Cow's Milk Protein Allergy as childhood Symptom

[Moonchild94]

Hi everyone! 

I've been reading this site for a while now but saw a thread that really caught my eye and wanted to know some more info.

The thread was about a protein allergy in cows milk for kids, with mothers who had undiagnosed celiac, I myself was an infant who had that allergy when I was little. Did any of you who have been diagnosed with celiac, suffer from it? I have many other symptoms and am starting the diagnosing process in the next month or so as symptoms are getting much worse now. 

 

Any help is appreciated! 

[Scott Adams]

Welcome to the forum! 

Many people with untreated celiac disease end up with casein (cow’s milk protein) intolerance and/or lactose intolerance, but not necessarily cow’s milk allergy, which is different.

In these cases cow’s milk can’t be broken down properly during digestion due to damaged villi in the intestines.

I had this issue and it went away ~2 years after I went gluten-free.

If you’re going to get a blood panel done for celiac disease don’t forget to continue eating ~2 slices of wheat bread a day until all tests are completed, otherwise you may end up with false negative results.

[DawnFL]

On 8/1/2021 at 2:38 PM, Scott Adams said:

Welcome to the forum! 

Many people with untreated celiac disease end up with casein (cow’s milk protein) intolerance and/or lactose intolerance, but not necessarily cow’s milk allergy, which is different.

In these cases cow’s milk can’t be broken down properly during digestion due to damaged villi in the intestines.

I had this issue and it went away ~2 years after I went gluten-free.

If you’re going to get a blood panel done for celiac disease don’t forget to continue eating ~2 slices of wheat bread a day until all tests are completed, otherwise you may end up with false negative results.

I am Soo Upset that my doctor's office didn't tell me I needed to make sure I was eating wheat every day before the test! 
I even asked the lab technician who did the draw, "Does it matter that I haven't been eating much, lately?"  She said, "No.  It's a genetic test so it has nothing to do with food."    Now I'm confused & not certain what to expect.  

To the first part of this - I was Very sick as an infant & nearly died from milk allergy, according to my grandmother.  After I seemed to improve on Similac formula, & was old enough to begin eating solids, my grandmother packed me full as much food as I'd eat.  (grandma's often over-love through food)  I don't think I ever truly got over, or grew out of the milk allergy; not completely, anyhow.   But I do love cow's milk.  Not as much lately, because I seem to react to everything. 

[Scott Adams]

For the genetic test eating gluten or not does not matter, for the blood antibody tests for celiac disease it does matter.

More info on this is here:

 

[DawnFL]

7 minutes ago, Scott Adams said:

For the genetic test eating gluten or not does not matter, for the blood antibody tests for celiac disease it does matter.

More info on this is here:

 

Hi, thank you so much, Scott, for your reply.  There is an awful lot to take in.  I've been run around the mulberry-bush, for over 2 decades, being told I had CFS, FMS, Hypothyroid, Vit D deficiency, Carpal Tunnel, RA & then told I couldn't possibly have RA.  It's been a nightmare.  Now, by gallbladder is shot, it has done some damage to my liver & I need the endo/ colonoscopy, Fibro Scan (liver) & H. Pylori testing & maybe something else.  Already had HIDA Scan & of course, they're willing to remove the gallbladder.   I'm not ready for that.
I tried to tell them for years, that I had something else going on, but it fell on deaf ears. 
Finally, the PCP scripted a Celiac Disease Panel Tissue Transglutimase IgG & IgA with Gliadin Antibody IgG & IgA.
This is the lab draw I just had, where the tech told me it had nothing to do with what I've been eating. 

I'm going to read through your article.  I think I've read it once, but I haven't been feeling well & not really retaining much info.

Thanks so much! 

[Scott Adams]

At this point, given all the health issues you are having (many of your symptoms could be related to undiagnosed celiac disease), you may just want to try a gluten-free diet for a few months to see if it helps. If your test results end up positive your doctor may want you to do an endoscopy to confirm the diagnosis, which means you'd need to eat gluten daily for at least two weeks before that test.