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Itchy burning scalp/chest sores, etc

DiBruen
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DiBruen Newbie
DiBruen
Posted

Hi I haven't been seen by a doctor what specialist does celiac and thyroid tests? What's the cost as I am uninsured waiting on that... 

I have sores that are itchy like bugs under my skin on my scalp they appear constantly some hard large some tiny and they all scab over some weep constant... My chest they are bumpy and if scratched red open and ckear liquid. It's miserable! What can I use to help the itch and heal them? I've tried hydrocortisone, benadryl cream, aloe wuth menthol, neosporin, lubruderm, specialty soaps with natural ingredients... I had a culture test it's negative for bacterias... I have all the symptoms of celiac and tgrydoid autoimmune... 40 years plus diagnosed IBS atleast thought it was. Ivr been miserable for years. Fatigue brain fog body pain bloat gas and weight gain of 40 lbs in ladt year 25 lbs year before. 

Any suggestions? 

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trents Grand Master
trents
Posted

One of the classic manifestations of celiac disease is an autoimmune skin condition called dermatitis herpetiformis or DH. You also describe many other symptoms which are classic for celiac disease such as GI distress, brain fog and other neurological problems.

You need to get tested for celiac disease. The first stage of testing is checking for serum antibodies associated with celiac disease. Here is a primer: https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/ The second stage of testing is an endoscopy with biopsy of the small bowel to look for damage to the villi. You need to be eating regular amounts of gluten daily (equivalent of two slices of wheat bread) for at least 6-8 weeks before the blood test and at least 2 weeks before the biopsy. So don't try to go gluten free before testing is finished.

Scott Adams Grand Master
Scott Adams
Posted

Welcome to the forum! I agree and now, before trying a gluten-free diet, would be a great time to get a celiac disease blood screening. 

Depending on your results they may also want to do a endoscopy to confirm celiac disease. If for some reason you test negative for it, then you may still have non-celiac gluten sensitivity, and could try out a gluten-free diet to see if it helps.

  • 4 months later...
murray7400 Newbie
murray7400
Posted
On 9/7/2021 at 11:22 AM, Scott Adams said:

Welcome to the forum! I agree and now, before trying a gluten-free diet, would be a great time to get a celiac disease blood screening. 

Depending on your results they may also want to do a endoscopy to confirm celiac disease. If for some reason you test negative for it, then you may still have non-celiac gluten sensitivity, and could try out a gluten-free diet to see if it helps.

Has anyone experienced itchy skin with no visible rash? 

Scott Adams Grand Master
Scott Adams
Posted

I used to have a dermatitis herpetiformis rash on my hand, and recall that the itchiness would always happen before the rash appeared.

DiBruen Newbie
DiBruen
Posted
  • Author
4 hours ago, murray7400 said:

Has anyone experienced itchy skin with no visible rash? 

Same as Scott, itching always starts before a rash or sores appear. The ones I have are pretty severe on my scalp......bad on chest. Itch and pain is constant. I'm waiting on approval for medi-cal or covered California.... It's a waiting game for everything here. 

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      @Rogol72, dermatitis herpetiformis occurs in a minority of celiac patients and if the OP hasn't developed it yet I doubt it will show up in the future. I think it unwise to use a scare tactic that probably won't materialize in the OP's experience. It has a good chance of backfiring and having the opposite effect.
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      Hi @trents, You're correct. The OP mentioned fatigue and vitamin deficiencies as the only symptoms at the time of diagnosis. Since the family are not taking him/her seriously and find them to be too fussy, I suggested showing them pictures of dermatitis herpetiformis as one of the consequences of not taking the gluten-free diet seriously ... would make life easier for him/her, and the family might begin to take his/her strict gluten-free diet more seriously. A picture says a thousand words and the shock factor of dermatitis herpetiformis blisters might have the desired effect. The OP did say ... "How do you deal with people close to you who just refuse to understand? Are there any resources anyone could recommend for families that are short and easy to read?".  @sillyyak52, It might also help mentioning to your family that Coeliac Disease is genetic and runs in families. Any one of them could develop it in the future if they have the HLA DQ 2.5 gene. Here's a Mayo Clinic study calling for screening of family members of Coeliacs ... https://newsnetwork.mayoclinic.org/discussion/mayo-clinic-minute-celiac-disease-screening-for-family-members/ https://newsnetwork.mayoclinic.org/discussion/mayo-clinic-study-calls-for-screening-of-family-members-of-celiac-disease-patients/ I got glutened a few months ago because I missed the may contains statement on a tub of red pesto. It was my own fault but it happens.
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