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Disaster Recovery with Celiac

By ButWhatCanIEat
September 9, 2021 in Coping with Celiac Disease

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Posted September 9, 2021

Came through Hurricane Ida after 10 days with no power, which is no joke! We are all okay though, after going to random places with ac including a friend's house after she got back power.

But - relevant - It's a good thing I had stocked up on a lot of gluten free meals (I'm a bit of a prepper) because every place we went that was giving people food after the storm - hot food, MRE's, anything, it was all: pasta, sandwiches, cookies. I had to wait until we returned to my 90 degree house to eat anything at all.

Exactly one time someone made a batch of super healthy low salt, gluten free, vegetarian food some place (rice and beans).

Just things to consider if you live in any kind of disaster zone, get some gluten-free ready to eat meals because otherwise you're going to starve!

GodsGal and RMJ
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GodsGal

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Posted September 9, 2021

Hi ButWhatCanIEat,

I am glad to hear that you are ok. Hurricanes are no joke! I was just thinking about it the other day. It would be hard to find something to eat in your situation! Thanks for the advice.

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Scott Adams

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Posted September 14, 2021

This is excellent advice! I too have been under mandatory evacuation several times in the last 5 years due to the wild fires here in Santa Rosa, CA. Our family has been stuck in our house for a week or more each time, unable to leave or go shopping, get deliveries, etc., so we have some idea of how important this is.

We also keep a good amount of canned and dry foods on hand that will last us for weeks, just in case. We also have a generator, battery backups, etc.

frieze
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2. 4 hours ago - Elliebee replied to Elliebee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
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3. 5 hours ago - Scott Adams replied to Elliebee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
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Posts
- Does Hashimoto’s Hypothyroidism elevate Ttg levels ? I have had 3 blood test results where ttg levels are around 39-43 (range 0-19). The first test was in 2021 before I was diagnosed with autoimmune thyroid disease. I had an endos
  
  By trents · Posted 4 hours ago
  
  I understand from one of our forum moderators who is UK-based that the benefits of having an official celiac diagnosis varies depending on your postal code. So then, it must be a benefit tied to local government rather than national government.
- Does Hashimoto’s Hypothyroidism elevate Ttg levels ? I have had 3 blood test results where ttg levels are around 39-43 (range 0-19). The first test was in 2021 before I was diagnosed with autoimmune thyroid disease. I had an endos
  
  By Elliebee · Posted 4 hours ago
  
  I think if I gave up gluten and got a negative blood result and stick with it rather than do the gluten challenge (even though I’ve got no symptoms.. yet). think if I gave up gluten and got a negative blood result and stick with it rather than do the gluten challenge (even though I’ve got no symptoms.. yet).
- Does Hashimoto’s Hypothyroidism elevate Ttg levels ? I have had 3 blood test results where ttg levels are around 39-43 (range 0-19). The first test was in 2021 before I was diagnosed with autoimmune thyroid disease. I had an endos
  
  By Scott Adams · Posted 5 hours ago
  
  For anyone interested in research summaries on this topic we have this category: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/thyroid-pancreatic-disorders-and-celiac-disease/
- Does Hashimoto’s Hypothyroidism elevate Ttg levels ? I have had 3 blood test results where ttg levels are around 39-43 (range 0-19). The first test was in 2021 before I was diagnosed with autoimmune thyroid disease. I had an endos
  
  By trents · Posted 5 hours ago
  
  Obviously, you have looked at all this from various angles and I respect that. But consider this, you could trial the gluten-free diet for six months to see if it results in lower ttg-iga scores. If so, it is another piece of evidence pointing to celiac disease. You could then go off the gluten fast and return to a gluten loaded diet for weeks or months and repeat the colonoscopy/endoscopy. My point is that trialing a gluten-free diet does not eliminate the possibility of getting valid celiac retesting at a late date if you are willing to engage with the gluten challenge.
- Does Hashimoto’s Hypothyroidism elevate Ttg levels ? I have had 3 blood test results where ttg levels are around 39-43 (range 0-19). The first test was in 2021 before I was diagnosed with autoimmune thyroid disease. I had an endos
  
  By Elliebee · Posted 5 hours ago
  
  I’m wondering the same. I am tempted to cut out gluten as this is advised for Hashimotodisease anyway . However, if I do I would not get official diagnosis of celiac disease. In Uk where I’m based once officially diagnosed you are eligible for dexa bone scan, more regular blood tests etc. However these seem to vary in availability so I’m wondering ifactually worth be officially diagnosed. Assume I have celiac disease or havepotential for it to develop. Have my adultchildren tested etc.

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