Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Poll: How Many Had Elevated Liver Enzymes?

trents

By trents
in Related Issues & Disorders

Recommended Posts

trents Grand Master
trents
Posted

How many of you had elevated liver enzymes as one of your presenting medical issues before Celiac diagnosis?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Jenn2005 Contributor
Jenn2005
Posted

My husband has elevated liver enzymes. His weren't elevated before dx or even right after but they were at this last visit. He was dx last August. His doctor tested him for Hepatitis and he had Ultra Sounds and CT Scans to check for other things going on and since everything else was negative he said its from the Celiac and he'll monitor the levels and they should go down once he's healed more.

Jennifer

Guest Robbin
Guest Robbin
Posted

Count me in on that crazy symptom, too. Have had this off and on for ten years and was tested for hepatitis, and was told it was fatty liver disease common in diabetes, but I don't HAVE diabetes, so the drs. are stumped (of course) :)

angielackner Contributor
angielackner
Posted

my liver enzymes are slightly high...i had them tested when i was being tested for PCOS (which I have)...they had to test me before i could do any kind of fertility treatment...and we have not been able to figure out why they were slightly elevated...celiac had never occured to me...i dont have an "official" diagnosis of celiac...but i do most likely have it...or at least for sure a gluten intolerance...i'll have to bring this up with my GI doc when i see him next.

angie

Bonnie Explorer
Bonnie
Posted

I kept waking up in the morning with a yellow face and eyes. Also incredibly nauseous. Had bloods tests which revealed I have very high billirubin (liver enzymes). Doctor says that I have Gilbert's Syndrome. Have I? Who knows - these quacks talk a lot of rubbish.

Yvonne

zakismom Newbie
zakismom
Posted

Before diagnosis my liver enzymes were all over the place, some were too high others were too low. My GP sent me to a liver specialist gastroenterologist- who of course checked for everything else first.

ravenwoodglass Mentor
ravenwoodglass
Posted
How many of you had elevated liver enzymes as one of your presenting medical issues before Celiac diagnosis?

Mine were slightly elevated at times. My twin however had his liver deteriorating since birth. We have no way to know if this was celiac related as he passed away at 15, at that time his liver had been totally destroyed. Please be aware that you should not drink or take tylenol if your enzymes are elevated. Especially if you are young and still growing liver damage can be greatly accelerated.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


pturse Apprentice
pturse
Posted

My liver enzymes were elevated too. It was not the case my entire life though, only during a certain period. Went on the diet when first diagnosed (after the whole Hepatitis testing blah blah). Liver was okay after that. Went OFF the diet for a period of 6-8 months and felt absolutely fine but I ran a marathon and I guess that was too much for my body to take and my liver started acting up again and I lost some weight and the color in my face. Started back on the diet in Feb. 06 and have gained a bunch of weight back (ugh), have the color back in my face and I think my enzymes are fine. We shall see, I am donating platelets this weekend and I can ususally tell how my levels are doing by my iron tests during the donation period. I know that isn't a "scientific" way of judging but is a good indication for me.

jenvan Collaborator
jenvan
Posted

pturse-

Why did you end up going off the diet?

plantime Contributor
plantime
Posted

My liver enzymes were in the very low end of the normal range last time they were tested. Doc said it was perfectly normal, but I started taking herbs to treat sluggish liver, and I feel much better!

  • 2 weeks later...
Guest snowy
Guest snowy
Posted
How many of you had elevated liver enzymes as one of your presenting medical issues before Celiac diagnosis?

I was diagnosed with Gilbert's syndrome about 10 years ago. My bilirubin was 3x higher than normal.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      128,383
    • Most Online (within 30 mins)
      7,748
    haleyspurlock1
    Newest Member
    haleyspurlock1
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.9k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Negative biopsy and seeking doctor recs in Los Angeles

      By trents · Posted

      Welcome to the forum, @englishbunny! Did your celiac panel include a test for "Total IGA"? That is a test for IGA deficiency. If you are IGA deficient, other IGA test resultls will likely be falsely low. Were you by any chance already practicing a reduced gluten free diet when the blood draw was done?
    • englishbunny
      Negative biopsy and seeking doctor recs in Los Angeles

      By englishbunny · Posted

      I'm upset & confused and really need help finding a new gastro who specializes in celiac in California.  Also will welcome any insights on my results. I tested with an isolated positive for deamidated IGA a few months ago (it was 124.3, all other values on celiac panel <1.0), I also have low ferritin and Hashimotos. Mild gastro symptoms which don't seem to get significantly worse with gluten but I can't really tell... my main issues being extreme fatigue and joint pain. The celiac panel was done by my endocrinologist to try and get to the bottom of my fatigue and I was shocked to have a positive result. Just got negative biposy result from endoscopy. Doctor only took two biopsies from small intestine (from an area that appeared red), and both are normal. Problem is his Physician's Assistant can't give me an answer whether I have celiac or not, or what possible reason I might have for having positive antibodies if I don't have it. She wants me to retest bloods in a month and says in the meantime to either "eat gluten or not, it's up to you, but your bloodwork won't be accurate if you don't" I asked if it could be I have early stage celiac so the damage is patchy and missed by only having two samples taken, and she said doctor would've seen damaged areas when performing endoscopy (?) and that it's a good sign if my whole intestine isn't damaged all over, so even if there is spotty damage I am fine.  This doesn't exactly seem satisfactory, and seems to be contrary to so much of the reading and research I have done. I haven't seen the doctor except at my endoscopy, and he was pretty arrogant and didn't take much time to talk. I can't see him or even talk to him for another month. I'm really confused about what I should do. I don't want to just "wait and see" if I have celiac and do real damage in the meantime. Because I know celiac is more that just 'not eating bread' and if I am going to make such a huge lifestyle adjustment I need an actual diagnosis. So in summary I want to find another doctor in CA, preferably Los Angeles but I don't care at this stage if they can do telehealth! I just need some real answers from someone who doesn't talk in riddles. So recommendations would be highly welcomed. I have Blue Shield CA insurance, loads of gastros in LA don’t take insurance at all 😣
    • trents
      Oats gluten free?

      By trents · Posted

      Okay, Lori, we can agree on the term "gluten-like". My concern here is that you and other celiacs who do experience celiac reactions to other grains besides wheat, barley and rye are trying to make this normative for the whole celiac community when it isn't. And using the term "gluten" to refer to these other grain proteins is going to be confusing to new celiacs trying to figure out what grains they actually do need to avoid and which they don't. Your experience is not normative so please don't proselytize as if it were.
    • Levi
      My Adult daughter is blaming me for her "possible" Celiac disease.

      By Levi · Posted

      When I was first Dg’d I researched like mad. One thing I remember from then, which may have changed with advancement in medical science, is that Coeliac is a first generation disease which means either you or your husband need be Coeliac for your daughter to have inherited it. Far as I know, and I’m not a scientist just a victim, the amount of gluten (wheat, rye, or barley) one consumes does not cause a person to contract Coeliac Disease. So if neither of you as her biological parents have Coeliac then your daughter cannot pass any blame should she contract this horrific disease.     It’s humbling, and sometimes I believe GOD allows such as these autoimmune diseases for those who need it most. 
    • Lori Lavell
      Oats gluten free?

      By Lori Lavell · Posted

      The body reacts to all grain proteins in all grains from my observation. Call it Gluten, Gliadin, which is what they test for commonly, however, I am Celiac and react with dermatitis herpetiformis to corn and the glutenous protein in it is called Zein. They only test for Gliadin. Testing needs to be updated in my opinion. It only take a small parts per million to continuously create systemic inflammation. This is not productive to healing and all grains contain some for gluten like substance. It's called Molecular Mimicry.
×
×
  • Create New...