries going grain free and there's no improvement, no loss, however it drastically changed my life for the better and could at least be offered as a suggestion to sufferers from dermatitis herpetiformis. The other option is Dapsome and I wouldn't want anyone taking that chemical if there was a more natural solution. thanks again 
    • trents
      Welcome to the forum, @Richardo! We sometimes run across terms like "rice gluten", "corn gluten", and "oat gluten" but they are used informally and, technically, it is incorrect to speak of grains other than wheat, barley and rye as having gluten. Gluten is a protein with a specific structure found only in wheat, barley and rye. Other cereal grains contain proteins that are more or less similar in structure to gluten in some ways but are not actually gluten. Having said that, the proteins found in these other cereal grains are similar enough to gluten to possibly cause cross reactivity in some celiacs. Cross reactivity also happens with non cereal grain foods as well that have a protein structure similar to gluten. A prime example is dairy (the protein "casein"). Another example may be soy. Other foods can also cause cross reactivity for different reasons, such as microbial transglutaminase (aka, "meat glue") used commonly in pressed meat products. Just so you'll know, Dr. Osborne's claims have not received wide acceptance in the celiac community and are looked upon with skepticism by the medical and scientific community. Although he is a board certified nutritionist, his doctorates are actually in chiropractic medicine and pastoral science: https://www.drpeterosborne.com/about/dr-peter-osborne/ I am not sure Osborne has the training and background to address the chemical structure that defines gluten. I would encourage you to do some research on what gluten actually is. I have done this for myself and came away convinced that only wheat, barely and rye actually contain the protein gluten. I do not doubt your claims that you have breakouts of dermatitis herpetiformis from consuming these other grains. I am just contending it is not actually from gluten.
    • Richardo
      I was diagnosed celiac about 15 years ago and followed the usual diet restriction on Wheat, barley and rye and did very well on those restrictions with no problems with dermatitis herpetiformis. 4 years ago I started getting bad rashes on my knees and calves, buttocks, around my waist and my elbows and forearms and hands. It seemed to last about 11/2 to 2 months then clear up for a month and come back  again. I never changed anything in my diet and a dermatologist told me I  must getting  cross contamination, which I knew I wasn't.  Finally after struggling with it all that time, I watched a video by Dr Osborne who sited a study done in England showing that ALL grains (rice, corn etc) contain gluten. I went on a totally grain free diet and have now been 100 percent free of dermatitis herpetiformis for over a year. I tried a test and ate corn flour and it started to come back so I'm off all grains again. Long story I know, but my question is, why is practically EVERY celiac site private or Govt only mentioning the BIG 3 and never mentions other grains as a possible means of contamination? I am free  from a horribly uncomfortable condition now and I know there are others who would be encouraged by this.
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