What celiac watchdog groups have looked into what you mentioned? Thanks.

Welcome to the forum, @CiCi1021! Well, to begin with, most of us have found it isn't necessary to buy a lot of specifically labeled "gluten free" or "Certified Gluten Free" prepackaged food items as long as you are willing and able to cook from scratch. This is especially true since testing by celiac watchdog groups has cast some serious doubt on how consistently food companies are actually meeting gluten free and certified gluten free standards. It's probably just as effective and certainly less expensive to buy naturally gluten free mainline food products such as fresh meat, vegetables and fruit and prepare your own meals. The only major exception to that in my experience is loaf bread. It's very difficult to make your own gluten free bread products and have them come out decent with regard to texture. The major food companies have invested a lot into that component and have come up with some pretty good stuff that's hard to duplicate for yourself.

Struggling with costs of all the special food.  Are there any organizations out there that will assist with costs? 

I would ask the GI doc about the elevated IGA score of 401. That one is what we commonly refer to as "total IGA" and also known as "Immunoglobulin A (IgA)". It could be nothing but it can also indicate some other health issues, some of them serious in nature. I would google potential causes for that if I were you. Also, if there is a chance the GI doc will want to do more testing for celiac disease, either antibody testing or an endoscopy with biopsy, you should not cut back on gluten consumption until all celiac disease testing is done. Otherwise, you will invalidate the testing.

Hello. I apologize. I didn't know there wasn't a standard.  The standard listed  for the IGA is normal range 47-310.  The others were all listed as <15.0 u/l is antibody not detected and 15> antibody is detected.  And the negative one the standard is negative.  It is a normal PCP dr. I do have a second opinion appt scheduled with a GI specialist in 2 weeks. Honestly, I haven't cut out gluten at all. I just switched to whole fibers and everything has been getting better. She wanted to do the test just to check, which I was fine with. We'll see what the GI dr says. Thank you for commenting.