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Does this also seem incorrect to you guys?

Randommuwa
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Randommuwa Apprentice
Randommuwa
Posted

I have positive blood work, negative biopsy. Today was the first time I talked to my GI about the biopsy results and she tried to say my biopsy "proved" I didn't have celiacs. Which is already wrong itself, it can only confirm I have it, not that I don't. She said if I wanted to continue to pursue looking into it that we could. She said we can do genetic testing and that would "prove" if I had it or not..... Which also isn't right... 

 

I had to tell her to redo blood work (with a complete metabolic panel this time because she didn't do that the first time) just so when it comes back positive for the second time maybe she'd be more convinced it wasn't false. Is there anything else I should do? Do I just need a different doctor? She doesn't seem to understand her own field of work and the tests associated. 

 

 

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frieze Community Regular
frieze
Posted

I vote a new doc.

Scott Adams Grand Master
Scott Adams
Posted

It definitely sounds like your doctor needs to read up on the protocols for celiac disease screening. Can you share your blood test results with us, along with the cut off levels for a positive test? I wonder if a second blood test is necessary, but be sure to keep eating gluten until all testing is finished, otherwise you may end up with false negative results. 

Randommuwa Apprentice
Randommuwa
Posted
  • Author
2 minutes ago, Scott Adams said:

It definitely sounds like your doctor needs to read up on the protocols for celiac disease screening. Can you share your blood test results with us, along with the cut off levels for a positive test? I wonder if a second blood test is necessary, but be sure to keep eating gluten until all testing is finished, otherwise you may end up with false negative results. 

Yeah I've kept eating gluten to make sure my results are accurate. 

 

Blood work results:

Endomysial Abs (IgA):

Negative 

 

Gliadin Ab, IgA (Deamidated):

My Value: 21.4 U (Weak positive 20.0-30.0)

Standard Range: <20.0 (Negative) U

 

Tissue Transglutaminase IgA Ab: 

My Value: 5.7 U/mL (Weak Positive 4.0-10.0)

Standard Range: <4.0 (Negative) U/mL 

 

IgA: 

My Value: 234 mg/dL

Standard Range: 61 - 356 mg/dL

Scott Adams Grand Master
Scott Adams
Posted

To me it looks like the most important test was positive: Tissue Transglutaminase IgA Ab, even though it is a "weak positive" it is still positive. If your doctor is willing to re-run the blood panel it may make sense to do it again, and you need to keep eating about 2 sliced of wheat bread daily for at least 6-8 weeks before the test, and at least 2 weeks before a biopsy.

If you think a positive celiac disease test will help you stay on a gluten-free diet, then it would make sense to get the diagnosis. 

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