Terrible Neurological Symptoms

[Jackie Garrett]

  On 3/8/2022 at 9:11 PM, Jackie Garrett said:

Maybe the normal readings should be reset lower to pick up problems with acidosis because I know that was my problem and sorted it out myself, and become well, so maybe they are not picking up on it, like they didn’t with me,you have to try for your self, if you are eating Cheese every day you are adding to your levels of acid  and your pain will continue, if it is the cheese, I know it would cause a lot of pain with me, I know cheese is hard to give up but if you want good health and a pain free body try avoiding it and see how you go,  (there are other foods to give you Calcium) it will take a while for your body to change but symptoms should go with in weeks, every time I had it the pain was excruciating. Maybe give up the Cheese and take the Thiamine at the same time,and if I’m wrong we’ll I’m wrong, I am only trying to help, through what happened to me. And maybe in time when you are healed you may have a little Cheese on the odd occasion.

Good luck Hector.

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 There is a test called an Anion Gap blood test. I had a normal blood test.

[HectorConvector]

  On 3/8/2022 at 9:11 PM, Jackie Garrett said:

Maybe the normal readings should be reset lower to pick up problems with acidosis because I know that was my problem and sorted it out myself, and become well, so maybe they are not picking up on it, like they didn’t with me,you have to try for your self, if you are eating Cheese every day you are adding to your levels of acid  and your pain will continue, if it is the cheese, I know it would cause a lot of pain with me, I know cheese is hard to give up but if you want good health and a pain free body try avoiding it and see how you go,  (there are other foods to give you Calcium) it will take a while for your body to change but symptoms should go with in weeks, every time I had it the pain was excruciating. Maybe give up the Cheese and take the Thiamine at the same time,and if I’m wrong we’ll I’m wrong, I am only trying to help, through what happened to me. And maybe in time when you are healed you may have a little Cheese on the odd occasion.

Good luck Hector.

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I eat cheese to get calcium and to add up to my required calories as it's high calorie density and easy to eat (doesn't make me too full). I can easily replace it with other high calorie stuff like peanut butter but that makes my symptoms a lot worse - cheese is one of the least triggering foods for my pain which is why I use it. Worst foods are things like carbohydrate based foods and some nuts. Meat and cheese are probably the two best foods for not triggering the nerve pain. Most other things are worse. Fruit and nuts are particularly awful in combination.

I think I'll eliminate cheese and add thiamine at separate times, only because if the symptoms reduce when doing both these things, I might not know which action caused the reduction in symptoms. But I will look into it regarding the cheese.

[Jackie Garrett]

  On 3/8/2022 at 10:02 PM, HectorConvector said:

I eat cheese to get calcium and to add up to my required calories as it's high calorie density and easy to eat (doesn't make me too full). I can easily replace it with other high calorie stuff like peanut butter but that makes my symptoms a lot worse - cheese is one of the least triggering foods for my pain which is why I use it. Worst foods are things like carbohydrate based foods and some nuts. Meat and cheese are probably the two best foods for not triggering the nerve pain. Most other things are worse. Fruit and nuts are particularly awful in combination.

I think I'll eliminate cheese and add thiamine at separate times, only because if the symptoms reduce when doing both these things, I might not know which action caused the reduction in symptoms. But I will look into it regarding the cheese.

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Maybe if you had a Anion Gap blood test that would give you an idea of your acid levels in your body and go from there’s, just to rule things out.

 

[Jackie Garrett]

  On 3/8/2022 at 10:02 PM, HectorConvector said:

I eat cheese to get calcium and to add up to my required calories as it's high calorie density and easy to eat (doesn't make me too full). I can easily replace it with other high calorie stuff like peanut butter but that makes my symptoms a lot worse - cheese is one of the least triggering foods for my pain which is why I use it. Worst foods are things like carbohydrate based foods and some nuts. Meat and cheese are probably the two best foods for not triggering the nerve pain. Most other things are worse. Fruit and nuts are particularly awful in combination.

I think I'll eliminate cheese and add thiamine at separate times, only because if the symptoms reduce when doing both these things, I might not know which action caused the reduction in symptoms. But I will look into it regarding the cheese.

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Also I was reacting to many, many things and when I cut out the Dairy I could eat some of the other foods again that were causing me issues and my range of foods increased again.

[HectorConvector]

  On 3/8/2022 at 10:33 PM, Jackie Garrett said:

Maybe if you had a Anion Gap blood test that would give you an idea of your acid levels in your body and go from there’s, just to rule things out.

 

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Yeah I can definitely take a look at that, quite a few things to rule out still!

[Wheatwacked]

  On 3/8/2022 at 10:02 PM, HectorConvector said:

cheese is one of the least triggering foods for my pain which is why I use it.

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Trust your gut. First try the thiamine >300 mg /day, you will know in a few days. Cheese will take longer. Are you making 4700 grams of potassium a day?  What's your iodine intake?

[HectorConvector]

  On 3/9/2022 at 6:08 AM, Wheatwacked said:

Trust your gut. First try the thiamine >300 mg /day, you will know in a few days. Cheese will take longer. Are you making 4700 grams of potassium a day?  What's your iodine intake?

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I can improve my potassium a bit. I don't know what my iodine intake is like.

[knitty kitty]

  On 3/8/2022 at 7:26 PM, HectorConvector said:

FWIW, the blood sugar numbers I took last October were compared to Normal values of non-diabetics as established in this study:

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2769652/

I put these values vs. my own into a spreadsheet in the following situations. The "normo glycaemic" values from the study are on the left, mine to the right. The difference is in the right hand column. So for normal people it seems the 2hr blood sugar is not as low as fasting values, which is the lowest of the entire day, but it is slightly less than the 1 hour number. The second lowest of the day for the people in the study was the "random" value.

 

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Hi, Hector,

In a past post, you said...

"I think it's interesting that the anti-depressants were very effective for me but the anti-convulsants not at all. That should offer some sort of clue about what's going on perhaps. I'm meeting my neurologist on 24th December so I'll tell him about all this of course."

I found these articles....

"Clinical Trial Assessing the Efficacy of Gabapentin Plus B Complex (B1/B12) versus Pregabalin for Treating Painful Diabetic Neuropathy"

https://pubmed.ncbi.nlm.nih.gov/26885528/

And...

B-vitamin deficiency in patients treated with antiepileptic drugs

https://pubmed.ncbi.nlm.nih.gov/22658435/

And...

Anticonvulsant effects of thiamine on pentylenetetrazole-induced seizure in mice

https://pubmed.ncbi.nlm.nih.gov/28766407/

You also mentioned you had taken a Covid vaccination.  Here's an article explaining how vaccines can lower thiamine levels....

https://www.hormonesmatter.com/vaccination-stressor/

This article explains about blood glucose levels....

Fasting glucose levels within the high normal range predict cardiovascular outcome

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4934381/

Thanks for the clues!

P. S. Forgot one

Alcoholic neuropathy: possible mechanisms and future treatment possibilities

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3370340/

Edited March 9, 2022 by knitty kitty
Add link and information

[knitty kitty]

  On 3/7/2022 at 1:39 AM, HectorConvector said:

No, I've actually gained weight (slightly) with measurably increased muscle mass (I use a tape measure) and slightly decreased fat weight. Also, the symptoms are considerably worse the more I eat. When I gained more weight last October it was extremely bad. 

 

That's an interesting possibility (lactic acidosis). I also know that weight training in particular increases inflammation and that could have something to do with it. Any kind of inflammation makes this stuff worse.

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Thought this article might be of interest to you since you are working out...

 

The effects of endurance training and thiamine supplementation on anti-fatigue during exercise

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4241913/

[Jackie Garrett]

  On 3/9/2022 at 1:28 PM, knitty kitty said:

Hi, Hector,

In a past post, you said...

"I think it's interesting that the anti-depressants were very effective for me but the anti-convulsants not at all. That should offer some sort of clue about what's going on perhaps. I'm meeting my neurologist on 24th December so I'll tell him about all this of course."

I found these articles....

"Clinical Trial Assessing the Efficacy of Gabapentin Plus B Complex (B1/B12) versus Pregabalin for Treating Painful Diabetic Neuropathy"

https://pubmed.ncbi.nlm.nih.gov/26885528/

And...

B-vitamin deficiency in patients treated with antiepileptic drugs

https://pubmed.ncbi.nlm.nih.gov/22658435/

And...

Anticonvulsant effects of thiamine on pentylenetetrazole-induced seizure in mice

https://pubmed.ncbi.nlm.nih.gov/28766407/

You also mentioned you had taken a Covid vaccination.  Here's an article explaining how vaccines can lower thiamine levels....

https://www.hormonesmatter.com/vaccination-stressor/

This article explains about blood glucose levels....

Fasting glucose levels within the high normal range predict cardiovascular outcome

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4934381/

Thanks for the clues!

P. S. Forgot one

Alcoholic neuropathy: possible mechanisms and future treatment possibilities

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3370340/

Expand Quote  

Hi knitty kitty

I believe that when our bodies have become acidic through our diet from acid forming foods/drinks and Dairy, it reduces or stops a lot of Vitamin and mineral absorbtion in our bodies, so if Hector starts taking his Thiamine, and any other vitamin he is low in and I think if he is acidic then follow a low acid diet which is basically a low histamine diet will help him no end and in time his body will heal. An anion gap blood test may find this out. We have to look at the underlying cause of our symptoms  we are getting, and some things we are ingesting in our diet that we think should be ok like I did, was not good it was acid forming, and making me have many symptoms, so when I removed it I got well and my body started to work properly again absorbing all the vitamin I was so missing out on. It was as simple as that when I had worked it out, I wish I had worked this out years ago.

[HectorConvector]

  On 3/9/2022 at 1:28 PM, knitty kitty said:

Hi, Hector,

In a past post, you said...

"I think it's interesting that the anti-depressants were very effective for me but the anti-convulsants not at all. That should offer some sort of clue about what's going on perhaps. I'm meeting my neurologist on 24th December so I'll tell him about all this of course."

I found these articles....

"Clinical Trial Assessing the Efficacy of Gabapentin Plus B Complex (B1/B12) versus Pregabalin for Treating Painful Diabetic Neuropathy"

https://pubmed.ncbi.nlm.nih.gov/26885528/

And...

B-vitamin deficiency in patients treated with antiepileptic drugs

https://pubmed.ncbi.nlm.nih.gov/22658435/

And...

Anticonvulsant effects of thiamine on pentylenetetrazole-induced seizure in mice

https://pubmed.ncbi.nlm.nih.gov/28766407/

You also mentioned you had taken a Covid vaccination.  Here's an article explaining how vaccines can lower thiamine levels....

https://www.hormonesmatter.com/vaccination-stressor/

This article explains about blood glucose levels....

Fasting glucose levels within the high normal range predict cardiovascular outcome

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4934381/

Thanks for the clues!

P. S. Forgot one

Alcoholic neuropathy: possible mechanisms and future treatment possibilities

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3370340/

Expand Quote  

Interesting studies. I've seen the one about fasting blood sugar - my average from several days is 79mg/dl putting me in the lowest risk category, thankfully. Yeah when I was on Gabapentin it was absolutely awful, my nerve pain got very bad on that before I discovered duloxetine, which almost immediately reduced it. Regarding alcohol; I only drank that briefly last September otherwise before and after that month I am completely tee-total. I'm about to get a B1 supplement today and start taking it at 500mg a day. I'll report on any changes seen if they occur.

[HectorConvector]

Actually I've decided to start on 400mg a day for cost reasons. Still, that should be enough to make some difference if that's the problem?

[Wheatwacked]

Should be.

Growing up iodine was used as a dough modifier. Each slice was 100 mcg and a glass of milk was 100. 300 mcg per sandwich and glass of milk. The US population intake is half what it was in 1970. It was left out of the nutrition database.

The first thing I noticed when I started one sheet of nori a day was better muscle tone in my chest and shoulders. I am at 3 sheets a day of certified organic (no heavy metal)(42 mcg iodine per sheet.) Except for Nori, Algae and seaweed have too much iodine and can activate the Wolff-Chaikoff effect.

https://www.zrtlab.com/blog/archive/how-to-assess-iodine-deficiency/

Analysis of iodine content in seaweed by GC-ECD and estimation of iodine intake    https://www.sciencedirect.com/science/article/pii/S1021949814000155

Wolff-Chaikoff Effect    https://www.optimox.com/iodine-study-4

[Scott Adams]

  On 3/9/2022 at 6:08 AM, Wheatwacked said:

Trust your gut. First try the thiamine >300 mg /day, you will know in a few days. Cheese will take longer. Are you making 4700 grams of potassium a day?  What's your iodine intake?

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I just want to mention that potassium can lower you blood pressure, and I believe that high levels over a long period of time can also cause kidney issues. The blood pressure med I take include potassium, and because I take it my doctor gives me a regular blood test to monitor my kidney function.

[Wheatwacked]

Understanding the heart-healthy benefits of potassium;   https://www.heart.org/en/health-topics/high-blood-pressure/changes-you-can-make-to-manage-high-blood-pressure/how-potassium-can-help-control-high-blood-pressure

There is no upper limit for dietary potassium but some BP meds can increase hyperkalemia risk. That may be where the story about potassium causing kidney damage got started. To me it seems like the same type warning as vitamin D causing arterial calcification but few actual cases. Makes me wonder why 'they' are trying to keep our vitamin D and potassium levels low through fearmongering. Saves money on tests? One type diuretic reduces the risk of hyperkalemia by 40%.

I lowered my systolic BP from 160 to 130 by following the DV = 4700mg potassium.  Amlodipine dried my eyes so I could not wear contacts and the cough from Lisinopril caused an inguinal hernia. Deal breakers.

  Quote

In adjusted analyses, use of ACEIs at baseline was associated with a 54% increased risk for potassium >5 mEq/L ... Beta-blockers were associated with a 13% increased risk ... ARBs were associated with a 7% increased risk ,... and(HR 0loop/thiazide diuretics were associated with a 40% decreased risk .60, 95% CI: 0.57–0.62, p<0.001). Although much less frequently used, potassium-sparing diuretics were not associated with potassium >5 mEq/L.  https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4865437/

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[HectorConvector]

Update today after being on 400mg a day of Vitamin B1 supplements for just over two weeks.

So basically no improvement in symptoms, in fact in the last few days, it's getting much more frequent and severe (stabbing/crushing pains in feet, especially after meals). Also, getting terrible clammy skin especially when I've done exercise (this seems to go hand-in-hand with the burning/stabbing nerve pains). My urine smells like the Vitamin B1 tablets so I know my body is ditching the excess that it's not using and is getting enough. My energy levels are the same as usual (they were good before and still are).

[Jackie Garrett]

  On 3/25/2022 at 3:57 PM, HectorConvector said:

Update today after being on 400mg a day of Vitamin B1 supplements for just over two weeks.

So basically no improvement in symptoms, in fact in the last few days, it's getting much more frequent and severe (stabbing/crushing pains in feet, especially after meals). Also, getting terrible clammy skin especially when I've done exercise (this seems to go hand-in-hand with the burning/stabbing nerve pains). My urine smells like the Vitamin B1 tablets so I know my body is ditching the excess that it's not using and is getting enough. My energy levels are the same as usual (they were good before and still are).

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Hi Hector 

Thank you for the update, have you ever had a test to check your acid levels an (anion gap blood test)  also you say that cheese isn’t causing you a problem in your previous post, well, I didn’t connect Dairy to my symptoms it was only when I removed it from my diet that I got well, so maybe try this, there are other ways of adding calcium in your diet, it’s worth a try, my pain went, it’s acid forming in the body so when you eat/ drink Dairy you are adding more acid to probably an acidic body possibly, it’s just a thought, maybe try it for a few weeks and see how you go. It must be awful for you to have this continuous pain, an Alkaline diet may help it’s lower in histamine/ and acidic things. I’ve been there and I am now well, through Dairy avoidance and high histamine foods. Don’t give up, you’ll get there.
Jackie 

[HectorConvector]

  On 3/25/2022 at 6:38 PM, Jackie Garrett said:

Hi Hector 

Thank you for the update, have you ever had a test to check your acid levels an (anion gap blood test)  also you say that cheese isn’t causing you a problem in your previous post, well, I didn’t connect Dairy to my symptoms it was only when I removed it from my diet that I got well, so maybe try this, there are other ways of adding calcium in your diet, it’s worth a try, my pain went, it’s acid forming in the body so when you eat/ drink Dairy you are adding more acid to probably an acidic body possibly, it’s just a thought, maybe try it for a few weeks and see how you go. It must be awful for you to have this continuous pain, an Alkaline diet may help it’s lower in histamine/ and acidic things. I’ve been there and I am now well, through Dairy avoidance and high histamine foods. Don’t give up, you’ll get there.
Jackie 

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Thanks for your post. I am going to mention the anion gap blood test to my neurologist when I next see him - that will be when I have results back from an MRI scan which is still yet to happen, unfortunately quite a bit of waiting. I'm going to give the B1/Thiamine a few more weeks to see if there will be any improvement from that, then if not, I'll eliminate dairy products for some weeks and see if that helps. As for the pain itself, it comes in sudden "attacks" or paroxysms that are always alarming when they happen even though it's several times an hour. Sometimes it can be slightly longer crushing pains or short stabbing burning pains.

[knitty kitty]

  On 3/25/2022 at 3:57 PM, HectorConvector said:

Update today after being on 400mg a day of Vitamin B1 supplements for just over two weeks.

So basically no improvement in symptoms, in fact in the last few days, it's getting much more frequent and severe (stabbing/crushing pains in feet, especially after meals). Also, getting terrible clammy skin especially when I've done exercise (this seems to go hand-in-hand with the burning/stabbing nerve pains). My urine smells like the Vitamin B1 tablets so I know my body is ditching the excess that it's not using and is getting enough. My energy levels are the same as usual (they were good before and still are).

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Hector,

Thanks for the update.

Are you getting plenty of magnesium?  Thiamine needs magnesium to help it work properly.  You could try adding a magnesium citrate supplement.  

Other vitamin deficiencies involved with neuropathy include B12, B6 (pyridoxine), B3 (Niacin) and Vitamin C and the mineral Copper.

Peripheral Neuropathy Due to Vitamin Deficiency, Toxins, and Medications

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4208100/#!po=5.20833

Are you taking a B Complex supplement? 

And try cutting out the dairy! 

Mucosal reactivity to cow's milk protein in coeliac disease

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1810502/

Keep taking the thiamine.  Sometimes you feel worse before feeling better with thiamine.

 

Edited March 25, 2022 by knitty kitty
Add link and information

[HectorConvector]

  On 3/25/2022 at 8:06 PM, knitty kitty said:

Hector,

Thanks for the update.

Are you getting plenty of magnesium?  Thiamine needs magnesium to help it work properly.  You could try adding a magnesium citrate supplement.  

Other vitamin deficiencies involved with neuropathy include B12, B6 (pyridoxine), B3 (Niacin) and Vitamin C and the mineral Copper.

Peripheral Neuropathy Due to Vitamin Deficiency, Toxins, and Medications

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4208100/#!po=5.20833

Are you taking a B Complex supplement? 

And try cutting out the dairy! 

Mucosal reactivity to cow's milk protein in coeliac disease

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1810502/

Keep taking the thiamine.  Sometimes you feel worse before feeling better with thiamine.

 

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I get the recommended intake of Magnesium in my diet at the moment yeah. My financial situation is poor at the moment, so I can't buy a lot of supplements. I do take a B complex, which has 36000% RDA of B12 in it, and 1500% of B6 as well. Vit C intake is high as I supplement that as well as get it in my diet.

The cheese is going out of my diet in a few days then I'll see if anything changes after that while still taking the Thiamin/B1. 

Just a casual observation which is that with these worse pains I am also getting some tenderness in lymph nodes sometimes.

[knitty kitty]

  On 3/9/2022 at 2:17 PM, Jackie Garrett said:

Hi knitty kitty

I believe that when our bodies have become acidic through our diet from acid forming foods/drinks and Dairy, it reduces or stops a lot of Vitamin and mineral absorbtion in our bodies, so if Hector starts taking his Thiamine, and any other vitamin he is low in and I think if he is acidic then follow a low acid diet which is basically a low histamine diet will help him no end and in time his body will heal. An anion gap blood test may find this out. We have to look at the underlying cause of our symptoms  we are getting, and some things we are ingesting in our diet that we think should be ok like I did, was not good it was acid forming, and making me have many symptoms, so when I removed it I got well and my body started to work properly again absorbing all the vitamin I was so missing out on. It was as simple as that when I had worked it out, I wish I had worked this out years ago.

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Jackie,

Dairy does not make our bodies acidic.  Dairy can cause continuing inflammation because dairy can trigger the same reaction in our intestines as gluten.  Mast cells are part of the immune system.  Mast Cell Activation Syndrome is when mast cells easily release histamine.  High histamine levels make us feel ill.  Avoiding high histamine foods and following a low histamine diet helps reduce inflammation.  

Here's some elucidating reading...

Milk and acid-base balance: proposed hypothesis versus scientific evidence

https://pubmed.ncbi.nlm.nih.gov/22081694/

"Milk and dairy products neither produce acid upon metabolism nor cause metabolic acidosis, and systemic pH is not influenced by diet."

 

Mucosal reactivity to cow's milk protein in coeliac disease

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1810502/

 

Thiamine deficiency as a cause of metabolic acidosis

https://pubmed.ncbi.nlm.nih.gov/15077560/

"One of the unusual complications, a high anion gap metabolic acidosis refractory to bicarbonate therapy, occurred in one of our patients who was receiving TPN without adequate thiamine supplementation. The casual relationship between thiamine deficiency and metabolic acidosis has been well described in the literature, but remains under-recognized by many physicians."

Hope this helps! 

Knowledge is power!

 

Edited March 25, 2022 by knitty kitty
Typo correction

[Jackie Garrett]

  On 3/25/2022 at 9:02 PM, knitty kitty said:

Jackie,

Dairy does not make our bodies acidic.  Dairy can cause continuing inflammation because dairy can trigger the same reaction in our intestines as gluten.  Mast cells are part of the immune system.  Mast Cell Activation Syndrome is when mast cells easily release histamine.  High histamine levels make us feel ill.  Avoiding high histamine foods and following a low histamine diet helps reduce inflammation.  

Here's some elucidating reading...

Milk and acid-base balance: proposed hypothesis versus scientific evidence

https://pubmed.ncbi.nlm.nih.gov/22081694/

"Milk and dairy products neither produce acid upon metabolism nor cause metabolic acidosis, and systemic pH is not influenced by diet."

 

Mucosal reactivity to cow's milk protein in coeliac disease

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1810502/

 

Thiamine deficiency as a cause of metabolic acidosis

https://pubmed.ncbi.nlm.nih.gov/15077560/

"One of the unusual complications, a high anion gap metabolic acidosis refractory to bicarbonate therapy, occurred in one of our patients who was receiving TPN without adequate thiamine supplementation. The casual relationship between thiamine deficiency and metabolic acidosis has been well described in the literature, but remains under-recognized by many physicians."

Hope this helps! 

Knowledge is power!

 

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Hello Knitty kitty

 I know by consuming Milk/Dairy caused my body to become acidic, (the reaction)I think more research needs to be done on this. You are consuming Lactic acid/Lactose, I don’t always believe everything I read,  I know what happened to me and by removing the acids/  I got well. Just because something is written it doesn’t mean it is always right. I make my own judgement. When I stopped the acids in time my body  began working again. This is what needs to be looked into more. And yes supplementing at the same time with Lactose free supplements may help speed things up. I have read that dairy is an acid forming food in the body, and I agree with that because of what’s happened to me. 

[knitty kitty]

  On 3/25/2022 at 10:00 PM, Jackie Garrett said:

Hello Knitty kitty

 I know by consuming Milk/Dairy caused my body to become acidic, (the reaction)I think more research needs to be done on this. You are consuming Lactic acid/Lactose, I don’t always believe everything I read,  I know what happened to me and by removing the acids/  I got well. Just because something is written it doesn’t mean it is always right. I make my own judgement. When I stopped the acids in time my body  began working again. This is what needs to be looked into more. And yes supplementing at the same time with Lactose free supplements may help speed things up. I have read that dairy is an acid forming food in the body, and I agree with that because of what’s happened to me. 

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Jackie,

Lactose breaks down into galactose and glucose, two sugars. 

https://www.livestrong.com/article/408258-a-description-of-lactose-and-lactase-reaction/

Lactic acid can be produced by lactic acid producing bacteria when they ferment the undigested lactose in dairy.  These are the same bacteria that cause Small Intestinal Bacterial Overgrowth (SIBO).  

Our bodies need Thiamine to get rid of the lactic acid our body makes itself, and Thiamine is needed to get rid of the lactic acid the SIBO produces.  

Thiamine deficiency is found in SIBO.

https://www.eonutrition.co.uk/post/thiamine-deficiency-a-major-cause-of-sibo

And...

Severe lactic acidosis reversed by thiamine within 24 hours

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3388689/

Thiamine is the B vitamin that we can run low on first because thiamine cannot be stored for long (three weeks) and thiamine can be lost when we are suffering from vomiting or diarrhea or constipation.  The amount of Thiamine we need increases when we're sick, or under emotional or physical stress.  Thinking at a desk job can use up as much Thiamine as doing physical labor. 

So, Jackie, by eliminating dairy, we stop feeding the SIBO and the SIBO bacteria starve and beneficial bacteria take their place.  Since less Thiamine is needed to get rid of the lactic acid, there's more Thiamine available for other body organs and functions. And we feel better. 

Knowledge is the only thing you can give away and keep at the same time.  

 

[Wheatwacked]

  On 11/24/2021 at 1:23 PM, HectorConvector said:

I am however thinking back to a diet I did in 2019, in which I consumed only very easy to digest meals consisting of chicken, rice, a little bit of fruit, a few nuts, some gluten-free pasta and gluten-free bread. My peripheral nerve pain completely disappeared in three  months of eating those things every day - only time it's ever done so.

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Did you try this? Put this diet in the spreadsheet and see what pops.

Researchers found that milk from grass-fed cows had 147 percent more omega-3s than conventional milk and 52 percent more than organic milk.

By the way, a sign of iodine deficiency is reduced sweating to preserve iodine. Dairy is a source of iodine.  Grass Fed Dairy: Two birds, one stone.

"In fact, some studies suggest that elevated intakes of omega-6 fatty acids may play a role in complex regional pain syndrome."

Optimal dietary intakes of the n-6 : n-3 ratio should be around 1–4 : 1. However, according to the nutritional changes in the Western diet, this ratio has now increased to be within the range of 10 : 1 to 20 : 1 

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Thus, high intake of n-6 PUFA, along with low intakes of n-3 PUFA, shifts the physiological state to one that is proinflammatory and prothrombotic with increases in vasospasm, vasoconstriction, and blood viscosity and the development of diseases associated with these conditions.Dietary changes over the past few decades in the intake of n-6 and n-3 PUFA show striking increases in the (n-6) to (n-3) ratio (~15 : 1), which are associated with greater metabolism of the n-6 PUFA compared with n-3 PUFA. Coinciding with this increase in the ratio of (n-6) : (n-3) PUFA are increases in chronic inflammatory diseases such as nonalcoholic fatty liver disease (NAFLD), cardiovascular disease, obesity, inflammatory bowel disease (IBD), rheumatoid arthritis, and Alzheimer's disease (AD). By increasing the ratio of (n-3) : (n-6) PUFA in the Western diet, reductions may be achieved in the incidence of these chronic inflammatory diseases.   https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3335257/

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[Jackie Garrett]

  On 3/26/2022 at 5:42 AM, Wheatwacked said:

Did you try this? Put this diet in the spreadsheet and see what pops.

Researchers found that milk from grass-fed cows had 147 percent more omega-3s than conventional milk and 52 percent more than organic milk.

By the way, a sign of iodine deficiency is reduced sweating to preserve iodine. Dairy is a source of iodine.  Grass Fed Dairy: Two birds, one stone.

"In fact, some studies suggest that elevated intakes of omega-6 fatty acids may play a role in complex regional pain syndrome."

Optimal dietary intakes of the n-6 : n-3 ratio should be around 1–4 : 1. However, according to the nutritional changes in the Western diet, this ratio has now increased to be within the range of 10 : 1 to 20 : 1 

 

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  On 3/26/2022 at 5:42 AM, Wheatwacked said:

Did you try this? Put this diet in the spreadsheet and see what pops.

Researchers found that milk from grass-fed cows had 147 percent more omega-3s than conventional milk and 52 percent more than organic milk.

By the way, a sign of iodine deficiency is reduced sweating to preserve iodine. Dairy is a source of iodine.  Grass Fed Dairy: Two birds, one stone.

"In fact, some studies suggest that elevated intakes of omega-6 fatty acids may play a role in complex regional pain syndrome."

Optimal dietary intakes of the n-6 : n-3 ratio should be around 1–4 : 1. However, according to the nutritional changes in the Western diet, this ratio has now increased to be within the range of 10 : 1 to 20 : 1 

 

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Thank you both for the information, really we shouldn’t be consuming things in our bodies   that contain man made Citric acid, Lactic acid, Lactose the bacteria I believe that is causing so many, many issues with our healths, we are having a Histamine from an animal that is intended for a calf !! Hence causing our own body to have a larger amount of Histamine than it can cope with.  I think it needs to be removed from all our foods/ drinks for our own well-being, then we possibly wouldn’t have a problem with low Thiamine.

Milk/Dairy is something I really miss so much, if it can be adjusted so that it’s more digestible and doesn’t cause inflammation/pain in some people then that would be fantastic, and then a lot of us could go back to consuming it again. I look forward to that day !!