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Blister rash hands and feet

Natalie youds

By Natalie youds
in Dermatitis Herpetiformis

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Natalie youds Newbie
Natalie youds
Posted

Has anyone had a blister type rash with celiac? 

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trents Grand Master
trents
Posted

Could be dermatitis herpetiformis ("DH") which is a classic expression of celiac disease and which has no other known cause.

AMessenger Newbie
AMessenger
Posted
4 hours ago, Natalie youds said:

Has anyone had a blister type rash with celiac? 

Yes!! had it earlier this year (thought it was hives, lasted over 2 weeks) along with numerous other things (stye in my eye, athletes foot) that I had NEVER had before in my life.  Explains a lot.

trents Grand Master
trents
Posted

Have you been tested for DH or celiac disease and have you been confirmed to have either by formal diagnosis?

Natalie youds Newbie
Natalie youds
Posted
  • Author

I have been diagnosed with celiac disease yes.

trents Grand Master
trents
Posted
5 hours ago, Natalie youds said:

I have been diagnosed with celiac disease yes.

Are you following a strict gluten free diet?

Cbf Newbie
Cbf
Posted
On 11/21/2021 at 1:53 PM, Natalie youds said:

Has anyone had a blister type rash with celiac? 

I’ve had that reaction, but it is from sugar for me

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Natalie youds Newbie
Natalie youds
Posted
  • Author

I am following a gluten free diet yes.  I was thinking maybe I am lacking in vitamins I was very low on Vitamin d when I got diagnosed.  

Scott Adams Grand Master
Scott Adams
Posted

Vitamin and mineral deficiencies are very common, especially in those who are newly diagnosed. Are you taking supplements that include a B Complex, as well as D? Have you had your levels re-checked? 

knitty kitty Grand Master
knitty kitty
Posted

@Natalie youds,

"Blister rash hands and feet"  

Could you describe your rash a little more?  

Have you compared your rash to pictures of DH? 

Is the rash on the top of your hands and feet or on your plans and soles of your feet?  

Does the rash get worse when exposed to the sun? 

 

Cbf Newbie
Cbf
Posted
38 minutes ago, knitty kitty said:

@Natalie youds,

"Blister rash hands and feet"  

Could you describe your rash a little more?  

Have you compared your rash to pictures of DH? 

Is the rash on the top of your hands and feet or on your plans and soles of your feet?  

Does the rash get worse when exposed to the sun? 

 

I used to get blisters on my fingers, that itch, and extremely itchy fingers after exposure to sugar.  Then the skin dries out and breaks open into sores... this part can last up to months, depending on how much sugar or over what period of time. I still get this today if I am inadvertently exposed to sugar.

Lola21 Newbie
Lola21
Posted

Yes. Mine was weird though because it did not present itself above the skin. It felt more like I was walking on blistered skin but the blisters were not visible and went away after a day. 

Kate333 Rising Star
Kate333
Posted

Sometimes people with celiac disease (and other diseases) get eye styes and athlete's foot

On 11/21/2021 at 4:00 PM, AMessenger said:

Yes!! had it earlier this year (thought it was hives, lasted over 2 weeks) along with numerous other things (stye in my eye, athletes foot) that I had NEVER had before in my life.  Explains a lot.

No offense intended but I wouldn't be so quick to blame eye styes and AF on celiac disease.  Not every medical problem in life is related to celiac disease.  Sometimes "stuff" just happens unrelated to celiac disease.   Esp. styes and AF which happen to so many people ALL. THE. TIME.   Sometimes, things are just a coincidence and happen after diagnosis with celiac disease.   

CeCe22 Explorer
CeCe22
Posted
On 11/23/2021 at 10:31 AM, Cbf said:

I’ve had that reaction, but it is from sugar for me

Yes been diagnosed with dermatitis Herpetiformis. When I eat gluten or get cross contaminated I break out with very itchy rash. 

  • 4 weeks later...
AMessenger Newbie
AMessenger
Posted
On 11/25/2021 at 6:34 PM, Kate333 said:

Sometimes people with celiac disease (and other diseases) get eye styes and athlete's foot

No offense intended but I wouldn't be so quick to blame eye styes and AF on celiac disease.  Not every medical problem in life is related to celiac disease.  Sometimes "stuff" just happens unrelated to celiac disease.   Esp. styes and AF which happen to so many people ALL. THE. TIME.   Sometimes, things are just a coincidence and happen after diagnosis with celiac disease.   

true, and very possible...it's just that all these things happened in the months leading up to diagnosis...had never happened prior and has not happened since I went gluten free

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      Oh yes.  I would never recommend taking it for an extended period of time.  When 70% of my body was covered in blistering itchy sores, an amazing doctor prescribed it diagnostically because I was unwilling to do a gluten challenge after already going strictly gluten-free in desperation after 10 years of suffering and being poo pooed by dermatologist after dermatologist. The fact that it stopped the itch and mostly cleared the rash after about 2 months was diagnostic for him.  I stopped it and have remained strictly gluten-free with very few flares since that time (over 10 years ago).  So the fact that it cleared the rash was diagnostic for me.     
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