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Prolia

Phyllis Ann

By Phyllis Ann
in Related Issues & Disorders

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Phyllis Ann Newbie
Phyllis Ann
Posted

My primary physician has requested twice that I try Prolia. I backed out the first time because I just was not comfortable with the drug. I also have low blood pressure and TMJ. She is usually very attentive to detail but has not run any blood work, did not examine my jaw. I’m very concerned about starting treatment but am afraid of losing my doctor also. She does listen but in this instance I think more research needs to be done before jumping into to see if it works. Have any of you tried it? We have signed up to a gym. We walk almost daily and I do use weights occasionally. Need to up my game. Thank you.

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trents Grand Master
trents
Posted

Do you have diagnosed celiac disease?

Scott Adams Grand Master
Scott Adams
Posted

Welcome the forum, and I had the same question as @trents, and if the answer is yes, can we assume that you had a bone density test and have possibly been diagnosed with osteoporosis or something similar? 

Of course your doctor knows much more than we do at this point, and there must be a good reason why they prescribed Prolia.

Phyllis Ann Newbie
Phyllis Ann
Posted
  • Author
8 hours ago, trents said:

Do you have diagnosed celiac disease?

Yes, I do. Her office just called and said that it is very, very rare to have problems with TMJ with the Prolia. I was just checking to see if anyone else was on Prolia or knew anything about it. Thank you for your reply. 😊

Wheatwacked Veteran
Wheatwacked
Posted

I had TMJ for a number of years. Eventually it went away. To be honest, I don't know why but suspect it was the Standard American Diet.  Once you start Prolia it is dangerous to ever stop.

Can Supplements Help Manage or Prevent Osteoporosis?   https://www.healthline.com/nutrition/osteoporosis-supplements

Quote

People with weakened immune systems are advised not to use to denosumab because it can lead to serious infections that require hospitalization (such as heart infections). It can also cause disintegration of the jaw, called osteonecrosis, and atypical femur fractures...The NWHN [National Womens Health Network] is concerned that for most postmenopausal women, the benefit of denosumab does not outweigh the risks. We recommend that women seeking osteoporosis treatment approach denosumab with caution. https://nwhn.org/is-it-dangerous-to-stop-prolia/

Phyllis Ann Newbie
Phyllis Ann
Posted
  • Author

Thank you for this information. It never set well with me - just the thought of it. I never found this information and I thank you for sharing it with me.

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    • kopiq
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    • trents
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