Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Terrible Neurological Symptoms


HectorConvector

Recommended Posts

Earlene Xavier Rookie
38 minutes ago, HectorConvector said:

I've heard of it, and I have thought about it before because a lot of my diet consists of meat/fish and cheese at the moment as they are less triggering for my symptoms. Maybe that's a clue already. Unlike most people I generally have to count calories to try and gain weight! I'm very thin though I'm getting 2400 calories a day, but at 6'4" my waist is only 26.5 inches measured earlier today. I guess I can slowly increase calories to correct that though if possible.

As I said earlier, with the carnivore diet you don't need to count calories or anything else, and the key is quality protein and especially healthy fat. Our bodies are smarter than we are and have an amazing ability to heal in spite of what we do to them. Once again all the best and hear is to your improved health!

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 308
  • Created
  • Last Reply

Top Posters In This Topic

  • HectorConvector

    101

  • Jackie Garrett

    67

  • Wheatwacked

    35

  • knitty kitty

    30

Top Posters In This Topic

  • HectorConvector

    HectorConvector 101 posts

  • Jackie Garrett

    Jackie Garrett 67 posts

  • Wheatwacked

    Wheatwacked 35 posts

  • knitty kitty

    knitty kitty 30 posts

Posted Images

Jackie Garrett Collaborator
On 3/28/2022 at 4:16 AM, Jackie Garrett said:

I thought this was an interesting read 

Protein Intolerance

https://www.ncbi.nlm.nih.gov/books/NBK562306/

 

Link to comment
Share on other sites
Wheatwacked Veteran

Back in 1970 this was diagnosed as Kwashiorkor, protein deficiency.

92986998_BiafraBaby.webp.ba9f1570ab6ba38af0db8ee44ebdd3da.webp

Link to comment
Share on other sites
Jackie Garrett Collaborator
1 hour ago, Wheatwacked said:

Back in 1970 this was diagnosed as Kwashiorkor, protein deficiency.

92986998_BiafraBaby.webp.ba9f1570ab6ba38af0db8ee44ebdd3da.webp

I believe the human body needs the right protein, when we have too much saturated fats in our bodies from Full fat Dairy and Red meat,  I know  the body struggles to digest these Proteins in some of us, and then we get a build up of these Proteins/acids which contain Histamines, which I now think can be the building blocks for Celiac and NCGS and many, many other Diseases of the body, (my opinion) which then causes acid build up in the blood, then we begin to have health Problems, I believe a little lean meat will not hurt now and again, but as for Full fat Dairy it will just be adding more saturated fat to our bodies causing a Lactose/ or Protein Intolerance, hence maybe a reaction to Gluten Protein and other food intolerances. When you actually look in to how much Protein we are meant to be consuming a day it really isn’t that much for our daily requirements,  previously I have had way too much Meat and Dairy throughout my life, when I cut out the Dairy my symptoms went away is that because I reduced my Protein intake, I now watch my meat intake, I think those of us who struggle with problems maybe need to reduce saturated fat Proteins, and the acids from those fats will stop the histamine reactions and people may recover,   Is it these Proteins causing the problems by us over indulging, and possibly being born with high Protein from what was ingested when we were in the womb ???? And because we regularly consume these our bodies never get a chance to deplete this excess Protein. We can get protein from so many other foods that doesn’t have all the bad fats in. We Must have Protein but the right amount and protein with the right fats, everything in moderation.
Maybe a good detox from these saturated fat Proteins will stop some of our allergies/intolerances/and other health problems  ????? Are we designed to eat saturated fats, probably not, maybe in tiny amounts that our body can cope with.

Link to comment
Share on other sites
Wheatwacked Veteran

It is not as much what we eat as what we don't eat. Most Americans do not eat enough vitamin D, iodine, choline, potassium and eat too much salt. We have high homocysteine and low B12 because we don't get enough choline, so we use folate and B12 to pick up the slack. Then to complicate matters wheat products are fortified, and gluten free processed food is not. We are told 100% RDA is enough, when it is only the minimum. According to Nhanes reports the best health benefits of choline is in the upper 10% of intakes but most Americans eat less than the minimum. Hypervitaminosis is the bogey man.  Add to that malabsorption syndrome from Celiac Disease and we are open to a whole range of symptoms. Protein, fats and carbs are the raw materials, but vitamins and minerals are the tools. Then we take foods normally higher in omega 3 and ''fix" them to increase yield and profit while increasing the omega 6 in them and causing inflammation. That's why fish oil is so popular and often effective. My question is why, all of a sudden does Celiac become active, causing all sorts of food issues. It is because we are running short on the vitamins and minerals needed to digest them and combat diseases and the industry doesn't believe there is anything wrong that one of their pills won't fix. Almost half the world population has genes for celiac disease, yet only 1% get sick.

Link to comment
Share on other sites
trents Grand Master
9 hours ago, Jackie Garrett said:

 

Good read, Jackie. Thanks.

Link to comment
Share on other sites
HectorConvector Enthusiast
14 hours ago, Jackie Garrett said:

I believe the human body needs the right protein, when we have too much saturated fats in our bodies from Full fat Dairy and Red meat,  I know  the body struggles to digest these Proteins in some of us, and then we get a build up of these Proteins/acids which contain Histamines, which I now think can be the building blocks for Celiac and NCGS and many, many other Diseases of the body, (my opinion) which then causes acid build up in the blood, then we begin to have health Problems, I believe a little lean meat will not hurt now and again, but as for Full fat Dairy it will just be adding more saturated fat to our bodies causing a Lactose/ or Protein Intolerance, hence maybe a reaction to Gluten Protein and other food intolerances. When you actually look in to how much Protein we are meant to be consuming a day it really isn’t that much for our daily requirements,  previously I have had way too much Meat and Dairy throughout my life, when I cut out the Dairy my symptoms went away is that because I reduced my Protein intake, I now watch my meat intake, I think those of us who struggle with problems maybe need to reduce saturated fat Proteins, and the acids from those fats will stop the histamine reactions and people may recover,   Is it these Proteins causing the problems by us over indulging, and possibly being born with high Protein from what was ingested when we were in the womb ???? And because we regularly consume these our bodies never get a chance to deplete this excess Protein. We can get protein from so many other foods that doesn’t have all the bad fats in. We Must have Protein but the right amount and protein with the right fats, everything in moderation.
Maybe a good detox from these saturated fat Proteins will stop some of our allergies/intolerances/and other health problems  ????? Are we designed to eat saturated fats, probably not, maybe in tiny amounts that our body can cope with.

Personally, this condition described here doesn't match my experiences, as my nerve pain became the worst ever (in late 2019) when I was eating a high carb diet, with fish as my only source of protein. I was eating a lot of gluten-free pasta, sweet potato and that sort of thing, and no dairy. My nerve pain got so bad I was almost panicking and went straight to the doctor (who was useless). I found that by dramatically reducing my carb intake and replacing everything with cheese and meat I could totally diminish the nerve pain. During 2020 I lived off almost entirely meat and cheese. During that year I was able to control it much better. I also find those things easier to digest and have much more energy than I ever did eating high carb - in fact on high carb diets I feel very cold, dizzy and tend to have no energy. In fact in the days when I used to eat a big bowl of pasta for lunch, I've often fall asleep during the afternoons. That's a thing of the past now.

Seems to me that everyone's bodies handle different foods differently. My body processes meat and dairy very well and I get my best energy from it, whereas some people do better on high plant food diets. There's no one size fits all.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jackie Garrett Collaborator
38 minutes ago, HectorConvector said:

Personally, this condition described here doesn't match my experiences, as my nerve pain became the worst ever (in late 2019) when I was eating a high carb diet, with fish as my only source of protein. I was eating a lot of gluten-free pasta, sweet potato and that sort of thing, and no dairy. My nerve pain got so bad I was almost panicking and went straight to the doctor (who was useless). I found that by dramatically reducing my carb intake and replacing everything with cheese and meat I could totally diminish the nerve pain. During 2020 I lived off almost entirely meat and cheese. During that year I was able to control it much better. I also find those things easier to digest and have much more energy than I ever did eating high carb - in fact on high carb diets I feel very cold, dizzy and tend to have no energy. In fact in the days when I used to eat a big bowl of pasta for lunch, I've often fall asleep during the afternoons. That's a thing of the past now.

Seems to me that everyone's bodies handle different foods differently. My body processes meat and dairy very well and I get my best energy from it, whereas some people do better on high plant food diets. There's no one size fits all.

It all sounds quite puzzling Hector,    Have you been tested for Diabetes or pre Diabetes, sorry you may have said in a recent post but there is rather a lot to read through !!

Link to comment
Share on other sites
HectorConvector Enthusiast
4 hours ago, Jackie Garrett said:

It all sounds quite puzzling Hector,    Have you been tested for Diabetes or pre Diabetes, sorry you may have said in a recent post but there is rather a lot to read through !!

Not only been tested by doctors every year but also conducted my own tests with blood sugar meter, never had any sign of diabetes or prediabetes, my highest blood sugar on record during normal diet is just 120mg/dl which is very low (for a max blood sugar) and the fasting is around 75mg/dl. My BG is generally lower than the population average and I have no risk factors for diabetes (Type 2 anyway) and no family history.

Link to comment
Share on other sites
Jackie Garrett Collaborator
14 hours ago, HectorConvector said:

Not only been tested by doctors every year but also conducted my own tests with blood sugar meter, never had any sign of diabetes or prediabetes, my highest blood sugar on record during normal diet is just 120mg/dl which is very low (for a max blood sugar) and the fasting is around 75mg/dl. My BG is generally lower than the population average and I have no risk factors for diabetes (Type 2 anyway) and no family history.

I would suggest to try a low histamine diet, and why I say that is because my Dairy and Lactose from my meds intake was the invisible cause of my histamine pain it’s worth a try, I know you said you have no problems with Dairy, I never connected it either, it’s the Histamine build up from It and other high Histamine foods, I know it’s hard to give up I found it incredibly hard but my pain went when the build up of histamine from Dairy and things that dairy byproducts are used in Lactose Starter Culture’s, preservatives some fermented things, it’s used in so much nowadays and it’s not helping our healths, Hector I know you don’t want to give these up but I believe you have an accumulation of Histamine in your body that needs to be lowered, you have the same symptoms I had, it’s worth a try maybe, I know I sound persistent in what I’m saying but I really, really believe it will help you, i am not sure how long it will take but you will have to give it time, if you are on meds you need to change to Lactose free as this will raise levels too, I will not say anymore on this subject to you, but I really think this is not helping your pain, we can’t see histamine it’s invisible, it’s the reactions we get from it when we have a build up that does the damage, so the Cheese and any Dairy you are consuming will keep adding more Histamine to your body and that I believe is causing your pain. If your not getting better maybe try this as a last resort !!! All the best Hector I hope you get there soon.

Link to comment
Share on other sites
Jackie Garrett Collaborator
On 3/30/2022 at 10:38 PM, Earlene Xavier said:

As I said earlier, with the carnivore diet you don't need to count calories or anything else, and the key is quality protein and especially healthy fat. Our bodies are smarter than we are and have an amazing ability to heal in spite of what we do to them. Once again all the best and hear is to your improved health!

https://jasn.asnjournals.org/content/31/8/1667

Link to comment
Share on other sites
HectorConvector Enthusiast
4 hours ago, Jackie Garrett said:

I would suggest to try a low histamine diet, and why I say that is because my Dairy and Lactose from my meds intake was the invisible cause of my histamine pain it’s worth a try, I know you said you have no problems with Dairy, I never connected it either, it’s the Histamine build up from It and other high Histamine foods, I know it’s hard to give up I found it incredibly hard but my pain went when the build up of histamine from Dairy and things that dairy byproducts are used in Lactose Starter Culture’s, preservatives some fermented things, it’s used in so much nowadays and it’s not helping our healths, Hector I know you don’t want to give these up but I believe you have an accumulation of Histamine in your body that needs to be lowered, you have the same symptoms I had, it’s worth a try maybe, I know I sound persistent in what I’m saying but I really, really believe it will help you, i am not sure how long it will take but you will have to give it time, if you are on meds you need to change to Lactose free as this will raise levels too, I will not say anymore on this subject to you, but I really think this is not helping your pain, we can’t see histamine it’s invisible, it’s the reactions we get from it when we have a build up that does the damage, so the Cheese and any Dairy you are consuming will keep adding more Histamine to your body and that I believe is causing your pain. If your not getting better maybe try this as a last resort !!! All the best Hector I hope you get there soon.

I have no problem stopping dairy product (I have cheese once a day at the moment) if I can find something equally calorific to replace it with which doesn't trigger my symptoms. When I've used what cheese I already have I'll do 1 month without it and see if there's any difference.

Link to comment
Share on other sites
Wheatwacked Veteran

"A healthy diet should consist of roughly one to four times more omega-6 than omega-3 fatty acids.[1] On average, the omega-6:3 ratio for grass-fed cattle is 2:1, while the ratio for grain-fed cattle is 9:1."  Carcass Characteristics, Meat Quality and Fatty Acid Composition of 100% Grass-Fed Beef

 

Link to comment
Share on other sites
Wheatwacked Veteran

Beans would be about equal to cheese for calories.

Nutrition for Kidney Beans

"Well, omega-6 and omega-3, stars of the polyunsaturated fatty acids, play countering roles, with omega 6 helping to provide inflammation and blood-clotting, such as in the treatment of wounds, while omega-3 reduces inflammation and is an anti-coagulant"    Plant-Based Foods With the Highest Omega-3 Fatty Acids

Link to comment
Share on other sites
HectorConvector Enthusiast

What about peanut butter, that doesn't cause me issues I'm aware of. The link with kidney beans shows I'd have to eat 300g to get 400 calories that I get from 100g of mild cheddar. I don't have any problems eating them however but perhaps not that much. 

I'm making sure to get some decent omega-3 with fish every day (usually at lunch time). 

To get more of an idea about how different foods affect my symptoms; today I ate more carbs than usual in the afternoon, and unlike when I eat dairy/meat/low carb foods, I quickly felt dizzy, lightheaded, strong nausea, sweat a lot even when it's cold, and the nerve pain becomes sharp and stabby rather than mild. This is why I generally avoid much carbs, for these reasons.

Link to comment
Share on other sites
Jackie Garrett Collaborator
On 4/2/2022 at 2:09 AM, Wheatwacked said:

It is not as much what we eat as what we don't eat. Most Americans do not eat enough vitamin D, iodine, choline, potassium and eat too much salt. We have high homocysteine and low B12 because we don't get enough choline, so we use folate and B12 to pick up the slack. Then to complicate matters wheat products are fortified, and gluten free processed food is not. We are told 100% RDA is enough, when it is only the minimum. According to Nhanes reports the best health benefits of choline is in the upper 10% of intakes but most Americans eat less than the minimum. Hypervitaminosis is the bogey man.  Add to that malabsorption syndrome from Celiac Disease and we are open to a whole range of symptoms. Protein, fats and carbs are the raw materials, but vitamins and minerals are the tools. Then we take foods normally higher in omega 3 and ''fix" them to increase yield and profit while increasing the omega 6 in them and causing inflammation. That's why fish oil is so popular and often effective. My question is why, all of a sudden does Celiac become active, causing all sorts of food issues. It is because we are running short on the vitamins and minerals needed to digest them and combat diseases and the industry doesn't believe there is anything wrong that one of their pills won't fix. Almost half the world population has genes for celiac disease, yet only 1% get sick.

When the  body becomes acidic through acid forming foods and drinks, I believe makes it vitamin deficient, as it is trying to balance the ph all the time. Less of the wrong acids and more Alkaline foods with the right balance of good acids containing the right vitamins  a happier microbiome and healthier body.

Link to comment
Share on other sites
Jackie Garrett Collaborator
3 hours ago, HectorConvector said:

What about peanut butter, that doesn't cause me issues I'm aware of. The link with kidney beans shows I'd have to eat 300g to get 400 calories that I get from 100g of mild cheddar. I don't have any problems eating them however but perhaps not that much. 

I'm making sure to get some decent omega-3 with fish every day (usually at lunch time). 

To get more of an idea about how different foods affect my symptoms; today I ate more carbs than usual in the afternoon, and unlike when I eat dairy/meat/low carb foods, I quickly felt dizzy, lightheaded, strong nausea, sweat a lot even when it's cold, and the nerve pain becomes sharp and stabby rather than mild. This is why I generally avoid much carbs, for these reasons.

Hector 

what sort of carbs are you eating, also what sort of fish, do you have vinegar at all ? 
 

Link to comment
Share on other sites
HectorConvector Enthusiast
2 hours ago, Jackie Garrett said:

Hector 

what sort of carbs are you eating, also what sort of fish, do you have vinegar at all ? 
 

Today in the afternoon (between my two meals which are mostly fat/protein) I had a miniature apple pie and a few tortilla chips (all gluten free ones of course), this kind of thing I have once per week.. total calories, about 300. Total daily calories about 2000 today. 

Those things are once weekly only otherwise the only carbs I eat are fruit and vegetables.

When I have fish at lunch I usually prefer mackerel, and no I don't have any vinegar ever. 

Link to comment
Share on other sites
Jackie Garrett Collaborator
6 hours ago, HectorConvector said:

Today in the afternoon (between my two meals which are mostly fat/protein) I had a miniature apple pie and a few tortilla chips (all gluten free ones of course), this kind of thing I have once per week.. total calories, about 300. Total daily calories about 2000 today. 

Those things are once weekly only otherwise the only carbs I eat are fruit and vegetables.

When I have fish at lunch I usually prefer mackerel, and no I don't have any vinegar ever. 

I was just wondering if it was Cod as I have trouble with Cod as it’s higher in histamine/ protein, I am ok with Mackerel in olive oil the tinned one  funnily enough, it’s only a small portion, Salmon is very good for us too. I can’t eat things like Tortilla chips or  shop bought cakes (junk food is bad)as it will have a lot of preservatives in. Maybe swap chips for a few  nuts, you  mentioned that your two meals were fat protein are they animal fat proteins like Dairy and Red meat ? I know you say don’t react to them but this could be your invisible cause like it was with me, and it may be damaging your kidneys/ liver and affecting your microbiome and possibly making you acidic, and causing you pain through inflammation ( I call it Histamine pain ) I have fatty liver probably caused by the inability to process the fats thinking back( I don’t know if it is still fatty after I have changed my diet) what I did  was to remove all Dairy and that sorted all my symptoms, give it enough time to work a month may not be long enough who knows, there are alternatives like Almond drinks etc, different at first but I got used to it, cut red meat back and only a small portion that we are meant to eat, eat more white meat like chicken or Turkey and only the right quantities and not too often in the week as if it is protein overload causing histamine reactions then we have to change a few things and swap them for non saturated fat proteins so you are still getting protein, I handle white meat better than red, but if your body is reacting to protein it will all have to be limited and I had to stop all dairy, it is a big diet life change that wasn’t easy to do and I do miss it but I am getting use to it now my health is back !! Make sure you are getting your proteins in another way and they are non saturated, also you need your calcium from another source to meet your body requirements, it may be a good idea to speak to a nutritionist for some advice. In time Hector when your proteins in your body are lower IF THIS IS YOUR PROBLEM, you may be able to get away with some things on the odd occasion as long as your levels don’t go over and give you pain. The actual Dairy I can’t go back to I keep my red meat intake small. Keeping your diet varied as you can. Hector this may not be your problem but it maybe, Drs are good people but they never suggested that it could be Dairy or high histamine levels in all the years, maybe they  are not trained enough in this area it may not be their fault,  I found out myself, which I am so glad I did but annoyed that it wasn’t ever suggested to try because I could have been well years ago, but I am now, and am so grateful to be well.  All the best.

 

Link to comment
Share on other sites
HectorConvector Enthusiast
9 hours ago, Jackie Garrett said:

I was just wondering if it was Cod as I have trouble with Cod as it’s higher in histamine/ protein, I am ok with Mackerel in olive oil the tinned one  funnily enough, it’s only a small portion, Salmon is very good for us too. I can’t eat things like Tortilla chips or  shop bought cakes (junk food is bad)as it will have a lot of preservatives in. Maybe swap chips for a few  nuts, you  mentioned that your two meals were fat protein are they animal fat proteins like Dairy and Red meat ? I know you say don’t react to them but this could be your invisible cause like it was with me, and it may be damaging your kidneys/ liver and affecting your microbiome and possibly making you acidic, and causing you pain through inflammation ( I call it Histamine pain ) I have fatty liver probably caused by the inability to process the fats thinking back( I don’t know if it is still fatty after I have changed my diet) what I did  was to remove all Dairy and that sorted all my symptoms, give it enough time to work a month may not be long enough who knows, there are alternatives like Almond drinks etc, different at first but I got used to it, cut red meat back and only a small portion that we are meant to eat, eat more white meat like chicken or Turkey and only the right quantities and not too often in the week as if it is protein overload causing histamine reactions then we have to change a few things and swap them for non saturated fat proteins so you are still getting protein, I handle white meat better than red, but if your body is reacting to protein it will all have to be limited and I had to stop all dairy, it is a big diet life change that wasn’t easy to do and I do miss it but I am getting use to it now my health is back !! Make sure you are getting your proteins in another way and they are non saturated, also you need your calcium from another source to meet your body requirements, it may be a good idea to speak to a nutritionist for some advice. In time Hector when your proteins in your body are lower IF THIS IS YOUR PROBLEM, you may be able to get away with some things on the odd occasion as long as your levels don’t go over and give you pain. The actual Dairy I can’t go back to I keep my red meat intake small. Keeping your diet varied as you can. Hector this may not be your problem but it maybe, Drs are good people but they never suggested that it could be Dairy or high histamine levels in all the years, maybe they  are not trained enough in this area it may not be their fault,  I found out myself, which I am so glad I did but annoyed that it wasn’t ever suggested to try because I could have been well years ago, but I am now, and am so grateful to be well.  All the best.

 

Funny that when I had the worst neuropathy ever I was eating quite a lot of salmon. At the time I wondered if I might have had mercury poisoning or something. 

On the matter of the apple pie thing, that is just a once weekly or less thing for me, so I don't have any sort of junk food regularly, and eating much of anything carby including fruit induces similar symptoms.  The other two meals I have, includes nuts, fish (such as mackerel), peanut butter, and in the evening yes I do eat lean red meat, and either cheese or peanut butter (also there are vegetables of course). As I said, I'm going to do a few weeks without the cheese and see if there's any difference to any of this. 

On the matter of liver and kidneys, nothing in my blood tests has shown any problems with these, well according to what the doctor has relayed to me. I know that among my blood tests last year they did an inflammation test (sorry, don't know what it was called), and I had low inflammation markers, so no sign of any raised inflammation at least according to that. I believe my diet then was mostly meat, peanut butter/nuts, and vegetables FWIW. I was also eating various cheeses IIRC. 

Thing with eating protein, is for me at least it helps to keep my weight up, through maintaining muscle mass, otherwise I tend to be very underweight. So I'm 6'4". and when I was 19, before being diagnosed with celiac disease, I weighed 126lbs. Now I am about 145lbs, which is about as high as I can sustain right now. Thing is if I reduce proteins much and am not feeling good with more than 100g of carbs, where are the calories gonna come from? I can't really afford to lose muscle mass. I also don't store body fat properly so my percentage is less than 10% and that's as much as it gets due some reason. I sometimes wondered if that's related to my carb intolerance. 

Perhaps I do have an invisible cause of the symptoms related to protein, but my own experiences have not thus far correlated with this - in October 2020, I spent an entire month cutting out red meat and dairy but my foot pain symptoms became more persistent with hot burning pains at night especially. Maybe there was some kind of latent effect, I really don't know. Just at the moment, identifying what's happening here seems like a lot of trial and error to rule out various things, maybe I'll never know. 

Link to comment
Share on other sites
trents Grand Master

Protein is an essential macro nutrient. If you have a problem with protein it would be a specific kind of protein or proteins. The only people who need to go on a low protein diet are those with kidney disease. Otherwise, with your diet as restricted as it is you need to keep your protein up but identify any particular proteins that may be causing you problems.

Link to comment
Share on other sites
knitty kitty Grand Master

@HectorConvector,

Are you eating fresh fish or canned fish?  Canned fish as well as smoked fish and all kinds of crustaceans have high levels of histamine.  You might try fresh or frozen fish.  

Do cut out the dairy.

Did the Apple pie have High Fructose Corn Syrup?  Fructose malabsorption can cause problems.  

Make sure you are getting plenty of Omega Three fats.  Flaxseed oil and olive oil are good sources.

Have you tried bumping up your thiamine supplement intake to 500 mg/day?  You're a big guy, 300 mg/day may not be enough.

Link to comment
Share on other sites
Jackie Garrett Collaborator
1 hour ago, HectorConvector said:

Funny that when I had the worst neuropathy ever I was eating quite a lot of salmon. At the time I wondered if I might have had mercury poisoning or something. 

On the matter of the apple pie thing, that is just a once weekly or less thing for me, so I don't have any sort of junk food regularly, and eating much of anything carby including fruit induces similar symptoms.  The other two meals I have, includes nuts, fish (such as mackerel), peanut butter, and in the evening yes I do eat lean red meat, and either cheese or peanut butter (also there are vegetables of course). As I said, I'm going to do a few weeks without the cheese and see if there's any difference to any of this. 

On the matter of liver and kidneys, nothing in my blood tests has shown any problems with these, well according to what the doctor has relayed to me. I know that among my blood tests last year they did an inflammation test (sorry, don't know what it was called), and I had low inflammation markers, so no sign of any raised inflammation at least according to that. I believe my diet then was mostly meat, peanut butter/nuts, and vegetables FWIW. I was also eating various cheeses IIRC. 

Thing with eating protein, is for me at least it helps to keep my weight up, through maintaining muscle mass, otherwise I tend to be very underweight. So I'm 6'4". and when I was 19, before being diagnosed with celiac disease, I weighed 126lbs. Now I am about 145lbs, which is about as high as I can sustain right now. Thing is if I reduce proteins much and am not feeling good with more than 100g of carbs, where are the calories gonna come from? I can't really afford to lose muscle mass. I also don't store body fat properly so my percentage is less than 10% and that's as much as it gets due some reason. I sometimes wondered if that's related to my carb intolerance. 

Perhaps I do have an invisible cause of the symptoms related to protein, but my own experiences have not thus far correlated with this - in October 2020, I spent an entire month cutting out red meat and dairy but my foot pain symptoms became more persistent with hot burning pains at night especially. Maybe there was some kind of latent effect, I really don't know. Just at the moment, identifying what's happening here seems like a lot of trial and error to rule out various things, maybe I'll never know. 

It could be the Cheese may be tipping your levels over the edge, try it and see, it has lactic acid in, a lot of people get trouble with Cheese.

Link to comment
Share on other sites
HectorConvector Enthusiast
48 minutes ago, knitty kitty said:

@HectorConvector,

Are you eating fresh fish or canned fish?  Canned fish as well as smoked fish and all kinds of crustaceans have high levels of histamine.  You might try fresh or frozen fish.  

Do cut out the dairy.

Did the Apple pie have High Fructose Corn Syrup?  Fructose malabsorption can cause problems.  

Make sure you are getting plenty of Omega Three fats.  Flaxseed oil and olive oil are good sources.

Have you tried bumping up your thiamine supplement intake to 500 mg/day?  You're a big guy, 300 mg/day may not be enough.

The fish was not canned, no.

The apple pie doesn't use HFCS, we don't use that in the UK generally speaking. I have rapeseed oil, due to it being cheaper than olive oil. Think that's OK for omega 3? Also get it from the fish each day. 

Still taking 400mg/day of thiamine, but I can't afford to take a higher dose at the moment.

2 minutes ago, Jackie Garrett said:

It could be the Cheese may be tipping your levels over the edge, try it and see, it has lactic acid in, a lot of people get trouble with Cheese.

Yeah could be, after finishing this last bit of cheese I'm going to replace it with something else (PB probably) and see how that goes.

Link to comment
Share on other sites
Scott Adams Grand Master
21 hours ago, Jackie Garrett said:

When the  body becomes acidic through acid forming foods and drinks, I believe makes it vitamin deficient, as it is trying to balance the ph all the time. Less of the wrong acids and more Alkaline foods with the right balance of good acids containing the right vitamins  a happier microbiome and healthier body.

Do you have some sort of supporting links for this theory? Please include some scientific studies to back up such broad claims.

Link to comment
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

×
×
  • Create New...