Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Itch but no rash

Gael

By Gael
in Dermatitis Herpetiformis

 Share

Recommended Posts

Wheatwacked Veteran
Wheatwacked
Posted

Family history, possible DH, and pregnant. A gluten free diet would be a wise choice. Keep in mind that gluten free foods are not fortified. Get plenty of folate (chick peas, small red beans and pinto beans are a good source. And plenty of choline. liver, eggs and steak or supplements; to prevent neural tube defects, in addition to other vitamins and minerals. 

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Gael Apprentice
Gael
  • Author
Posted
1 hour ago, Wheatwacked said:

Family history, possible DH, and pregnant. A gluten free diet would be a wise choice. Keep in mind that gluten free foods are not fortified. Get plenty of folate (chick peas, small red beans and pinto beans are a good source. And plenty of choline. liver, eggs and steak or supplements; to prevent neural tube defects, in addition to other vitamins and minerals. 

Thanks! Yes, I have been very mindful of that. Thanks for the suggestions.

Link to comment
Share on other sites
Awol cast iron stomach Experienced
Awol cast iron stomach
Posted

Hello Gael. If I am reading and comprehending your post properly you are currently pregnant?

This may not be relevant, but I thought I should share our story.

I experienced itching under the skin during pregnancy, a rash developed below my belly button during pregnancy, I erupted into a full blown PUPPP rash after delivery. (In Hindsight my Dr. was likely not knowledgeable, observant, or had the appropriate bedside manner/listening skills for a patient like me and our situation. I am fortune that hospital had a wonderful nurse named Karla who was those things who was my advocate after delivery. (Bless you Karla!) I am happy to report my other child's subsequent pregnancy/birth had a fantastic team despite our issues) This I hope to not be in your case at ALL!

I was not known to be gluten intolerant at the time. My gluten intolerant symptoms were misdiagnosed prior as something else. I was not diagnosed gluten intolerant until  9 years later, and after I taken my self off of gluten. Yes, best practices I should not have taken myself off, but desperate people do desperate things. I had to go on a gluten challenge which I was unable to complete. 

The University of Illinois has found PUPPP to be associated with DH.

http://www.cureceliacdisease.org/faq/can-someone-with-celiac-disease-also-have-pruritic-urticarial-papules-and-plaques-pupps-during-pregnancy/

Best wishes to you and your precious one. Happy and safe delivery.

Link to comment
Share on other sites
Gael Apprentice
Gael
  • Author
Posted
8 hours ago, Awol cast iron stomach said:

Hello Gael. If I am reading and comprehending your post properly you are currently pregnant?

This may not be relevant, but I thought I should share our story.

I experienced itching under the skin during pregnancy, a rash developed below my belly button during pregnancy, I erupted into a full blown PUPPP rash after delivery. (In Hindsight my Dr. was likely not knowledgeable, observant, or had the appropriate bedside manner/listening skills for a patient like me and our situation. I am fortune that hospital had a wonderful nurse named Karla who was those things who was my advocate after delivery. (Bless you Karla!) I am happy to report my other child's subsequent pregnancy/birth had a fantastic team despite our issues) This I hope to not be in your case at ALL!

I was not known to be gluten intolerant at the time. My gluten intolerant symptoms were misdiagnosed prior as something else. I was not diagnosed gluten intolerant until  9 years later, and after I taken my self off of gluten. Yes, best practices I should not have taken myself off, but desperate people do desperate things. I had to go on a gluten challenge which I was unable to complete. 

The University of Illinois has found PUPPP to be associated with DH.

http://www.cureceliacdisease.org/faq/can-someone-with-celiac-disease-also-have-pruritic-urticarial-papules-and-plaques-pupps-during-pregnancy/

Best wishes to you and your precious one. Happy and safe delivery.

Thank you so much for your reply. I had thought maybe it was PUPPs. I was itchy before getting pregnant but since being pregnant these rashes have broken out all over my body. From what I have read, it sounds like PUPP usually shows up in second trimester and I am only a few weeks pregnant. I am glad to hear that your pregnancy still went okay! Thanks for sharing your experiences. 

Link to comment
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
 Share
Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      125,810
    • Most Online (within 30 mins)
      7,748
    Niki111084
    Newest Member
    Niki111084
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.8k
    • Total Posts
      69k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • RMJ
      Implications of glutening after repairing villi

      By RMJ · Posted

      It will not undo all of the healing.  If it did, diagnosis of celiac disease would be much easier!  To have enough damage to see on an endoscopy requires several weeks of gluten ingestion. 
    • Jean Shifrin
      Implications of glutening after repairing villi

      By Jean Shifrin · Posted

      HI, I am new to this and am still in 'repair' mode, which I know will take time. But I'm wondering if anyone knows what happens if you ingest gluten after you have made a lot of progress in repairing your villi. Does anyone know if you just have a short-term issue? Or does an accidental ingestion of gluten derail all the work you've done and set you back to square one? Thanks.
    • Scott Adams
      Is McDonald's Safe for Gluten-Free Orders?

      By Scott Adams · Posted

      Hydrolyzed wheat is wheat protein that has been broken down into smaller components through a chemical or enzymatic process called hydrolysis. This ingredient can be found in various products, including cosmetics, personal care items, and some food products. For people with celiac disease, hydrolyzed wheat is generally not safe to consume because it still contains gluten proteins, even in its broken-down form. Though hydrolysis reduces the size of these proteins, it doesn’t fully remove the components that trigger an autoimmune response in people with celiac disease. In food products, hydrolyzed wheat protein still poses a risk and should be avoided. With regard to the McDonald's French fries, the total amount of hydrolyzed wheat in the flavoring is small, and the amount that ends up in an order of fries is even smaller, and likely below 20ppm. McDonald’s states that the fries are gluten-free by ingredient and free from cross-contact with gluten-containing foods in their dedicated fryers. Third-party tests and statements by McDonald's confirm gluten levels are below the FDA threshold for gluten-free labeling (20 parts per million or less). So, while McDonald’s USA fries may be gluten-free based on testing, some people with celiac disease still approach them cautiously due to the past concerns and individual sensitivities.
    • trents
      Is McDonald's Safe for Gluten-Free Orders?

      By trents · Posted

      Here is an excerpt from this article: https://pmc.ncbi.nlm.nih.gov/articles/PMC82695:   Studies have shown that various peptidases of fungal, plant, animal, or bacterial origin are able to hydrolyze gluten into harmless peptides. According to SDS‐PAGE pattern, proteolytic enzymes hydrolyze gliadins (Heredia‐Sandoval et al., 2016; Scherf et al., 2018; Socha et al., 2019; Wei et al., 2018, 2020). Bacterial peptidase (Krishnareddy & Green, 2017), fungal peptidase (Koning et al., 2005), and prolyl endopeptidases (PEPs) (Amador et al., 2019; Janssen et al., 2015; Kerpes et al., 2016; Mamo & Assefa, 2018) thoroughly degrade gliadin fractions to decrease gluten concentration and influence celiac disease. Aspergillus niger derived PEP (AN‐PEP) were assessed in clinical cases for their impact on modifying immune responses to gluten in celiac patients (Lähdeaho et al., 2014). Guerdrum and Bamforth (2012) reported that PEP addition in brewing technology decreased the prolamin and all of the identified immunopathogenic gluten epitopes in beer production (Akeroyd et al., 2016). On the contrary, many of the recent investigations which employed enzyme‐linked immunosorbent assay (ELISA), mass spectrometry, and Western blot analysis reported that PEP did not thoroughly destroy the whole gluten proteins (Allred et al., 2017; Colgrave et al., 2017; Fiedler et al., 2018; Panda et al., 2015), which indicates that beers treated with PEP are not safe for celiac disease patients. Anecdotally, this excerpt supports what we hear from the celiac community on this forum with regard to "gluten free" hydrolyzed wheat products and that is that some still react to them while many don't.
    • Scott Adams
      Anybody else have a similar experience...theories welcome as its something which i dont really understand.....

      By Scott Adams · Posted

      There aren't good studies that have been done on celiac disease remission, and I'm going from a distant memory of an older post here, but the longest remission that Dr. Stefano Guandalini from the University of Chicago Celiac Disease Center has witnessed was ~10 years, then the symptoms of celiac disease and the damage came back. The real issue though, is that you still could increase your risk of various related diseases and disorders by eating gluten, but again, celiac disease remission has not been studies enough to know what health risks you might face.
×
×
  • Create New...