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Celiac Labs


trsalisbury

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trsalisbury Newbie

Just got my labs back and the GE thinks my small intestine is healing and I'm doing a good job with the gluten free diet.

I live with my family who eat/cook with gluten containing foods. Cross contamination may be occurring. Not sure...

Thanks!

-tim

TISSUE TRANSGLUTAMINASE IGA (U/ML)

My value: 8.6

DEAMIDATED GLIADIN PEPTIDE IGA, QUALITATIVE, EIA

My value: 2.7

 

Celiac.com people: what do you think? Are my #'s good?


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trents Grand Master

Tim, we cannot answer your question unless you give us not only your lab value results but the reference ranges used by the lab that did the analysis. Different labs use different reference ranges. 

Scott Adams Grand Master

Also, it would be important to know how long you’ve been on the gluten-free diet.

trsalisbury Newbie

For both tests the standard range is: <=14.9 U/ml

Scott Adams Grand Master

Ok, how long have you been gluten-free?

trsalisbury Newbie

About 3 years. Probably have been glutened a couple times especially earlier on when I was learning the ropes.

trents Grand Master

Looks like you are well below the standard range so I would say you are not consistently being "glutened" by cross contamination. Having said that, it is always smart to have your own toasters, utensils and cookware, snacks, etc. and keep them in a separate place. 


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MADMOM Community Regular

i look forward to being in the range by my 1 year range

Scott Adams Grand Master

To me it seems like your tTg should be lower after two years, so I agree with @trents that you should focus more on eliminating cross-contamination, and probably one of the biggest factors of all would be eating outside your home. Restaurants, even if they offer gluten-free menus, are often sources of cross-contamination.

PS - There is some evidence in at least one recent study, that in those who are casein/cow's milk sensitive, that this could also elevate tTg levels.

fllstuart77 Explorer

 

On 8/28/2021 at 3:17 PM, Scott Adams said:

 

PS - There is some evidence in at least one recent study, that in those who are casein/cow's milk sensitive, that this could also elevate tTg levels.

I mentioned that to my doctor...  he said only children are affected by that

Scott Adams Grand Master

Unfortunately your doctor may not be up on the latest research on this:

 

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    • Scott Adams
      Possibly, but there used to be a movement within the celiac disease community to just tell restaurants that you have a deadly wheat/gluten allergy to, hopefully anyway, ensure that your meal is actually gluten-free. I don't recommend this approach at all, and if I ran a restaurant where there was ANY risk of cross-contamination, I'm afraid that I would decline to server someone who made this claim. No restaurant owner wants anyone dying or going to the emergency room at their business.
    • Scott Adams
      You mention that you are waiting on your test results--did they do a celiac blood panel? If so, were you eat lots of gluten in the 6-8 weeks leading up to the test? This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
    • Scott Adams
      According to their website they are gluten-free: https://www.somersby.com/en/faq/  
    • Scott Adams
      If you suspect celiac disease a blood panel for it would be the best option. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
    • trents
      Your only resort would seem to be directly contacting the manufacturer and ask some pointed questions about CC . . . and hope you get some straight answers. You are probably already aware of this but the label "Gluten Free" does not necessarily equate to zero gluten. "Gluten Free" is a standard established by the FDA whereby a product can use that label as long as it does not contain an amount of gluten exceeding 20 ppm. There is also "Certified Gluten Free" which is a third party certifying standard signifying that the product does not exceed 10 ppm. There are limits to detection technology much below that.    
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