I got my dna test back and here are the results:  HLA-DQA1, ALLELE 1 Value 01:02 HLA-DQA1, ALLELE 2 Value 02:01 HLA-DQB1, ALLELE 1 Value 02:02 HLA-DQB1, ALLELE 2 Value 06:02 I had a CT scan, which nothing was found except for a large bowel fecal mass, which doesn’t surprise me because I get super constipated and my GI track doesn’t seem to push anything out.  Stuff just sits in my rectum hanging there…  My blood labs for celiac were negative, but I’ve also been gluten-free since May 2024. Here are my symptoms and why I was getting tested for gluten intolerance or celiac:  Chronic constipation, bowel not active, brain fog, language issues, finding my words, memory issues, brain feels like it’s on fire sometimes, adhd, depression, anxiety, dry mouth, mouth sores, skin lesions/sores that went away with gluten-free diet, dry eyes, joint pain and cracking, chronic fatigue (debilitating physical fatigue- not wanting to move anywhere), graphical tongue, breast tenderness, vitamin B12 and D deficiencies (while not on gluten-free diet), gas that would clear a room, leg and ankle feel like they are heavy or retaining water/painful when walking, acne, brittle nails, night sweats and horrible heart palpitations My GI doc said to do the gluten challenge, but honestly, I’m scared to go through it.  Many of these symptoms have cleared up after gluten-free.  Most noticeable is joint cracking has gone way down, mouth is not as chronically dry, my fatigue is better, graphic tongue is gone (I’ve had this my whole entire life!), vitamin levels are stabilizing, no more horrible smelly gas, my cuticles look much better.   I’m just not sure if it’s worth the true diagnosis and going through it all.   Thoughts??? 

No, I don't know of anyone in particular. But if you are consuming gluten regularly, it would be a great time to get antibody testing done for celiac disease. Many celiacs are of the "silent" type. That is, even though slow damage is being done to the lining of their small bowel, they are largely asymptomatic and remain that way sometimes for years until the damage becomes severe enough. Just a thought.

Yes its quite possible that my condition wasnt coeliacs but something similar as had the classic symptoms but also more intolerances than just gluten. I have read that it is possible to become intolerant to more and more different types of food if you keep eating what you are intolerant to, not sure if that applied to gluten and coeliacs or not as it is a while ago i read that. Do you know of people who have been in remission for 18 months or longer?    

I’ve had on and off swelling of a salivary gland below my jaw - sialoadenitis.  It was very visible when it swelled though.

Thanks for getting back to us Geordie. From time to time we do get reports of what seems like remission from those who have been diagnosed with celiac disease but it doesn't always last. I don't recall you saying you have been diagnosed with celiac disease, but just having various food intolerances and also implying in your last post that these intolerances are autoimmune related. So, I don't know where you are with celiac disease which is an autoimmune disorder.