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My villi are still flat after a year and a half of going gluten free

Susie0402

By Susie0402
in Coping with Celiac Disease

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Susie0402 Apprentice
Susie0402
Posted

I had endoscopy Wednesday and the GI guy told me my villi are flat and unhealthy.  I have totally eliminated gluten from my diet and followed his directives at all times.  I was diagnosed with celiac disease in March, 2020.  That was when the pandemic began.  My husband died later on in the year.  I had the endoscopy due to chronic diarrhea issues.  My brother is telling me that I am somehow digesting gluten without knowing it.  My biopies come back in a few days.  Help.  Susie

 

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yuluyouyue Contributor
yuluyouyue
Posted
On 10/9/2021 at 8:25 PM, Susie0402 said:

I had endoscopy Wednesday and the GI guy told me my villi are flat and unhealthy.  I have totally eliminated gluten from my diet and followed his directives at all times.  I was diagnosed with celiac disease in March, 2020.  That was when the pandemic began.  My husband died later on in the year.  I had the endoscopy due to chronic diarrhea issues.  My brother is telling me that I am somehow digesting gluten without knowing it.  My biopies come back in a few days.  Help.  Susie

 

I have seen on this forum that for some people oats as well as cassein in dairy can trigger the same AI reaction as gluten. Perhaps you can try to eliminate these (if you haven't already) and also triple check if you are not still consuming gluten. Do you have a gluten free household?  Are you eating out?

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Scott Adams Grand Master
Scott Adams
Posted

I agree with @yuluyouyue, also, be sure to go through this article in detail to make sure you're not getting gluten in your diet or via other ways. The most common way is eating out at restaurants, or outside your home:

 

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