Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Endoscopy results - gastritis and more


JaneWhoLovesRain

Recommended Posts

JaneWhoLovesRain Enthusiast

I was diagnosed and have been eating gluten-free for 10 years - things were fine until a year ago when I developed diarrhea and then constipation and other unpleasant poop symptoms which persist right up until now.  I had a colonoscopy 8 months ago and that was fine except for one polyp which was removed.  Blood tests for celiac were negative.  Because of on-going upper abdominal tenderness I recently had an endoscopy and am awaiting biopsy results.  Initial impression shows gastritis, erosive gastropathy and duodenitis.  Endoscopy from 6 years ago was normal. 

I'm freaking out over this.  From talking with Dr. GoogIe I see H. pylori is the most common cause of this; I was tested 5 years ago and was negative at that time.  I don't drink alcohol, don't take drugs and rarely take NASID's so that can't be the cause of this.  Since this uncomfortableness has been going on for over a year I think it would be considered "chronic" rather than "acute."  Yet, chronic gastritis is very rare, occurring in only 2 out of 10,000 people.

I'm super cautious with what I eat and with Covid I haven't even eaten food prepared by anyone else in well over a year. 

Because my "health anxiety" mind always goes to worse case scenario, all I can think is cancer of the stomach.  I would be thrilled if the biopsy showed I actually do have active celiac and that was the reason for all ...itis's in my belly.   But it seems unlikely given what I eat.  I've tested several things with the ez gluten test kit and all have come out negative.

Anyone else found to have all these irregularities after being gluten free for such a long time?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Scott Adams Grand Master

Many people have ongoing symptoms after they go gluten-free, but it is somewhat unusual for there to be a 10 year interval between this, so be sure to keep working with your doctor to eliminate any possible issues that could cause this.

This article might be helpful, as it covers many issues that can cause celiacs to not recover fully:

 

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,735
    • Most Online (within 30 mins)
      7,748

    Jessi1604
    Newest Member
    Jessi1604
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      71.2k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • CelluloseSick
    • cristiana
      Hi @CarolTN I haven't been diagnosed with seborrheic dermatitis but as @Scott Adams says, like a lot of coeliacs I do suffer from itchy skin, and now adult onset eczema. The latter started during one of the lockdowns.  I find my skin is often itchy if the temperature changes from hot to cold or cold to hot, that seems to set it off. This time of year is bad,  I also get an itchy throat, so maybe pollen is having some effect. I am not sure where you live but here I'm mentioning the products I buy in the UK that help me - they may be available where you live? For my scalp, I have used with some success Neutrogena T-Gel, but I think Philp Kingsley's products for flakey, itchy scalps are amazing. I've used...
    • Theresa2407
      Yes it is.  So I try to buy block only, but still watch for it.
    • Scott Adams
      I believe it is also commonly used in pre-grated parmesan cheeses, like Kraft's.
    • VinnieVan
      Thank you so much! This is helpful, just to know. Over the years, I’ve seen the scope and understanding of the disease broaden. In some ways, I think it’s remarkable a doctor in Oregon way back then could diagnose a baby he’d never met so quickly. I wish I’d asked more questions!! 
×
×
  • Create New...