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Do I likely have celiac?


temp8665

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temp8665 Apprentice

1. It runs in my family.  My dad's cousin has it.  My nephew has it.

2. About five years ago, I would buy three medium pizzas via delivery and eat them over a few days.  Suddenly, doing so, made me not be able to pee for an entire day.  I started just buying one pizza and it was OK.  But then a few months later even that one pizza would make me not be able to pee for an entire day.  I tried several companies and they all had the same result.  I tried Pizza Hut and it was OK.  I would get one pizza hut pizza.  But then, even doing that, would make me not be able to pee.  I stopped getting pizza delivery.  I still get store bought pizza but I only eat 1/2 of it.  I get diarrhea when I eat store bought pizza too many days in a row.

3. About the same time - five years ago - I was diagnosed with eczema on my inner legs and in my ear.

4. I had a blood test this year and it showed I was very low on Vitamin D and Vitamin B12.

5. I do not eat much gluten as it is.  The only gluten I eat is that 1/2 store bought pizza.  I bought bread this week for the first time in forever and I was eating it a lot.  I've had diarrhea for three days now.

6. I have had issues with numb pinky fingers usually associated with using a computer too much.

 

So, do these things warrant a blood test do you think?!  Is there anything I listed that doesn't really fit with celiac?

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trents Grand Master

Abolutely! You need to get tested for celiac disease. Ask the physician to run a full celiac panel and not just the tTG-IGA. The tTG-IGA is the most specific antibody test but not the most sensitive. It can miss those who truly have celiac disease. https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/

For the testing to be valid you need to be eating a substantial amount of gluten for 6-8 weeks leading up to the test. Substantial amount guidelines are 2 slices of wheat bread daily or the equivalent.

Edited by trents
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Scott Adams Grand Master

Good advice @trents, you should definitely get tested, and a couple of slices of pizza a day would also be enough gluten before getting the test.

Let us know how it turns out, and keep in mind that if the results are negative, you could still have non-celiac gluten sensitivity, for which there currently isn't a test.

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