Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Revisiting a previous CT scan...

AmericanaMama
 Share

Recommended Posts

AmericanaMama Contributor
AmericanaMama
Posted

Long story short, I was gathering up medical records from the past year to make a type of "historic" overview of my celiac journey. There was something I sort of dismissed early on that I questioned recently. Because my journey started out with my back going out on me, I had a CT scan of the lumbar/sacrum region. On the radiologist's report it was mentioned there was calicification (plaque) in the abdominal aorta. I thought, "well, if it was worth mentioning, my pcp would've" or that it was probably negligible and part of aging. After thinking through things and knowing my curious mind, I looked up heart disease and celiac and there is a strong connection. I asked my doc about it and she wanted cholesterol level and probably a scan of the heart. I researched things further and asked for a particle size test (seems more fitting) and go from there. I will post my findings, etc. when they results come back. I had it all drawn Tuesday last week, and knowing how labs and most places can be before a major holiday, pffft...I won't hear for a bit, LOL.

My question is:  does anyone have a link to a study or an article on celiac involvement with other conditions? I know there are many sort of "autoimmune" (and that definition is ever expanding) diseases related (I have Sjogren's) out there, but anything I need to be aware of? I honestly had no clue how much celiac/inflammation/gut disbiosis affects the bod. I told my doc that I wasn't wanting to find disease at every turn, but realized that I had a situation that alerted me a bit.

Thanks!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Scott Adams Grand Master
Scott Adams
Posted

I've found it's definitely best to ask questions and keep following up with doctors about your health, otherwise you can just slip through the cracks.

This section has the related disorder summaries we've done of various studies:
https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/

and this sub-section has those about heard disease:
https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/heart-failure-and-celiac-disease/

Scott Adams Grand Master
Scott Adams
Posted

PS - I think it goes without saying that it might be a good time to discuss the possible use of statins with your doctor, as they can slow down, and possibly decrease plaque in arteries.

AmericanaMama Contributor
AmericanaMama
Posted
  • Author

Ooh...dang. I hate the idea but would do it.

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
 Share
Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Travel Celiac's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Test says no, but body says Yes?

      @PlanetJanet, Sorry to hear about your back pain. I have three crushed vertebrae myself. I found that a combination of Thiamine, Cobalamin and Pyridoxine (all water soluble B vitamins) work effectively for my back pain. This combination really works without the side effects of prescription and over-the-counter pain meds. I hope you will give them...
    2. Scott Adams
      - Scott Adams replied to DMCeliac's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Canned tomato sauce, ricotta?

      Here is the info from their website. If you don't trust them, you may find products that are labelled "gluten-free," but I don't see any reason to believe there is any gluten in them. Hunt's Tomato Paste: https://www.hunts.com/tomato-sauce-paste/tomato-paste Hunt's Tomato Sauce: https://www.hunts.com/tomato-sauce-and-paste/tomato...
    3. PlanetJanet
      - PlanetJanet replied to Travel Celiac's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Test says no, but body says Yes?

      Hi, trents, Thanks for responding! One book I read is called, Doing Harm, by Maya Dusenbery. She has wonderful perspective and insight, and it's all research-based. It's about how women can't get treated. Everyone should read this! I wouldn't mind reading it again, even. She believes that women are so busy taking care of families, working,...
    4. PlanetJanet
      - PlanetJanet replied to PlanetJanet's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Modified Food Starch

      They say maltodextrin is gluten-free, even if it's made from wheat, because the gluten is processed away. It makes no difference to my body. I still get uncontrollable flatulence and leakage. Happens every time, even if I refuse to believe it will happen. Once I was taking Gas-X chewables to hang around with people I was visiting and staying with, to...
    5. PlanetJanet
      - PlanetJanet replied to PlanetJanet's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Modified Food Starch

      Titanium dioxide is that chemical in vitamins, toothpaste, and processed white foods that is the whitener for the pill coloring. It is inflammatory for me. I have an intestinal reaction to it, every time. https://www.webmd.com/diet/titanium-dioxide-in-food https://pmc.ncbi.nlm.nih.gov/articles/PMC11295244/#:~:text=EFSA concluded that titanium...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      126,713
    • Most Online (within 30 mins)
      7,748
    Sianj
    Newest Member
    Sianj
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.6k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      Test says no, but body says Yes?

      By knitty kitty · Posted

      @PlanetJanet, Sorry to hear about your back pain.  I have three crushed vertebrae myself.  I found that a combination of Thiamine, Cobalamin and Pyridoxine (all water soluble B vitamins) work effectively for my back pain.  This combination really works without the side effects of prescription and over-the-counter pain meds.  I hope you will give them a try. Here are articles on these vitamins and pain relief... Mechanisms of action of vitamin B1 (thiamine), B6 (pyridoxine), and B12 (cobalamin) in pain: a narrative review https://pubmed.ncbi.nlm.nih.gov/35156556/ And... Role of B vitamins, thiamine, pyridoxine, and cyanocobalamin in back pain and other musculoskeletal conditions: a narrative review https://pubmed.ncbi.nlm.nih.gov/33865694/
    • Scott Adams
      Canned tomato sauce, ricotta?

      By Scott Adams · Posted

      Here is the info from their website. If you don't trust them, you may find products that are labelled "gluten-free," but I don't see any reason to believe there is any gluten in them. Hunt's Tomato Paste: https://www.hunts.com/tomato-sauce-paste/tomato-paste   Hunt's Tomato Sauce: https://www.hunts.com/tomato-sauce-and-paste/tomato-sauce  
    • PlanetJanet
      Test says no, but body says Yes?

      By PlanetJanet · Posted

      Hi, trents, Thanks for responding! One book I read is called, Doing Harm, by Maya Dusenbery.  She has wonderful perspective and insight, and it's all research-based.  It's about how women can't get treated.  Everyone should read this!  I wouldn't mind reading it again, even.  She believes that women are so busy taking care of families, working, etc., that we are more likely to ignore our pain and symptoms for longer.  Men have women bugging them to go to the doctor.  Women don't have anyone telling us that.  We don't have time to go.  Providers think we are over-emotional, histrionic, depressed, have low tolerance to pain...Men get prescribed opioids for the same symptoms women are prescribed anti-depressants.  My car crash in January 2020 made going to the doctor a full-time job.  I grew up with 2 rough and tumble brothers, played outside, climbed trees.  I was tough and strong, pain didn't bother me, I knew it would heal.  But do you think I could get treated for back pain--as a woman?  I am so familiar now with the brush-offs, the blank looks, the, "Take your Ibuprofen," the insinuation that I am just over-reacting, trying to get attention, or even, "Drug Seeking."  Took almost 2 years, but what was happening was Degenerative Sacroiliitis.  I couldn't walk right, my gait was off, effected my entire spine because gait was off.  I had braced myself with my legs in a front-impact, slightly head-on crash with someone who made a left turn in front of me from the opposite direction.  I finally had SI Joint Fusion surgery, both sides.  It's not a cure. I have given up on trying to get properly treated.  There is so much pain with these spine issues caused by bad gait:  scoliosis, lithesis, arthropathy, bulged disc, Tarlov cysts.  And I can't take anything because of my bad tummy. Not that I would ever hurt anyone, but I can relate to Luis Mangione who couldn't get treated for his back injury. I feel so alone.
    • PlanetJanet
      Modified Food Starch

      By PlanetJanet · Posted

      They say maltodextrin is gluten-free, even if it's made from wheat, because the gluten is processed away.  It makes no difference to my body.  I still get uncontrollable flatulence and leakage.  Happens every time, even if I refuse to believe it will happen.  Once I was taking Gas-X chewables to hang around with people I was visiting and staying with, to make sure I would feel safer and more comfortable.  WRONG.  I forgot to read the label. I didn't realize it till after I left and went home--MALTODEXTRIN.  I was miserable the whole time. The second gastroenterologist I saw made the tentative diagnosis of microscopic colitis.  Usually occurs in women over 60, I was 59, had been in a crash, (2020) was taking alot of NSAIDS, muscle relaxants.  Had constant diarrhea, gas, leaking.  Unbearable, and I didn't know it was NSAIDS.  I was scheduled for two-way endoscopy, mouth to butt, but they wanted $2,000 up front.  Finally, had a colonoscopy in 2022, 10 biopsies, didn't find a thing!  MC can go into remission, which I was, of course, desperate to do.  No more NSAIDS, tried to cut down on all the other pain killers, everything, chemicals that I knew triggered me.  So, no, they didn't find anything.  So sad that we have to make ourselves sicker and more injured to get a proper diagnosis! Microscopic colitis is being seen concurrently with gluten problems.  MC can be triggered by NSAIDS, SSRI's, all kinds of things. https://my.clevelandclinic.org/health/diseases/17227-microscopic-colitis Some links for maltodextrin health effects: https://pmc.ncbi.nlm.nih.gov/articles/PMC6409436/#:~:text=Altogether%2C these findings show that,the development of intestinal inflammation. https://www.mdedge.com/internalmedicine/article/193956/gastroenterology/maltodextrin-may-increase-colitis-risk  
    • PlanetJanet
      Modified Food Starch

      By PlanetJanet · Posted

      Titanium dioxide is that chemical in vitamins, toothpaste, and processed white foods that is the whitener for the pill coloring.  It is inflammatory for me.  I have an intestinal reaction to it, every time. https://www.webmd.com/diet/titanium-dioxide-in-food https://pmc.ncbi.nlm.nih.gov/articles/PMC11295244/#:~:text=EFSA concluded that titanium dioxide,uncertainties in recent toxicological studies.
×
×
  • Create New...