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Pain Between Clavices


EmilyJ93

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EmilyJ93 Apprentice

This is super random - but does anyone get pain right between their clavicles in the front of the chest? It hurts when I take a deep breath sometimes and also is worse when I bend over. It feels like musculoskeletal pain. It only lasts for a few days and then goes away for a while until it comes back. I also have noticed pain in my neck kind of leading down to the inward points of my two clavicles. When I have these episodes it also kinda hurts to swallow - as if my throat feels tight or something. My thyroid levels are all normal. I was just diagnosed about a week ago and haven’t yet started cutting out gluten, as I am traveling out of the country for the next week.
 

Thanks in advance! 


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trents Grand Master

Are you asking about this in relation to celiac disease? 

EmilyJ93 Apprentice
20 minutes ago, trents said:

Are you asking about this in relation to celiac disease? 

Yes. Just wondering if others have joint/muscle pain. Could be unrelated but just curious.  

Wheatwacked Veteran

I had both the pain on deep breaths, like my lung was stuck, and a pain between clavicles usually if I let myself get hungry.  Both cleared after starting GFD, but I did not notice how long after.

EmilyJ93 Apprentice
26 minutes ago, Wheatwacked said:

I had both the pain on deep breaths, like my lung was stuck, and a pain between clavicles usually if I let myself get hungry.  Both cleared after starting GFD, but I did not notice how long after.

That’s super interesting - thank you for sharing! I’ve always thought mine was just from tweaking some muscles occasionally from sleeping weird. Interested to see if it changes once I start gluten-free! 

trents Grand Master

That is an area of the body prone to arthritis where the clavicles attach to the sternum. There is kind of a pseudo joint there. Does the pain coincide with getting glutened?

  • 1 month later...
Christy Sue Newbie
On 11/19/2021 at 3:38 PM, EmilyJ93 said:

This is super random - but does anyone get pain right between their clavicles in the front of the chest? It hurts when I take a deep breath sometimes and also is worse when I bend over. It feels like musculoskeletal pain. It only lasts for a few days and then goes away for a while until it comes back. I also have noticed pain in my neck kind of leading down to the inward points of my two clavicles. When I have these episodes it also kinda hurts to swallow - as if my throat feels tight or something. My thyroid levels are all normal. I was just diagnosed about a week ago and haven’t yet started cutting out gluten, as I am traveling out of the country for the next week.
 

Thanks in advance! 

I was diagnosed with SIBO and this is a common problem for me.  It makes me really anxious and nervous when it happens.  I have been to the ER on a few occasions to check my heart and my cardiologist did a stress test just to rule out my heart.  

Today they are going to test me for Celiac since none of the treatments I have been doing for months are helping with SIBO.  I have lost 23 pounds in a very short time span so this too is concerning.

I am glad I found this article because if thought I was going crazy having chest pain I was afraid to mention it anymore since all cardia test were negative.  Thanks for sharing your story.

 


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Scott Adams Grand Master

Welcome to the forum @Christy Sue, please let us know how your tests turn out. Be sure that you've been eating ~2 slices of wheat bread per day in the 6-8 weeks leading up to the blood tests, and 2 weeks before an endoscopy.

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      Well I had a moment yesterday morning where I accidentally gave her gluten. She wanted what I was eating and I forgot and let her have a few bites of toast. It was a really bad night last night with her behavior. Will a few bites of bread influence their behavior that much or could it just be a coincidence?
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    • Scott Adams
      Elevated tissue transglutaminase IgA (tTG-IgA) levels are highly specific for celiac disease, and they are a key biomarker used in its diagnosis. However, there are some rare instances where elevated tTG-IgA levels have been reported in conditions other than celiac disease. While these cases are not common, they have been documented in the literature. Below are some examples and references to studies or reviews that discuss these scenarios:  1. Non-Celiac Gluten Sensitivity (NCGS)    - NCGS typically does not cause elevated tTG-IgA levels, as it is not an autoimmune condition. However, some individuals with NCGS may have mild elevations in tTG-IgA due to intestinal inflammation or other factors, though this is not well-documented in large studies.    - Reference: Catassi, C., et al. (2013). *Non-Celiac Gluten Sensitivity: The New Frontier of Gluten-Related Disorders*. Nutrients, 5(10), 3839–3853. [DOI:10.3390/nu5103839](https://doi.org/10.3390/nu5103839)  2. Autoimmune Diseases    - Elevated tTG-IgA levels have been reported in other autoimmune conditions, such as type 1 diabetes, autoimmune hepatitis, and systemic lupus erythematosus (SLE). This is thought to be due to cross-reactivity or polyautoimmunity.    - Reference: Sblattero, D., et al. (2000). *The Role of Anti-Tissue Transglutaminase in the Diagnosis and Management of Celiac Disease*. Autoimmunity Reviews, 1(3), 129–135. [DOI:10.1016/S1568-9972(01)00022-3](https://doi.org/10.1016/S1568-9972(01)00022-3)  3. Chronic Liver Disease    - Conditions like chronic hepatitis or cirrhosis can sometimes lead to elevated tTG-IgA levels, possibly due to increased intestinal permeability or immune dysregulation.    - Reference: Vecchi, M., et al. (2003). *High Prevalence of Celiac Disease in Patients with Chronic Liver Disease: A Role for Gluten-Free Diet?* Gastroenterology, 125(5), 1522–1523. [DOI:10.1016/j.gastro.2003.08.031](https://doi.org/10.1016/j.gastro.2003.08.031)  4. Inflammatory Bowel Disease (IBD)    - Some patients with Crohn’s disease or ulcerative colitis may have elevated tTG-IgA levels due to intestinal inflammation and damage, though this is not common.    - Reference: Walker-Smith, J. A., et al. (1990). *Celiac Disease and Inflammatory Bowel Disease*. Journal of Pediatric Gastroenterology and Nutrition, 10(3), 389–391. [DOI:10.1097/00005176-199004000-00020](https://doi.org/10.1097/00005176-199004000-00020)  5. Infections and Parasites    - While infections (e.g., giardiasis) are more commonly associated with false-positive tTG-IgA results, chronic infections or parasitic infestations can sometimes lead to elevated levels due to mucosal damage.    - Reference: Rostami, K., et al. (1999). *The Role of Infections in Celiac Disease*. European Journal of Gastroenterology & Hepatology, 11(11), 1255–1258. [DOI:10.1097/00042737-199911000-00010](https://doi.org/10.1097/00042737-199911000-00010)  6. Cardiac Conditions    - Rarely, heart failure or severe cardiovascular disease has been associated with elevated tTG-IgA levels, possibly due to gut ischemia and increased intestinal permeability.    - Reference: Ludvigsson, J. F., et al. (2007). *Celiac Disease and Risk of Cardiovascular Disease: A Population-Based Cohort Study*. American Heart Journal, 153(6), 972–976. [DOI:10.1016/j.ahj.2007.03.019](https://doi.org/10.1016/j.ahj.2007.03.019)  Key Points: - Elevated tTG-IgA levels are highly specific for celiac disease, and in most cases, a positive result strongly suggests celiac disease. - Other conditions causing elevated tTG-IgA are rare and often accompanied by additional clinical findings. - If celiac disease is suspected, further testing (e.g., endoscopy with biopsy) is typically required for confirmation. If you’re looking for more specific studies, I recommend searching PubMed or other medical databases using terms like "elevated tTG-IgA non-celiac" or "tTG-IgA in non-celiac conditions." Let me know if you’d like help with that!
    • MaryMJ
      I called zero water and they state their filters do not contain gluten or gluten containing ingredients. 
    • trents
      I agree. Doesn't look like you have celiac disease. Your elevated DGP-IGG must be due to something else. And it was within normal at that after your gluten challenge so it is erratic and doesn't seem to be tied to gluten consumption.
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