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Soft Palate/Palatoglossal Pain/Redness

EmilyJ93

By EmilyJ93
in Related Issues & Disorders

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EmilyJ93 Apprentice
EmilyJ93
Posted

Hi! 
 

I was just diagnosed with Celiac after having a variety of symptoms, mostly throat/mouth issues. Since I was just diagnosed I haven’t yet started a gluten free diet. Has anyone else with Celiac had pain/redness of the soft palate and back of the mouth (palatoglossal arch) as a result of eating gluten? I also have a lot of mucus draining down the back of my throat throughout the day, I’ve been burping a lot the past few months, and my throat gets extremely dry at night. I’m curious to see if these issues start to go away when I go gluten free. Any advice is appreciated! 

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Scott Adams Grand Master
Scott Adams
Posted

I had very serious sinus drainage/clogged up issues for most of my youth, until I was diagnosed with celiac disease and went gluten-free. In fact I took both food and pollen allergy shots for many years to try to deal with it. Sore throats and the symptoms you described were quite common for me.

The good news in my case is that this did go away after a year or two being gluten-free, and I've never really had this issue since...and so I've "graduated" into being a nose breather!

trents Grand Master
trents
Posted

Welcome to the forum, Emily.

How were you diagnosed with celiac disease?

The problems you describe with you throat, mouth and sinuses sound like they could be related to acid reflux. Reflux can get all the way up into your sinuses and cause irritation/inflammation and also frequent sinus infections. This can happen particularly at night when you are laying for hours in a horizontal position.

EmilyJ93 Apprentice
EmilyJ93
Posted
  • Author
3 minutes ago, trents said:

Welcome to the forum, Emily.

How were you diagnosed with celiac disease?

The problems you describe with you throat, mouth and sinuses sound like they could be related to acid reflux. Reflux can get all the way up into your sinuses and cause irritation/inflammation and also frequent sinus infections. This can happen particularly at night when you are laying for hours in a horizontal position.

Thanks!

My TTg IGA was 100, TTg IGG was 29, Deamidated Gliadin IGA was 60, and Deamidated Gliadin IGG was 68 - all strong positives according to my doctor. I have an endoscopy scheduled as well.  

9 minutes ago, Scott Adams said:

I had very serious sinus drainage/clogged up issues for most of my youth, until I was diagnosed with celiac disease and went gluten-free. In fact I took both food and pollen allergy shots for many years to try to deal with it. Sore throats and the symptoms you described were quite common for me.

The good news in my case is that this did go away after a year or two being gluten-free, and I've never really had this issue since...and so I've "graduated" into being a nose breather!

That is so interesting! I’m glad you’re doing better now! Thanks for sharing! 

trents Grand Master
trents
Posted

You might also consider making an appointment with an ENT to get those nasal passages and sinuses scoped out.

EmilyJ93 Apprentice
EmilyJ93
Posted
  • Author
10 minutes ago, trents said:

You might also consider making an appointment with an ENT to get those nasal passages and sinuses scoped out.

I recently saw one 😊 They did a laryngoscopy and said things looked pretty good, but that I had signs of laryngopharyngeal reflux. My PCP that did the blood work for celiac said since I’ve been eating gluten that may be causing the reflux issues. 

trents Grand Master
trents
Posted
9 minutes ago, EmilyJ93 said:

I recently saw one 😊 They did a laryngoscopy and said things looked pretty good, but that I had signs of laryngopharyngeal reflux. My PCP that did the blood work for celiac said since I’ve been eating gluten that may be causing the reflux issues. 

Yes, there is a significant correlation between celiac disease and reflux.

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EmilyJ93 Apprentice
EmilyJ93
Posted
  • Author

My mouth has also been itchy. Particularly in the back. 

trents Grand Master
trents
Posted

I would guess that in addition to celiac disease, Emily, you have some significant food and/or environmental allergies going on. 

Jan Meindfak Apprentice
Jan Meindfak
Posted

Happens to me every year when the heating season is on. It can actually be allergy to something in your environment - mucus drainage down the throat is typical and it can irritate the back of your mouth as well. Get a good ENT check up and maybe start popping some antihistamines. 

Cheers 

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    • trents
      Awaiting diagnosis

      By trents · Posted

      I would ask for a total IGA test (aka, Immunoglobulin A (IgA) and other names as well) to check for IGA deficiency. That test should always be ordered along with the TTG IGA. If someone is IGA deficient, their individual celiac IGA test scores will be artificially low which can result in false negatives. Make sure you are eating generous amounts of gluten leading up to any testing or diagnostic procedure for celiac disease to ensure validity of the results. 10g of gluten daily for a period of at least 2 weeks is what current guidelines are recommending. That's the amount of gluten found in about 4-6 slices of wheat bread.
    • jlp1999
      Awaiting diagnosis

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      There was not a total IGA test done, those were the only two ordered. I would say I was consuming a normal amount of gluten, I am not a huge bread or baked goods eater
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      Awaiting diagnosis

      By trents · Posted

      Were you consuming generous amounts of gluten in the weeks leading up to the blood draw for the antibody testing? And was there a Total IGA test done to test for IGA deficiency?
    • jlp1999
      Awaiting diagnosis

      By jlp1999 · Posted

      Thank you for the reply. It was the TTG IGA that was within normal limits
    • trents
      Awaiting diagnosis

      By trents · Posted

      Welcome to the forum, @jlp1999! Which IGA test do you refer to as being normal? TTG-IGA? Total IGA? DGP-IGA? Yes, any positive on an IGA or an IGG test can be due to something other than celiac disease and this is especially true of weak positives. Villous atrophy can also be cause by other things besides celiac disease such as some medications, parasitic infections and even some foods (especially dairy from an intolerance to the dairy protein casein). But the likelihood of that being the case is much less than it being caused by celiac disease.
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