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Tendonitis everywhere..

Aysegul

By Aysegul
in Related Issues & Disorders

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Aysegul Newbie
Aysegul
Posted

Hi everyone :)

I have some tendon issues for 6 years i m just 30 right now. I was a computer eng. It s started in my both lateral elbows(vit d was 4 in these years), doctors said because of the computer. than started my medial elbows than my knees than my wrists than fingers than my ankles and toes and my all foot. I quit my job. My aaall blood tested are fine. Ca, P, vit D etc levels normal..  There is no clue for roumatoid semptoms. I have no inflammation in my blood and no swelling etc. Doctors just say i ve hypermobility syndrom but actually not that bad. I was looking for solution and found this website. I read here some articles aboud tendonitis and celiac but we re in 2021 now the posts are in 10 years ago :)i Will start to go pilates this week and start a gluten diet but i wonder, is anybody here have same problem and fixed it with a diet? 

thanks much 

Have a healthy days ! 

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trents Grand Master
trents
Posted

You say you have no inflammation in your blood. Not sure what you mean by that. There are specific tests for celiac disease that measure antibodies produced by the disease: https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/. Have you had any of these tests run. Particularly the tTG-IGA? Before you get too far into eating gluten free, realize that for these tests to be valid you would need to be eating regular amounts of gluten for 6-8 weeks. 

Aysegul Newbie
Aysegul
Posted
  • Author
30 minutes ago, trents said:

You say you have no inflammation in your blood. Not sure what you mean by that. There are specific tests for celiac disease that measure antibodies produced by the disease: https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/. Have you had any of these tests run. Particularly the tTG-IGA? Before you get too far into eating gluten free, realize that for these tests to be valid you would need to be eating regular amounts of gluten for 6-8 weeks. 

I mean some blood tests were done like Crp, rf (i think it measures inflammation of the body ..?) And doctors / i went zillion doctors/ said you dont have something inflammatory. Yesterday i asked for celiac tests to the doctor but he just done ttg , i m waiting for the result. Yes i read this forum that i need to gluten for validation of the test. I ve never tried gluten diet yet. Thank you for your reply 

Scott Adams Grand Master
Scott Adams
Posted

Please feel free to share your ttg test results when you get them. Also, keep in mind that there are two conditions: 1) Celiac disease, which about 1% of people have; 2) Non-celiac gluten sensitivity, which ~10% of people have. 

Currently there is not test for non-celiac gluten sensitivity, so if your tests are negative, you may still want to try a gluten-free diet to see if it helps you.

Aysegul Newbie
Aysegul
Posted
  • Author

I got my tests: 

Anti endomisium anticor 2.7 u/ml

Anti gliadin igg 2

Transglutaminase igg 1.7 

But as you said,  i have had gluten free diet for 4 days. If i feel more comfortable i will write here again several months later...        +my b12 levels are always around 200 and b12 is never suggested, because actually its always in its reference value. But some doctors said keep b12 values between 600-1000 , so i will try to elevate it. I dont know and dont think there is a link between b12 levels and tendon problems but i m just trying to find a solution, i hope . 

Thank you. 

Scott Adams Grand Master
Scott Adams
Posted

Can you share the reference levels for each test, as each lab has different cut of levels that denote celiac disease?

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  • Recent Activity

    1. trents
      - trents replied to Jack Common's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
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      What should I do with these test results?

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      Thank you for your reply. I’m beginning to think of iodine as another culprit in this, as much as I fear it. I will say my rash is extreme and diffuse - it’s everywhere! I first had it on both sides of my neck in the summer of 2023. My PCP and dermatologist at the time, thought it was a reaction to jewelry I was wearing, even though I had been wearing the...
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    • trents
      What should I do with these test results?

      By trents · Posted

      From the article you linked: "Currently, there are no recommended methods to test for non-celiac gluten sensitivity." "No recommended methods" is the key phrase here. Just on the anecdotal evidence of reading many posts on this forum, I think we sometimes see some elevated igg test scores with NCGS. They seem to be mildly elevated in these cases, not high high.
    • Itsabit
      SkinSafe

      By Itsabit · Posted

      Thank you for your reply. I’m beginning to think of iodine as another culprit in this, as much as I fear it. I will say my rash is extreme and diffuse - it’s everywhere! I first had it on both sides of my neck in the summer of 2023. My PCP and dermatologist at the time, thought it was a reaction to jewelry I was wearing, even though I had been wearing the same necklaces for literally years with no reaction. The dermatologist at the time repeated over and over again that “allergies are acquired.” Which I knew. But I was not reacting to any other jewelry I was wearing. So it didn’t make any sense to me that it would only be from my necklaces. Anyway, it abated on it’s own. Only to come back with a vengeance months later - and I had not worn any necklaces at all. And the rash involved more area. I was put on Prednisone (oral steroid) taper and it worked well, and the itch and eventually the rash went away. Another trip to a different dermatologist at that time, prior to starting the Prednisone, told me to change all of my hygiene products like soap and shampoo, and to slather on Vaseline. None of which worked, hence the Prednisone. Needless to say, the itch and subsequent rash returned - and now spread everywhere, not just the hollows on both sides of my neck. It’s there, on my upper chest and left breast, both upper arms front and back, and elbows, my entire back, down both of my hips and buttocks and the front of my right thigh. Now the back of that right thigh is starting to itch as well. Also my lower right forearm and middle knuckle on my left hand since going gluten free. I’m just itching everywhere all the time. It keeps me awake, or wakes me up when I do fall asleep. I’m trying my best not to scratch, but it’s nearly impossible! I’ve been using a dry washcloth to rub instead of scratching. And I have used cool wet washcloths which help, but only lasts for a few minutes before starting up again. I’m pretty much at my wit’s end. Just waiting for something to indicate what’s really going on so I can do SOMETHING to stop it! 
    • Itsabit
      SkinSafe

      By Itsabit · Posted

      Reply to Russ H, Thank you for your input. As a nurse for 46 years I was aware of much of this. However, as a new member to dermatitis herpetiformis, I have been reading and researching everything I can about it in order to educate and help myself. I was hoping that the oral Dapsone would help to alleviate the itching. I knew the rash would take longer to abate. Instead of relief from the Dapsone, I had adverse reactions so had to stop it. After 2 months on it, if hadn’t helped with the itching at all, and I understand it usually helps in the first few days if it’s going to. My itch and rash actually got worse on the Dapsone and with going gluten free - which lead me to question whether I was getting glutined from other products I am using. It’s like a huge puzzle trying to put all these pieces together to somehow make it fit and make sense. Right now, myself and my doctor are perplexed. 
    • Jacki Espo
      SkinSafe

      By Jacki Espo · Posted

      I should add that I had a flare up I think was from cross contamination and during that time I ate gluten free chips and immediately had severe itching at the breakout site. I suspected it was the iodine in the salt from the chips that did it. It seems like iodine may impact a flare up but does not impact me if I’m otherwise not experiencing the rash.  Good luck. Wishing you the best. 
    • Itsabit
      SkinSafe

      By Itsabit · Posted

      Reply to Jackie, Thank you. I have not been eating any oats at all, but I am aware of a possible correlation. And I already rarely eat out, and not recently. So, whatever this is, I’m doing it to myself, somehow. 🤷‍♀️
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