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Soft Palate/Palatoglossal Pain/Redness


EmilyJ93

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EmilyJ93 Apprentice

Hi! 
 

I was just diagnosed with Celiac after having a variety of symptoms, mostly throat/mouth issues. Since I was just diagnosed I haven’t yet started a gluten free diet. Has anyone else with Celiac had pain/redness of the soft palate and back of the mouth (palatoglossal arch) as a result of eating gluten? I also have a lot of mucus draining down the back of my throat throughout the day, I’ve been burping a lot the past few months, and my throat gets extremely dry at night. I’m curious to see if these issues start to go away when I go gluten free. Any advice is appreciated! 


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Scott Adams Grand Master

I had very serious sinus drainage/clogged up issues for most of my youth, until I was diagnosed with celiac disease and went gluten-free. In fact I took both food and pollen allergy shots for many years to try to deal with it. Sore throats and the symptoms you described were quite common for me.

The good news in my case is that this did go away after a year or two being gluten-free, and I've never really had this issue since...and so I've "graduated" into being a nose breather!

trents Grand Master

Welcome to the forum, Emily.

How were you diagnosed with celiac disease?

The problems you describe with you throat, mouth and sinuses sound like they could be related to acid reflux. Reflux can get all the way up into your sinuses and cause irritation/inflammation and also frequent sinus infections. This can happen particularly at night when you are laying for hours in a horizontal position.

EmilyJ93 Apprentice
3 minutes ago, trents said:

Welcome to the forum, Emily.

How were you diagnosed with celiac disease?

The problems you describe with you throat, mouth and sinuses sound like they could be related to acid reflux. Reflux can get all the way up into your sinuses and cause irritation/inflammation and also frequent sinus infections. This can happen particularly at night when you are laying for hours in a horizontal position.

Thanks!

My TTg IGA was 100, TTg IGG was 29, Deamidated Gliadin IGA was 60, and Deamidated Gliadin IGG was 68 - all strong positives according to my doctor. I have an endoscopy scheduled as well.  

9 minutes ago, Scott Adams said:

I had very serious sinus drainage/clogged up issues for most of my youth, until I was diagnosed with celiac disease and went gluten-free. In fact I took both food and pollen allergy shots for many years to try to deal with it. Sore throats and the symptoms you described were quite common for me.

The good news in my case is that this did go away after a year or two being gluten-free, and I've never really had this issue since...and so I've "graduated" into being a nose breather!

That is so interesting! I’m glad you’re doing better now! Thanks for sharing! 

trents Grand Master

You might also consider making an appointment with an ENT to get those nasal passages and sinuses scoped out.

EmilyJ93 Apprentice
10 minutes ago, trents said:

You might also consider making an appointment with an ENT to get those nasal passages and sinuses scoped out.

I recently saw one 😊 They did a laryngoscopy and said things looked pretty good, but that I had signs of laryngopharyngeal reflux. My PCP that did the blood work for celiac said since I’ve been eating gluten that may be causing the reflux issues. 

trents Grand Master
9 minutes ago, EmilyJ93 said:

I recently saw one 😊 They did a laryngoscopy and said things looked pretty good, but that I had signs of laryngopharyngeal reflux. My PCP that did the blood work for celiac said since I’ve been eating gluten that may be causing the reflux issues. 

Yes, there is a significant correlation between celiac disease and reflux.


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EmilyJ93 Apprentice

My mouth has also been itchy. Particularly in the back. 

trents Grand Master

I would guess that in addition to celiac disease, Emily, you have some significant food and/or environmental allergies going on. 

Jan Meindfak Apprentice

Happens to me every year when the heating season is on. It can actually be allergy to something in your environment - mucus drainage down the throat is typical and it can irritate the back of your mouth as well. Get a good ENT check up and maybe start popping some antihistamines. 

Cheers 

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    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
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      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
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    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
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