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Its been two months since my brother went Gluten free

EdmBkn
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EdmBkn Rookie
EdmBkn
Posted

Hope you all are doing well. I am here again for my younger brother. Its been two month since he diagnosed with Celiac and went gluten free. At the time of diagnosis, his weight was 22kg, and now his weight is 28kg. But his height is same as was 2 month earlier. Also he used to have pain in lower right side of abdomen. Now pain come and go periodically. I want to know is he improving? His pain will go with time? His doc said only gluten free diet is solution and he doesn't need any medication. Please suggest 

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Scott Adams Grand Master
Scott Adams
Posted

Thanks for the follow up, and the most critical thing with his recovery is that his diet stay 100% gluten-free. As you've probably learned, this is harder than it seems, and there are many sources of hidden gluten, including in medications, cross-contamination (especially in restaurants), etc.

That said, recovery can take 1-2 years depending on how much damage there was, and how well he sticks to the GFD. Given that he's already gained 6kg in only 2 months, it seems like he's on the right track. 

EdmBkn Rookie
EdmBkn
Posted
  • Author
23 hours ago, Scott Adams said:

Thanks for the follow up, and the most critical thing with his recovery is that his diet stay 100% gluten-free. As you've probably learned, this is harder than it seems, and there are many sources of hidden gluten, including in medications, cross-contamination (especially in restaurants), etc.

That said, recovery can take 1-2 years depending on how much damage there was, and how well he sticks to the GFD. Given that he's already gained 6kg in only 2 months, it seems like he's on the right track. 

Thank you so much! i am thinking to remove lactose from his diet now. Anyway to confirm that he needs lactose-free diet as well?

Again, thank you so much for your reply! 

RosaM Newbie
RosaM
Posted

I was diagnosed with Celiac 4 months ago, it's really hard to be 100% gluten-free right away but I think by now it's happening for me. At the beginning I was still having some pain, bloating and stomach issues even though I wasn't eating gluten si Iasked my doctor about dairy and he told me sometimes Celiac goes together with Lactose intolerance so I stop having dairy and felt better. I also got the Lactose pills that I take any time that I will have something that has dairy in it. This is usually when I go out to eat or really want a milkshake 🙂. Just keep the work and hope this helps. 

trents Grand Master
trents
Posted

Rosa, you could have lactose intolerance but for many celiacs the issue isn't lactose (the sugar component in milk) but the protein component called casein. 

Scott Adams Grand Master
Scott Adams
Posted
On 9/9/2021 at 1:08 PM, EdmBkn said:

Thank you so much! i am thinking to remove lactose from his diet now. Anyway to confirm that he needs lactose-free diet as well?

Again, thank you so much for your reply! 

It may not be necessary, but for many with celiac disease, especially this soon after his diagnosis, it may help relieve any ongoing symptoms that he has. I had to cut all dairy out at the time of my diagnosis, along with a few other things, for at least a year before my gut healed enough to be able to process them again. I was able to add them back to my diet. Not every celiac needs to do this, and it likely depends a lot on the amount of gut damage that he has, and how long it will take to heal.

RosaM Newbie
RosaM
Posted
5 hours ago, trents said:

Rosa, you could have lactose intolerance but for many celiacs the issue isn't lactose (the sugar component in milk) but the protein component called casein. 

Is there a way to know if I'm lactose intolerance? I started taking the lactose pills and don't have problems when I have some dairy. Maybe like you said i have problems with lactose and casein. Now that is going to be in my list to check when i go grocery shopping. Very good to know, Thanks!

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Scott Adams Grand Master
Scott Adams
Posted

There is a test for lactose intolerance, and you can read about it here:

https://www.mayoclinic.org/diseases-conditions/lactose-intolerance/diagnosis-treatment/drc-20374238 

RosaM Newbie
RosaM
Posted

I will ask my doctor for one of these. thanks for the info.

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      Exactly! Negative genetics can rule out celiac disease with close to 100% certainty. It takes tTg antibody testing and biopsy confirm the diagnosis in a genetically susceptible individual. 
    • trents
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      By trents · Posted

      What Dr. Gunn states is essentially true. It is a rule out measure. But be aware that to possess either of the two primary genes that have been identified with celiac disease (or both) doesn't necessarily mean that you have or will develop celiac disease. Almost 40% of the general population carries one or both but only about 1% of the general population will develop active celiac disease. It remains latent until triggered by some stress event which may or may not occur. So, there is a genetic component to celiac disease but there is also an epigenetic component. 
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      Have you had celiac genetic risk testing? A celiac genetic test is accurate with or without gluten in your diet. If you don't carry the celiac risk genes you can effectively rule out celiac disease for life. 
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      Based on those results alone, it’s not possible to say you have celiac disease. The test that is usually most specific for celiac, tTG-IgA, is negative in your results, and the endomysial antibody (EMA) is also negative, which generally argues against active celiac disease. However, your deamidated gliadin IgA is elevated, and your total IgA level is also high, which can sometimes affect how the other antibody tests behave. Another important factor is that you were reducing gluten before the test, which can lower antibody levels and make the results less reliable. Because of that, many doctors recommend a gluten challenge (eating gluten regularly for several weeks) before repeating blood tests or considering an endoscopy if symptoms and labs raise concern. It would be best to review these results with a gastroenterologist, who can interpret them in context and decide whether further testing is needed.
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