Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate
  1. Scott Adams

    Scott Adams

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to LizzieF's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Testing Help

    2. - knitty kitty replied to LizzieF's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Testing Help

    3. - trents replied to LizzieF's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Testing Help

    4. - trents replied to ChrisDun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Intermittent Fatigue

    5. - LizzieF posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Testing Help


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,177
    • Most Online (within 30 mins)
      7,748

    Whov19
    Newest Member
    Whov19
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      71.5k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      @LizzieF, if you will be seeking repeat blood antibody testing after undergoing a more rigorous gluten challenge, make sure your physician orders the "total IGA" test to check for IGA deficiency. If you are IGA deficient, all other IGA test scores will be artificially low and this can result in false negatives. Can you list the blood antibody tests that were already done, the scores along with the reference ranges?
    • knitty kitty
      @LizzieF, The anemia which can be caused by low iron can impede antibody production.   NCGS can be a precursor of Celiac Disease, especially in those who already carry Celiac genes.   Celiac is the only disease where you have to self harm to get a diagnosis.   Do talk to your doctor about the updated gluten challenge requirements and a repeat endoscopy.
    • trents
      Welcome to the forum, @LizzieF! Yes, I also question whether or not your exposure to gluten before either the endoscopy/biopsy or the antibody testing was long enough or intense enough to render valid test results. Guidelines for the "gluten challenge" have recently been revised to recommend more intense exposure: at least 10g of gluten (about the amount in 4-6 slices of wheat bread) daily for at least two weeks leading up to the day of the blood draw or the procedure. But frankly, I would certainly give it twice that long to be sure. It is also very possible you are dealing with NCGS (Non Celiac Gluten Sensitivity) instead of celiac disease. They share many of the same symptoms but...
    • trents
      Chris, has your husband had a recent checkup with detailed bloodwork (CBC and CMP)? Has he been checked for vitamin and mineral deficiencies?
    • LizzieF
      Hi everyone - I have been gluten free for 2+ years after doing some genetic testing that showed inability to process gluten and carrying a gene for celiac (I’ve had GI related issues for 20+ years that were diagnosed as IBS/lactose intolerance). After persistent low iron, new GI suggested we look at celiac. Endoscopy results noted the below. I have to add that I added gluten for about 12 days prior to my test (and was miserable in the process). “The differential diagnosis includes celiac disease, but the degree of intraepithelial lymphocytes does not reach the threshold for Marsh 1 lesion.” Chrons/Colitis negative. GI suggested I continue eating gluten (after a 3 day pause awaiting...
×
×
  • Create New...