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Dentists: what specialty is best for celiac patients?

Kellie44
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Kellie44 Rookie
Kellie44
Posted

What sort of training or specializations should a celiac patient look for in a dentist? I think most don't understand the relationship between celiac and dental health.  

My daughter, now age 21, was diagnosed with celiac at age 10. Since that time, she has followed a strict gluten-free diet. Her health has improved tremendously as a result. However, she recently cracked a molar while eating a piece of pizza. The dentist says it must be extracted. My daughter is disturbed by how weak her teeth are despite her diligent care. I would imagine that her celiac disease is a factor. I'd like to help her find a dentist that better fits her needs, but I'm not sure where to start in my search. 

 

Thoughts?

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knitty kitty Grand Master
knitty kitty
Posted

@Kellie44,

I sympathize with your daughter.  I have cracked a molar while eating a hamburger.  It's a horrible experience.

I can't really answer your question, but....

I recently discovered this book....

https://www.harpercollins.com/products/vitamin-k2-and-the-calcium-paradox-kate-rheaume-bleue?variant=32217980993570

It's about how we are deficient in Vitamin K2 (especially those with absorption problems like Celiac patients) and how this deficiency sets us up for osteoporosis.  The dentist who studied K2 made a connection between healthy teeth and a healthy diet.  He treated cavities with a diet that included K2. 

"Something more to say about calcium homeostasis: the role of vitamin K2 in vascular calcification and osteoporosis"

https://pubmed.ncbi.nlm.nih.gov/24089220/

The Dual Role of Vitamin K2 in "Bone-Vascular Crosstalk": Opposite Effects on Bone Loss and Vascular Calcification

https://pubmed.ncbi.nlm.nih.gov/33917175/

Hope this helps!

Scott Adams Grand Master
Scott Adams
Posted

Over the years I've heard stories of good dentists who've helped members here get a celiac disease diagnosis (based on the dental defects they noticed in a regular exam), but finding them may not be easy. 

We've done some articles on this topic as well:

https://www.celiac.com/search/?q=enamel&quick=1&type=cms_records2&search_in=titles 

Kellie44 Rookie
Kellie44
Posted
  • Author
18 hours ago, Scott Adams said:

Over the years I've heard stories of good dentists who've helped members here get a celiac disease diagnosis (based on the dental defects they noticed in a regular exam), but finding them may not be easy. 

We've done some articles on this topic as well:

https://www.celiac.com/search/?q=enamel&quick=1&type=cms_records2&search_in=titles 

This is helpful! Thank you very much, Scott! 

 

 

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    • knitty kitty
      dermatitis herpetiformis outbreaks while on strict gluten-free diet

      By knitty kitty · Posted

      Hi, @Richardo,  Welcome to the forum!   Good suggestions, although we are aware here that oats, corn and rice can cause problems for some because their proteins have segments that resemble segments of the gluten protein.   What I find most helpful for my dermatitis herpetiformis flares is to increase Niacin Vitamin B 3 and Thiamine Vitamin B 1.  Niacin and Thiamine are needed to turn those carbohydrates into energy to fuel metabolic reactions that keep us healthy.  An influx of carbohydrates demands more of these vitamins.  Since malabsorption of Celiac can cause us to be low in the eight essential water soluble B vitamins, consuming a high carbohydrate diet can deplete thiamine and niacin stores rapidly. There's evidence that Niacin insufficiency plays a big part in dermatitis herpetiformis.   The flushing form of Niacin is known to dilate small blood vessels in the skin which allows the antibodies to be easily cleared from the blisters and induce healing.   Niacin intake should be kept under 500 mg a day otherwise it will lower bad cholesterol and raise good cholesterol, but this should only be done under doctor supervision.   Thiamine is nontoxic and safe Eve in high doses.  Every cell in the body needs thiamine to fuel the mitochondrial functions.  A high carbohydrate diet requires 500 - 1000 mg more for every 1000 calories from carbs.  
    • trents
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    • Richardo
      dermatitis herpetiformis outbreaks while on strict gluten-free diet

      By Richardo · Posted

      Hi CDW. Some here may disagree with me on this site but, nothing ventured nothing gained. As long as my suggestion does no harm and is a possible help for your struggles I'll throw it out there. I have broached this in another forum.but I know this worked amazingly well for me as I too had return of dermatitis herpetiformis every 3 to 4 months for 4 years. with a month break then it would return. 1.I am 100% gluten free (I thought) 2.There is no problems with cross contamination with my diet. 3.My skin rash was confirmed as dermatitis herpetiformis by skin biopsy.  What I did last spring was go 100% grain free. No oats, corn or even rice. My rash was gone in 2 weeks and never came back intil I tested it 6 months later and ate rice 1 time and corn flour 1 time over a 3 day period. My rash started to come back. I quit again and it has been gone since. A huge relief for me. No more pain itching or unsightly rash ANYWHERE. A study was done in the UK showing that practically all grains contain some type of gluten but the rice corn and oats possibilities IS ALMOST NEVER mentioned in celiac related sites. Perhaps going grain free will help you, perhaps not, but I swear it did wonders for me and hopefully will help ypu too. Worth a try!
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