Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Soft Palate/Palatoglossal Pain/Redness


EmilyJ93

Recommended Posts

EmilyJ93 Apprentice

Hi! 
 

I was just diagnosed with Celiac after having a variety of symptoms, mostly throat/mouth issues. Since I was just diagnosed I haven’t yet started a gluten free diet. Has anyone else with Celiac had pain/redness of the soft palate and back of the mouth (palatoglossal arch) as a result of eating gluten? I also have a lot of mucus draining down the back of my throat throughout the day, I’ve been burping a lot the past few months, and my throat gets extremely dry at night. I’m curious to see if these issues start to go away when I go gluten free. Any advice is appreciated! 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Scott Adams Grand Master

I had very serious sinus drainage/clogged up issues for most of my youth, until I was diagnosed with celiac disease and went gluten-free. In fact I took both food and pollen allergy shots for many years to try to deal with it. Sore throats and the symptoms you described were quite common for me.

The good news in my case is that this did go away after a year or two being gluten-free, and I've never really had this issue since...and so I've "graduated" into being a nose breather!

trents Grand Master

Welcome to the forum, Emily.

How were you diagnosed with celiac disease?

The problems you describe with you throat, mouth and sinuses sound like they could be related to acid reflux. Reflux can get all the way up into your sinuses and cause irritation/inflammation and also frequent sinus infections. This can happen particularly at night when you are laying for hours in a horizontal position.

EmilyJ93 Apprentice
3 minutes ago, trents said:

Welcome to the forum, Emily.

How were you diagnosed with celiac disease?

The problems you describe with you throat, mouth and sinuses sound like they could be related to acid reflux. Reflux can get all the way up into your sinuses and cause irritation/inflammation and also frequent sinus infections. This can happen particularly at night when you are laying for hours in a horizontal position.

Thanks!

My TTg IGA was 100, TTg IGG was 29, Deamidated Gliadin IGA was 60, and Deamidated Gliadin IGG was 68 - all strong positives according to my doctor. I have an endoscopy scheduled as well.  

9 minutes ago, Scott Adams said:

I had very serious sinus drainage/clogged up issues for most of my youth, until I was diagnosed with celiac disease and went gluten-free. In fact I took both food and pollen allergy shots for many years to try to deal with it. Sore throats and the symptoms you described were quite common for me.

The good news in my case is that this did go away after a year or two being gluten-free, and I've never really had this issue since...and so I've "graduated" into being a nose breather!

That is so interesting! I’m glad you’re doing better now! Thanks for sharing! 

trents Grand Master

You might also consider making an appointment with an ENT to get those nasal passages and sinuses scoped out.

EmilyJ93 Apprentice
10 minutes ago, trents said:

You might also consider making an appointment with an ENT to get those nasal passages and sinuses scoped out.

I recently saw one 😊 They did a laryngoscopy and said things looked pretty good, but that I had signs of laryngopharyngeal reflux. My PCP that did the blood work for celiac said since I’ve been eating gluten that may be causing the reflux issues. 

trents Grand Master
9 minutes ago, EmilyJ93 said:

I recently saw one 😊 They did a laryngoscopy and said things looked pretty good, but that I had signs of laryngopharyngeal reflux. My PCP that did the blood work for celiac said since I’ve been eating gluten that may be causing the reflux issues. 

Yes, there is a significant correlation between celiac disease and reflux.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



EmilyJ93 Apprentice

My mouth has also been itchy. Particularly in the back. 

trents Grand Master

I would guess that in addition to celiac disease, Emily, you have some significant food and/or environmental allergies going on. 

Jan Meindfak Apprentice

Happens to me every year when the heating season is on. It can actually be allergy to something in your environment - mucus drainage down the throat is typical and it can irritate the back of your mouth as well. Get a good ENT check up and maybe start popping some antihistamines. 

Cheers 

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,118
    • Most Online (within 30 mins)
      7,748

    Cwbtex
    Newest Member
    Cwbtex
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Colleen H
      Yes this is very frustrating for me ... not sure what to think.  Feels like I'm having reactions to a lot of things  Now applesauce?? I don't understand 😞 
    • Colleen H
      I did ... But aren't we going to be vitamin deficienct if we are not eating due to being sick ?? If the food we eat is gluten free and we have other sensitivities , how do we get out of the cycle??  Thank you 
    • Colleen H
      Anyone else get pins and needles. ??? Burning feeling ? Heat makes it so much worse 😔  Winter is here.  I had to lower my thermostat because I couldn't take that hot air feeling 😔  Hopefully it goes away soon     
    • trents
      I assume that you already know that genetic testing for celiac disease cannot be used to confirm a celiac diagnosis. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% actually develop celiac disease. It can be used to rule out celiac disease with a high degree of confidence, however, in the case where the genetic testing is negative for the genes. Until and unless you are actually diagnosed with celiac disease I would not raise this as an issue with family. However, if you are diagnosed with celiac disease through blood antibody testing and/or endoscopy with positive biopsy I would suggest you encourage first degree relatives to also purse testing because there is a significant chance (somewhere betwee 10% and almost 50%, depending on which studies you reference) that they will also have or will develop active celiac disease. Often, there are symptoms are absent or very minor until damage to the small bowel lining or other body systems becomes significant so be prepared that they may blow you off. We call this "silent celiac disease". 
    • trents
      If you were off gluten for two months that would have been long enough to invalidate the celiac blood antibody testing. Many people make the same mistake. They experiment with the gluten free diet before seeking formal testing. Once you remove gluten from the diet the antibodies stop being produced and those that are already in circulation begin to be removed and often drop below detectable levels. To pursue valid testing for celiac disease you would need to resume gluten consumption equivalent to the amount found in 4-6 slices of wheat bread daily for at least two weeks, preferably longer. These are the most recent guidelines for the "gluten challenge". Without formal testing there is no way to distinguish between celiac disease and gluten sensitivity since their symptoms overlap. However, celiac disease is an autoimmune disorder that damages the small bowel lining, not true of gluten sensitivity. There is no test available for gluten sensitivity so celiac disease must first be ruled out. By the way, elevated liver enzymes was what led to my celiac diagnosis almost 25 years ago.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.