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Disaccharide levels

lhu7
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lhu7 Apprentice
lhu7
Posted

I have had celiac for 3 years. I have always been a picky eater not ever wanting fruits and veggies because fast texture and gagging which would be ARFID eating disorder. I feel tired all the time, depressed, constipated and brain fog. I had another endoscopy and everything look good except for disaccharide levels. Doctor said I could take sucraid. Are there any underlining problems that I could solve to fix the levels?

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Scott Adams Grand Master
Scott Adams
Posted

I'm not expert on this, but I believe something like a low carb, paleo diet would be needed if you are not willing to take enzymes to help you digest the sugars. So avoiding starches, especially processed ones, and sugar, and eat mostly meats, vegetables, nuts, etc.

This site talks about what the levels mean in more detail:

https://www.csidcares.org/about/biopsy/

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      In the UK and some other nations there is an increasing tendency for doctors to forego the endoscopy/biopsy if the ttg(IGA) is 10x normal range or greater. Your son's score easily exceeds that. There is only a 5% chance that his elevated ttg(IGA) levels are caused by something other than celiac disease and not more than a 10% chance that his elevated ttg(igg) score is caused by something else. Please consider these odds.   Then there is the elevated liver enzyme issue which is found in about 20% of those with celiac disease.  I think there is sufficient evidence to conclude that your son has celiac disease and I would talk to his physician about opting out of the endoscopy/biopsy. On the other hand, if you or your son demand more evidence, then pursue the endoscopy/biopsy.
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      Ok, so reference range for labcorp for (tTG) IgA Reference Interval: 0-3, Unit: U/mL( for my son it's  >100) Transglutaminase (tTG) IgG Reference Interval: 0-5, Unit: U/mL( for my son is 57)   Thank you, I will ask doctor to order the correct test. Since he is on gluten due to unawakened will investigate throughly. 
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