Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

A-fib before being diagnosed with celiac disease:


julie falco

Recommended Posts

julie falco Explorer

Once diagnosed with Celiac a month later ( Dr. said A-Fib was a result from Celiac and took me off heart med.  Followed gluten free diet and no longer had a problem 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Russ H Community Regular

I developed what was described to me as a 'benign' heart arrhythmia 14 years ago - premature atrial complexes. Ectopic beats that I used to feel - some were quite hard and uncomfortable. Haven't noticed a single one since I have been gluten free for 4 months. I have not yet been formally diagnosed as coeliac but think there is a good chance that I am.

Scott Adams Grand Master

This is interesting because I too went to the emergency room on at least two occasions before my diagnosis in the mid 1990's because of what seemed to be an irregular heart beat. They didn't find anything, but I definitely felt like it was heart arrhythmia. The symptom went away after going gluten-free.

I learned years later when we summarized some research on this topic that certain heart conditions can be related to celiac disease, and here are those articles:
https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/heart-failure-and-celiac-disease/

julie falco Explorer
On 7/12/2021 at 5:39 PM, Russ314 said:

I developed what was described to me as a 'benign' heart arrhythmia 14 years ago - premature atrial complexes. Ectopic beats that I used to feel - some were quite hard and uncomfortable. Haven't noticed a single one since I have been gluten free for 4 months. I have not yet been formally diagnosed as coeliac but think there is a good chance that I am.

 Seeing that other people are having same symtoms and it wasn't just me hopefully Dr's see these messages and use it for their knowledge, these messages in here could be very helpful for other people I hope the Celiac Foundation is keeping records of certain posts.  Nothing better then getting information straight from the people .

  • 3 weeks later...
Russ H Community Regular
On 7/13/2021 at 11:34 PM, Scott Adams said:

This is interesting because I too went to the emergency room on at least two occasions before my diagnosis in the mid 1990's because of what seemed to be an irregular heart beat. They didn't find anything, but I definitely felt like it was heart arrhythmia. The symptom went away after going gluten-free.

I learned years later when we summarized some research on this topic that certain heart conditions can be related to celiac disease, and here are those articles:
https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/heart-failure-and-celiac-disease/

Thanks, for the links. The one on coronary artery risk speculates a link to low grade inflammation originating in the gut. I wonder whether eating a gut friendly diet would be beneficial?

Scott Adams Grand Master

It could be beneficial for many reasons, take a look at this:

https://www.livescience.com/centenarians-gut-bacteria-aging-bile-acids.html 

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Colleen H replied to Colleen H's topic in Coping with Celiac Disease
      2

      Gluten related ??

    2. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    3. - AlwaysLearning replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    4. - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      2

      Gluten related ??


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,079
    • Most Online (within 30 mins)
      7,748

    Terra33
    Newest Member
    Terra33
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Colleen H
      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
    • Russ H
      This treatment looks promising. Its aim is to provoke immune tolerance of gluten, possibly curing the disease. It passed the phase 2 trial with flying colours, and I came across a post on Reddit by one of the study volunteers. Apparently, the results were good enough that the company is applying for fast track approval.  Anokion Announces Positive Symptom Data from its Phase 2 Trial Evaluating KAN-101 for the Treatment of Celiac Disease https://www.reddit.com/r/Celiac/comments/1krx2wh/kan_101_trial_put_on_hold/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.