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Skin biopsy for DH


Gael

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Gael Apprentice

Hi all,

i saw a dermatologist today because I have had an itchy rash all over my body for a few months. I went off gluten 11 days ago to see if it would help reduce itching. Long story short in the past 10 days I am still itchy with new rashes breaking out since going gluten-free. The derm took a skin biopsy today to check for DH, but my question is “how long does gluten stay in the body after stopping?”. I am worried that because I am off gluten for over a week now that I will get a false negative. The dermatologist was pretty dismissive. He does not think this DH despite me explaining that basically everyone in my family as celiacs disease. He said he could still do a biopsy and would let me know if anything comes up. For now he’s just prescribed more steroid cream. I can’t do a endoscopy right now because I am 4-6 weeks pregnant. Itchiness predates pregnancy. Any insight about how long gluten sticks around in the body would be great! Thank you!


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Gael Apprentice

Anybody out there know how long gluten stays in the body after you stop eating it?

Scott Adams Grand Master

I've not seen any studies done on that question, but do know from years of reading posts here that it varies greatly from person to person, and those with DH seem to have the longest recovery times, even from very tiny amounts of gluten. For those with gastro symptoms recovery seems to take days. For those with neurological or DH symptoms it can take weeks. Whether or not gluten is still actually in the body at that point is doubtful to me, but it has triggered an immune reaction that can continue for quite a while in some people.

Gael Apprentice
On 11/23/2021 at 4:56 PM, Scott Adams said:

I've not seen any studies done on that question, but do know from years of reading posts here that it varies greatly from person to person, and those with DH seem to have the longest recovery times, even from very tiny amounts of gluten. For those with gastro symptoms recovery seems to take days. For those with neurological or DH symptoms it can take weeks. Whether or not gluten is still actually in the body at that point is doubtful to me, but it has triggered an immune reaction that can continue for quite a while in some people.

Thanks for your response! Basically, the dermatologist told me if there were still lesions, he could perform the DH biopsy. I just wanted to see if anyone had heard anything to the contrary if one had stopped gluten before the skin biopsy! Thanks again for your reply

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    • trents
      The biopsy looks for damage to the mucosal lining of the small bowel from the inflammation caused by celiac disease when gluten is ingested. Once you remove gluten from the diet, inflammation subsides and the mucosal lining begins to heal. 
    • Theresa2407
      Our support groups in Iowa have tried for years to educate doctors and resource sites like this one.  We have held yearly conferences with continued education classes.   We have brought in Dr. Murray, Dr. Fasano, Dr. Green and Dr. elliott.  In those many years we may have had 2 doctors attend.  We sent them information, with no response.  I talked to my personal doctor and she said their training for Celiac was to show them a skinny man in boxer shorts and a huge stomach.  Saying if you see this, it is Celiac.  If it isn't in their playbook then they don't care.  Most call it an allergy with no mention of our immune system.  There is so much false information on the internet.  Then people don't understand why they can't get well and are acquiring more immune diseases. I mention this site to everyone.  Scott has working hard for the Celiac community.
    • Scott Adams
      If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      One of our sponsors here is a nut/seed/dried fruit, etc., company that sells gluten-free versions. Tierra Farm: https://www.tierrafarm.com/discount/gfships
    • trents
      You might also consider a low iodine diet as iodine is know to exacerbate dermatitis herpetiformis. But be careful with that as well as there are health problems that can accrue from iodine deficiency.
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