Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help for extreme fatigue and stomach pain.


Lynn Glueck

Recommended Posts

Wheatwacked Veteran
On 9/23/2021 at 1:50 PM, Lynn Glueck said:

Her GI doctor put her on dicyclomine to see if that helps her stomach pain. 

Unless it helped, I hope her doctor discontinued the dicyclomine. I see why knitty kitty felt like a zombie, it shuts down acetlycholine the chemical responsible for nerve cells talking to each other. In scary terms it has the same effect, albeit much milder, as nerve gas. Treatment was a success but the patient failed. Uncooked vegetables tend to slow down peristalsis. Whatever she tolerates.  Consider Dr Fuhrman's Six week plan.

Watermelon is good. A pound has 15 ounces of water and other vitamins and nutrients with the benefit of hydration. It soothes a hot belly.

Low D is a common finding in many different autoimmune, cancers, IBD, celiac, etc., most doctors won't treat unless less than 20.  Increasing her D may help her more than anything else. For the other deficiencies buy a bottle of Geritol Multivitamins and see if it helps. It's only $15, less than an office visit, but an easy way to get 100% RDA in most essentials. Later she can work on identifying specifics. Keep in mind that 100% RDA is: "Recommended Dietary Allowance (RDA): average daily level of intake sufficient to meet the nutrient requirements of nearly all (97%-98%) healthy people." For many of the vitamins and minerals, potassium, sodium, calcium for example plasma levels are tightly controlled because they perform services essential to life (BP and pulse) so they will only show abnormal plasma levels in organ failure or due to meds.

Quote

In summary, long-term supplementation with vitamin D3 in doses ranging from 5000 to 50,000 IUs/day appears to be safe.  https://pubmed.ncbi.nlm.nih.gov/30611908/ 

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



knitty kitty Grand Master

Here are some articles about thiamine you might find applicable....

"11 Signs and Symptoms of Thiamine (Vitamin B1) Deficiency"

https://www.healthline.com/nutrition/thiamine-deficiency-symptoms

And..

"Rare Presentation of Thiamine Deficiency as Gastrointestinal Syndrome"

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4175961/

And...

"Beriberi in a Malnourished Woman After an Extended Period of Nausea and Vomiting"

https://www.hmpgloballearningnetwork.com/site/altc/articles/beriberi-malnourished-woman-after-extended-period-nausea-and-vomiting

And...

https://ods.od.nih.gov/factsheets/Thiamin-HealthProfessional/

Hope this helps!  Keep us posted on your daughter's progress!  

 

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,733
    • Most Online (within 30 mins)
      7,748

    Debbeighe
    Newest Member
    Debbeighe
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.4k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      You are most welcome, Marie.  Thank you for getting in touch, because this sort of post will be seen by other parents who find themselves in this position, I am sure there are many.   And as I say, in the long run, I am sure your daughter will be sorry for what she said.  I remember having a go at my dear Mum when I was in my twenties about something and then apologising, saying, "I don't know how you put up with me."  I can't remember her exact words but it was something along the lines of, "I used to say things like to my Mum.  Now it's my turn [to be on the receiving end]!"    😂  Although it isn't very nice to be on the receiving end, it is good your daughter feels safe to say these things to you. We look forward to hearing from you again in due course.  
    • Wheatwacked
      Are You Confused About Your Celiac Disease Lab Results? Some people test negative but have a positive biopsy, others test positive but negative biopsy.  This is why it can take years and misdiagnosis of other diseases that Celiac Disease can mimic. The above link is a good read with real life examples. Something I find interesting is that in 1980 or so a new diagnosis was created, Non Celiac Gluten Sensitivity, only 10 years after Norman Borlaug won the Nobel Peace Prize for creating our modern wheat and the Green Revolution.    
    • trents
      @Steve-n-Portland, there is a difference in the requirements to use the label "Gluten Free" and the label "Certified Gluten Free". "Gluten Free" is governed by FDA regulations and has a ceiling of 20 ppm. "Certified Gluten Free" is a labeling convention used by the GFCO, an independent international third party certifying group that uses 10 ppm as its standard.
    • trents
      We have had numerous reports from forum participants experiencing gluten reactions from Trader Joe "gluten-free" products. It seems it's not a good place for the celiac/gluten sensitive community to shop.
    • Steve-n-Portland
      Also, a class action lawsuit was launched in 2024 against Trader Joe's re: their " gluten free" everything bagels. They tested at 269ppm. (Personally, I am not sure they will win. The FDA says that the *ingredients* have to be less than 20ppm for a company to label something "gluten-free."  In order to be certified as gluten-free by the GFCO, the *final product* needs to be less than 20ppm. That said, the lawsuit is arguing that most people read that label and assume the final product is safe for people with celiac. Thus, many people were made sick. And being sick can have costly consequences in regard to work or school, depending when one becomes ill.)
×
×
  • Create New...