Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Cow's Milk Protein Allergy as childhood Symptom

Moonchild94
 Share

Recommended Posts

Moonchild94 Rookie
Moonchild94
Posted

Hi everyone! 

I've been reading this site for a while now but saw a thread that really caught my eye and wanted to know some more info.

The thread was about a protein allergy in cows milk for kids, with mothers who had undiagnosed celiac, I myself was an infant who had that allergy when I was little. Did any of you who have been diagnosed with celiac, suffer from it? I have many other symptoms and am starting the diagnosing process in the next month or so as symptoms are getting much worse now. 

 

Any help is appreciated! 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Scott Adams Grand Master
Scott Adams
Posted

Welcome to the forum! 

Many people with untreated celiac disease end up with casein (cow’s milk protein) intolerance and/or lactose intolerance, but not necessarily cow’s milk allergy, which is different.

In these cases cow’s milk can’t be broken down properly during digestion due to damaged villi in the intestines.

I had this issue and it went away ~2 years after I went gluten-free.

If you’re going to get a blood panel done for celiac disease don’t forget to continue eating ~2 slices of wheat bread a day until all tests are completed, otherwise you may end up with false negative results.

  • 1 year later...
DawnFL Newbie
DawnFL
Posted
On 8/1/2021 at 2:38 PM, Scott Adams said:

Welcome to the forum! 

Many people with untreated celiac disease end up with casein (cow’s milk protein) intolerance and/or lactose intolerance, but not necessarily cow’s milk allergy, which is different.

In these cases cow’s milk can’t be broken down properly during digestion due to damaged villi in the intestines.

I had this issue and it went away ~2 years after I went gluten-free.

If you’re going to get a blood panel done for celiac disease don’t forget to continue eating ~2 slices of wheat bread a day until all tests are completed, otherwise you may end up with false negative results.

I am Soo Upset that my doctor's office didn't tell me I needed to make sure I was eating wheat every day before the test! 
I even asked the lab technician who did the draw, "Does it matter that I haven't been eating much, lately?"  She said, "No.  It's a genetic test so it has nothing to do with food."    Now I'm confused & not certain what to expect.  

To the first part of this - I was Very sick as an infant & nearly died from milk allergy, according to my grandmother.  After I seemed to improve on Similac formula, & was old enough to begin eating solids, my grandmother packed me full as much food as I'd eat.  (grandma's often over-love through food)  I don't think I ever truly got over, or grew out of the milk allergy; not completely, anyhow.   But I do love cow's milk.  Not as much lately, because I seem to react to everything. 

Scott Adams Grand Master
Scott Adams
Posted

For the genetic test eating gluten or not does not matter, for the blood antibody tests for celiac disease it does matter.

More info on this is here:

 

DawnFL Newbie
DawnFL
Posted
7 minutes ago, Scott Adams said:

For the genetic test eating gluten or not does not matter, for the blood antibody tests for celiac disease it does matter.

More info on this is here:

 

Hi, thank you so much, Scott, for your reply.  There is an awful lot to take in.  I've been run around the mulberry-bush, for over 2 decades, being told I had CFS, FMS, Hypothyroid, Vit D deficiency, Carpal Tunnel, RA & then told I couldn't possibly have RA.  It's been a nightmare.  Now, by gallbladder is shot, it has done some damage to my liver & I need the endo/ colonoscopy, Fibro Scan (liver) & H. Pylori testing & maybe something else.  Already had HIDA Scan & of course, they're willing to remove the gallbladder.   I'm not ready for that.
I tried to tell them for years, that I had something else going on, but it fell on deaf ears. 
Finally, the PCP scripted a Celiac Disease Panel Tissue Transglutimase IgG & IgA with Gliadin Antibody IgG & IgA.
This is the lab draw I just had, where the tech told me it had nothing to do with what I've been eating. 

I'm going to read through your article.  I think I've read it once, but I haven't been feeling well & not really retaining much info.

Thanks so much! 

Scott Adams Grand Master
Scott Adams
Posted

At this point, given all the health issues you are having (many of your symptoms could be related to undiagnosed celiac disease), you may just want to try a gluten-free diet for a few months to see if it helps. If your test results end up positive your doctor may want you to do an endoscopy to confirm the diagnosis, which means you'd need to eat gluten daily for at least two weeks before that test.

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
 Share
Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed. Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
    2. knitty kitty
      - knitty kitty replied to Jordan Carlson's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Fruits & Veggies

      Hello, @Jordan Carlson, So glad you're feeling better. Tecta is a proton pump inhibitor. PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12. Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the...
    3. knitty kitty
      - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1. There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine. In Thiamine deficiency, the body...
    4. Scott Adams
      0

      Inmate with Celiac Disease Wins $630,000 After Jail Denies Gluten-Free Food

    5. trents
      - trents replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,018
    • Most Online (within 30 mins)
      7,748
    Nancy Adams
    Newest Member
    Nancy Adams
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Positive biopsy

      By knitty kitty · Posted

      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed.   Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
    • knitty kitty
      Fruits & Veggies

      By knitty kitty · Posted

      Hello, @Jordan Carlson, So glad you're feeling better.   Tecta is a proton pump inhibitor.  PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12.  Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the production of digestive juices (stomach acids).  This results in foods not being digested thoroughly.  If foods are not digested sufficiently, the vitamins and other nutrients aren't released from the food, and the body cannot absorb them.  This sets up a vicious cycle. Acid reflux and Gerd are actually symptoms of producing too little stomach acid.  Insufficient stomach acid production is seen with Thiamine and Niacin deficiencies.  PPI's like Tecta also block the transporters that pull Thiamine into cells, preventing absorption of thiamine.  Other symptoms of Thiamine deficiency are difficulty swallowing, gagging, problems with food texture, dysphagia. Other symptoms of Thiamine deficiency are symptoms of ADHD and anxiety.  Vyvanse also blocks thiamine transporters contributing further to Thiamine deficiency.  Pristiq has been shown to work better if thiamine is supplemented at the same time because thiamine is needed to make serotonin.  Doctors don't recognize anxiety and depression and adult onset ADHD as early symptoms of Thiamine deficiency. Stomach acid is needed to digest Vitamin C (ascorbic acid) in fruits and vegetables.  Ascorbic acid left undigested can cause intestinal upsets, anxiety, and heart palpitations.   Yes, a child can be born with nutritional deficiencies if the parents were deficient.  Parents who are thiamine deficient have offspring with fewer thiamine transporters on cell surfaces, making thiamine deficiency easier to develop in the children.  A person can struggle along for years with subclinical vitamin deficiencies.  Been here, done this.  Please consider supplementing with Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) which helps immensely with dysphagia and neurological symptoms like anxiety, depression, and ADHD symptoms.  Benfotiamine helps with improving intestinal health.  A B Complex and NeuroMag (a magnesium supplement), and Vitamin D are needed also.
    • knitty kitty
      Positive biopsy

      By knitty kitty · Posted

      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1.   There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine.   In Thiamine deficiency, the body burns its stored fat as a source of fuel.  That fat pad between the aorta and digestive system gets used as fuel, too. Ask for an Erythrocyte Transketolace Activity test to look for thiamine deficiency.  Correction of thiamine deficiency can help restore that fat pad.   Best wishes for your recovery!   Interesting Reading: Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pubmed.ncbi.nlm.nih.gov/31089433/#:~:text=Affiliations,tissue and results in SMAS.  
    • trents
      Positive biopsy

      By trents · Posted

      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an attack on the villous lining of the small bowel. This is the section of the intestines where all our nutrition is absorbed. It is made up of billions of tiny finger-like projections that create a tremendous surface area for absorbing nutrients. For the person with celiac disease, unchecked gluten consumption generates inflammation that wears down these fingers and, over time, greatly reduces the nutrient absorbing efficiency of the small bowel lining. This can generate a whole host of other nutrient deficiency related medical problems. We also now know that the autoimmune reaction to gluten is not necessarily limited to the lining of the small bowel such that celiac disease can damage other body systems and organs such as the liver and the joints and cause neurological problems.  It can take around two years for the villous lining to completely heal but most people start feeling better well before then. It's also important to realize that celiac disease can cause intolerance to some other foods whose protein structures are similar to gluten. Chief among them are dairy and oats but also eggs, corn and soy. Just keep that in mind.
    • pothosqueen
      Positive biopsy

      By pothosqueen · Posted

      26F!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.