Jump to content

This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

Welcome to Celiac.com!

You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.
Celiac.com Sponsor (A1):

Celiac.com Sponsor (A1-M):
Get Celiac.com Updates:

Support Our Content

eNewsletter

Donate

Self-diagnosis and recovery time

penguin11

By penguin11
October 31, 2021 in Celiac Disease Pre-Diagnosis, Testing & Symptoms

Share

Recommended Posts

penguin11

Explorer

penguin11

- Share

Posted October 31, 2021

Hello,

Did anyone self-diagnose celiac, and only after a year wanted to get diagnosed by their doctor? If so, did it go as expected?

Another question: Is it normal to go around 6 months before stomach pain and heartburn subside on gfd?

Link to comment

Share on other sites

Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):

Grand Master

Scott Adams

- Share

Posted November 1, 2021

We published an article years ago that said the average time to recover from celiac disease is two years. That said, if your diet has been 100% gluten-free, usually meaning that you don't eat outside your home, I believe it would still be unusual to have the ongoing symptoms you describe. You could have additional food intolerances, and this article might be helpful:

If you do go the route of additional testing, this article will help:

Link to comment

Share on other sites

penguin11

Explorer

penguin11

Author

- Share

Posted November 1, 2021

Thanks Scott!

It has been around a year since I went gluten-free, and most of the stomach pain and heartburn issues resolved more or less in 6 months. Nowadays I am almost pain free, but I have read many recovery stories where the pain subsides in days/weeks, so I was wondering how normal it was to go many months before the pain went away.

Link to comment

Share on other sites

Grand Master

Scott Adams

- Share

Posted November 2, 2021

I think it's pretty normal for healing to take a while, and how long it takes can depend on the condition of your gut/villi, and how well you stay gluten-free.

Link to comment

Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

Share

Go to topic listing

Get Celiac.com Updates:

Support Celiac.com:

Join eNewsletter

Donate
Celiac.com Sponsor (A17):

Celiac.com Sponsor (A17):

Celiac.com Sponsors (A17-M):
Recent Activity
1. 4 hours ago - trents replied to Elliebee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
  12
  
  Does Hashimoto’s Hypothyroidism elevate Ttg levels ? I have had 3 blood test results where ttg levels are around 39-43 (range 0-19). The first test was in 2021 before I was diagnosed with autoimmune thyroid disease. I had an endos
  
  I understand from one of our forum moderators who is UK-based that the benefits of having an official celiac diagnosis varies depending on your postal code. So then, it must be a benefit tied to local government rather than national government.
2. 5 hours ago - Elliebee replied to Elliebee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
  12
  
  Does Hashimoto’s Hypothyroidism elevate Ttg levels ? I have had 3 blood test results where ttg levels are around 39-43 (range 0-19). The first test was in 2021 before I was diagnosed with autoimmune thyroid disease. I had an endos
  
  I think if I gave up gluten and got a negative blood result and stick with it rather than do the gluten challenge (even though I’ve got no symptoms.. yet). think if I gave up gluten and got a negative blood result and stick with it rather than do the gluten challenge (even though I’ve got no symptoms.. yet).
3. 5 hours ago - Scott Adams replied to Elliebee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
  12
  
  Does Hashimoto’s Hypothyroidism elevate Ttg levels ? I have had 3 blood test results where ttg levels are around 39-43 (range 0-19). The first test was in 2021 before I was diagnosed with autoimmune thyroid disease. I had an endos
  
  For anyone interested in research summaries on this topic we have this category: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/thyroid-pancreatic-disorders-and-celiac-disease/
4. 6 hours ago - trents replied to Elliebee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
  12
  
  Does Hashimoto’s Hypothyroidism elevate Ttg levels ? I have had 3 blood test results where ttg levels are around 39-43 (range 0-19). The first test was in 2021 before I was diagnosed with autoimmune thyroid disease. I had an endos
  
  Obviously, you have looked at all this from various angles and I respect that. But consider this, you could trial the gluten-free diet for six months to see if it results in lower ttg-iga scores. If so, it is another piece of evidence pointing to celiac disease. You could then go off the gluten fast and return to a gluten loaded diet for weeks or months and...
5. 6 hours ago - Elliebee replied to Elliebee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
  12
  Does Hashimoto’s Hypothyroidism elevate Ttg levels ? I have had 3 blood test results where ttg levels are around 39-43 (range 0-19). The first test was in 2021 before I was diagnosed with autoimmune thyroid disease. I had an endos
  
  I’m wondering the same. I am tempted to cut out gluten as this is advised for Hashimotodisease anyway . However, if I do I would not get official diagnosis of celiac disease. In Uk where I’m based once officially diagnosed you are eligible for dexa bone scan, more regular blood tests etc. However these seem to vary in availability so I’m wondering ifactually worth...
  
  1

Celiac.com Sponsor (A19):
Member Statistics
- Total Members
  
  125,773
- Most Online (within 30 mins)
  
  7,748
  September 18, 2023
Newest Member
Eriberrie
Joined 2 hours ago
Celiac.com Sponsor (A20):
Forum Statistics
- Total Topics
  
  120.8k
- Total Posts
  
  68.9k
Celiac.com Sponsor (A22):
Who's Online (See full list)
- Dhruv
- Jennifree
Celiac.com Sponsor (A21):
Upcoming Events
- Nov 13
  
  0
  
  National Celiac Association: Virtual Support Group: Living Gluten Free Zoom November Meeting
  November 13, 2024 12:00 AM
- Nov 20
  
  0
  
  NCA ROCK Virtual Meet-Up for High Schoolers (November 2024)
  November 20, 2024 12:30 AM
- Dec 11
  
  0
  
  National Celiac Association: Virtual Support Group: Living Gluten Free Zoom December Meeting
  December 11, 2024 12:00 AM
- Dec 18
  
  0
  
  NCA ROCK Virtual Meet-Up for High Schoolers (December 2024)
  December 18, 2024 12:30 AM
- Jan 22
  
  0
  
  NCA ROCK Virtual Meet-Up for High Schoolers (January 2025)
  January 22, 2025 12:30 AM
Posts
- Does Hashimoto’s Hypothyroidism elevate Ttg levels ? I have had 3 blood test results where ttg levels are around 39-43 (range 0-19). The first test was in 2021 before I was diagnosed with autoimmune thyroid disease. I had an endos
  
  By trents · Posted 4 hours ago
  
  I understand from one of our forum moderators who is UK-based that the benefits of having an official celiac diagnosis varies depending on your postal code. So then, it must be a benefit tied to local government rather than national government.
- Does Hashimoto’s Hypothyroidism elevate Ttg levels ? I have had 3 blood test results where ttg levels are around 39-43 (range 0-19). The first test was in 2021 before I was diagnosed with autoimmune thyroid disease. I had an endos
  
  By Elliebee · Posted 5 hours ago
  
  I think if I gave up gluten and got a negative blood result and stick with it rather than do the gluten challenge (even though I’ve got no symptoms.. yet). think if I gave up gluten and got a negative blood result and stick with it rather than do the gluten challenge (even though I’ve got no symptoms.. yet).
- Does Hashimoto’s Hypothyroidism elevate Ttg levels ? I have had 3 blood test results where ttg levels are around 39-43 (range 0-19). The first test was in 2021 before I was diagnosed with autoimmune thyroid disease. I had an endos
  
  By Scott Adams · Posted 5 hours ago
  
  For anyone interested in research summaries on this topic we have this category: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/thyroid-pancreatic-disorders-and-celiac-disease/
- Does Hashimoto’s Hypothyroidism elevate Ttg levels ? I have had 3 blood test results where ttg levels are around 39-43 (range 0-19). The first test was in 2021 before I was diagnosed with autoimmune thyroid disease. I had an endos
  
  By trents · Posted 6 hours ago
  
  Obviously, you have looked at all this from various angles and I respect that. But consider this, you could trial the gluten-free diet for six months to see if it results in lower ttg-iga scores. If so, it is another piece of evidence pointing to celiac disease. You could then go off the gluten fast and return to a gluten loaded diet for weeks or months and repeat the colonoscopy/endoscopy. My point is that trialing a gluten-free diet does not eliminate the possibility of getting valid celiac retesting at a late date if you are willing to engage with the gluten challenge.
- Does Hashimoto’s Hypothyroidism elevate Ttg levels ? I have had 3 blood test results where ttg levels are around 39-43 (range 0-19). The first test was in 2021 before I was diagnosed with autoimmune thyroid disease. I had an endos
  
  By Elliebee · Posted 6 hours ago
  
  I’m wondering the same. I am tempted to cut out gluten as this is advised for Hashimotodisease anyway . However, if I do I would not get official diagnosis of celiac disease. In Uk where I’m based once officially diagnosed you are eligible for dexa bone scan, more regular blood tests etc. However these seem to vary in availability so I’m wondering ifactually worth be officially diagnosed. Assume I have celiac disease or havepotential for it to develop. Have my adultchildren tested etc.

×

×

Create New...