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Antibody levels

Kairos87
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Kairos87 Rookie
Kairos87
Posted

I was diagnosed with celiac 11 months ago, since I’ve obviously been on a gluten free diet and doing great. When I was diagnosed my antibody levels were around 55 and everything I read said that you could expect the levels of antibodies to go down by about half every six months. I was just re tested and my levels are now at 3. This seems super quick to be down that low, is it possible my first test was a false positive?

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yuluyouyue Contributor
yuluyouyue
Posted
53 minutes ago, Kairos87 said:

I was diagnosed with celiac 11 months ago, since I’ve obviously been on a gluten free diet and doing great. When I was diagnosed my antibody levels were around 55 and everything I read said that you could expect the levels of antibodies to go down by about half every six months. I was just re tested and my levels are now at 3. This seems super quick to be down that low, is it possible my first test was a false positive?

Hello, your levels were not that high to begin with so it is perfectly possible for them to drop to 3 in 11 months. There are people whose levels dropped from almost a 1000 into the negative in that period of time. Halving in 6 months is just a ball park and for many it is quicker than that. I think you should celebrate that they normalised. Are there other reasons that you would suspect your initial test to have been false postive? Were you confirmed by a biopsy? 

Kairos87 Rookie
Kairos87
Posted
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37 minutes ago, yuluyouyue said:

Hello, your levels were not that high to begin with so it is perfectly possible for them to drop to 3 in 11 months. There are people whose levels dropped from almost a 1000 into the negative in that period of time. Halving in 6 months is just a ball park and for many it is quicker than that. I think you should celebrate that they normalised. Are there other reasons that you would suspect your initial test to have been false postive? Were you confirmed by a biopsy? 

No I never had the biopsy my doctor said the elevated antibodies and the fact that my symptoms disappeared after going gluten free was enough to diagnose, which is good because I was unwilling to go back to feeling like garbage to have it done

RMJ Mentor
RMJ
Posted

You’ve probably just done an excellent job of avoiding gluten! Congratulations.

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