Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac in college dorms


bugg

Recommended Posts

bugg Newbie

To give a little bit of an overview, I was diagnosed with Celiac back when I was about 8 years old (a little over a decade ago), but I most likely had it much longer. I struggled in school before my diagnosis, I would refuse to eat school lunches, one bite and I would feel terribly sick within minutes, headaches, nausea, and overall just ickiness. Teachers and school nurses thought I was just a picky eater, and they would force me to finish my food or I would get put out of recess, and many times I was forced to sit alone at lunch so they could "monitor me". Luckily my mom is also a celiac, and she decided to get me tested. I wouldn't say my reaction to gluten is as severe as I've seen it for others, but it's enough to ruin a good 3-4 days of my week, however I can get pretty sick just using an already washed dish that's had gluten on it before. I'm in my second year of college, and this year (2021) is my first year in the dorms. It's been terrible. Using the same sink, roommates not washing their dishes and leaving ramen or crumbs on my dishes has been a struggle. I'm throwing out and using a new sponge almost every week because of the cross contamination. I've sat down with my roomates before to talk about cross contamination but it really hasn't done much. I've been getting headaches, my body overall has just been heavy and sore, I'm struggling to get out this lethargic slump, sharp pain in my stomach, gas (embarrassing, but what can I do?), vomiting at odd hours of the day and night, lack of appetite, and worst of all has been the brain fog. I find it hard to retain information or study effectively at all. I'm not sure what to do, I attend a small school way up north in Canada, so there isn't much availability in terms of groceries, restaurants, or delivery. Has anyone else had to go through something like this? I'm coming to terms that avoiding gluten all together might not be possible, but if there's any way to limit it that would be more than amazing. 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



trents Grand Master

Welcome to the forum, bugg!

What about buying your own cookware and utensils, cleaning paraphernalia, etc and keeping those sequestered in a footlocker or something?

There is also a product called GliadinX which is designed to neutralize small amounts of gluten such as you get from cross contamination. GliadinX is one of our sponsors here. Some people find it really helps.

ravenwoodglass Mentor

I would suggest using disposable plates and cutlery if possible (even though I detest them) to cut down on what has to be washed.  If you can cook there get a box or tote to keep your small supply of pans and other stuff like can openers and a toaster out of reach of your roommates. If you have to share a fridge use a bag of some sort to put your own stuff like mayo, cheese etc. seperate and out of sight. You are in a tough spot and it wouldn't hurt to talk to your advisor to see if you can get a room by yourself for medical reasons or permission to live off campus.

UncertainTea Newbie

I agree about the paper plates, if you guys use the same cooking ware just make sure to really clear it for crumbs etc. I live with people who are non Celiac and don't think about cross contamination so I make sure that their food never touches mines. If you use a microwave make sure to cover your stuff up in a paper towel so their gluten won't get into your food. Also if you have some gluten free bread and a toaster you can use a toaster bag so your gluten free bread won't touch the regular bread.  For the not washing the dishes personally I wouldn't wash theirs, I would only wash my own and create a nice corner where I have my food supplies etc. and they have theirs. Maybe you can get like a portable sink? And a mini refrigerator separate from theirs? Also I agree with the person above me all great points, if you can maybe you can try to get a dorm by yourself or at least with more understanding and mature roommates. 

  • 4 months later...
lilyvance21 Newbie

I have the same problem.. I am just cooking myself and using paper plates.

lilyvance21 Newbie

By the way, I don't know how are you guys feeling at college.. but for me its just awful. I have this celiac problem, and that's not all. Everyone is just bullying me at college. Moreover, the teachers don't like me, I feel discriminated. I have recently bought an essay about mental health from https://studydriver.com/mental-health/ and the teacher refused to give a high grade. But, as you can understand, the essay was perfect. I'm just so tired of this college.. do you guys have any advice how to get over it ..?

bugg Newbie
3 minutes ago, lilyvance21 said:

By the way, I don't know how are you guys feeling at college.. but for me its just awful. I have this celiac problem, and that's not all. Everyone is just bullying me at college. Moreover, the teachers don't like me, I feel discriminated. I have recently bought an essay about mental health from https://studydriver.com/mental-health/ and the teacher refused to give a high grade. But, as you can understand, the essay was perfect. I'm just so tired of this college.. do you guys have any advice how to get over it ..?

Just a few questions if you're alright with answering. Are you attending a more rural or city centered school? As for the bullying, do you have the option to look into other schools, is there a counseling option provided by the school? If you know and feel like you're not being graded on the objective quality of your work, but rather with the teacher's bias, you should definitely bring it up to the school board. Keep your work, your teacher's feedback, and any emails or statements that were made. 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



trents Grand Master
15 minutes ago, lilyvance21 said:

By the way, I don't know how are you guys feeling at college.. but for me its just awful. I have this celiac problem, and that's not all. Everyone is just bullying me at college. Moreover, the teachers don't like me, I feel discriminated. I have recently bought an essay about mental health from https://studydriver.com/mental-health/ and the teacher refused to give a high grade. But, as you can understand, the essay was perfect. I'm just so tired of this college.. do you guys have any advice how to get over it ..?

You "bought" and essay and turned it in as your own work?

knitty kitty Grand Master

Yah, @trents, I'm flabbergasted, too.  

@lilyvance21,

You bought an essay???!!!???

You are shortchanging yourself on your education.  

In my day, turning in work that was done by someone else was grounds for expulsion.

Learn how to learn.

You would be much better off learning HOW to do research and how to write papers. 

 

bugg Newbie

@trents @lilyvance21

I just noticed where it was mentioned they bought their essay. I completely misread it as they "wrote" it. Yikes... Buying premade content for submission and assignments can get you expelled as @knitty kitty mentioned. At my university if you're caught buying or selling material you're made to immediately withdrawal from your program. It might have a good idea to initiate a conversation with your teacher about ways to improve in the class, I'm sure your professor knows it was not your own work. Most of the time purchased essays and projects are not up to par with normal class standards. GoodLuck... 

 

 

 

 

lilyvance21 Newbie

Yes, guys. I bought that essay, because my teacher was always angry and giving me low grades..

trents Grand Master
21 hours ago, lilyvance21 said:

By the way, I don't know how are you guys feeling at college.. but for me its just awful. I have this celiac problem, and that's not all. Everyone is just bullying me at college. Moreover, the teachers don't like me, I feel discriminated. I have recently bought an essay about mental health from https://studydriver.com/mental-health/ and the teacher refused to give a high grade. But, as you can understand, the essay was perfect. I'm just so tired of this college.. do you guys have any advice how to get over it ..?

Why are people bullying you? Why do you think a different college would change the way teachers and students treat you? So, you bought this essay on mental health. Are you yourself struggling with mental health issues? Are you currently receiving counseling?

knitty kitty Grand Master
3 hours ago, lilyvance21 said:

Yes, guys. I bought that essay, because my teacher was always angry and giving me low grades..

Lily,

Can you give us examples of the assignments you were given?

What's your major?

Why are you taking this class?

areed Newbie

I have faced very similar complaints! I tested positive for Celiac about a month ago. I am a sophomore in college. I made gluten "rules" to my roommates and have communicated many times about the problems with cross contamination. It lasted maybe a week. 

I would consider hiding all of your cookware so that there is no risk cross contamination. Although it sucks, hand wash EVERYTHING. Also get your own sponges and dish clothes as the particle can carry there. Make sure your food is kept in a locked container and encourage everyone to wipe off counters after making food. 

Also, I don't know if alcohol is a part of your college routine but make sure you are checking online. Even some alcohol which claims it is gluten free is not due to issues with the distillation process. 

Brain fog in college is impossible. I got glutened this morning and have been unable to study for my huge test tomorrow. The best advice I can give is communicate with your professors and groupmates when you are too sick to work on an assignment or come to class. 

Although it is nearly impossible to avoid gluten in college and with roommates, see what you can do to keep your things separate. Maybe communicate with your roommates what happens when you get sick. Most empathetic people will at least initially make more of an effort. Good luck!

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,927
    • Most Online (within 30 mins)
      7,748

    DoraN
    Newest Member
    DoraN
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.5k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      The first set of results show two positive results for celiac disease, so at the very least it looks like you could have it, or at the least NCGS.   Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.      
    • Scott Adams
      Elevated tissue transglutaminase IgA (tTG-IgA) levels are highly specific for celiac disease, and they are a key biomarker used in its diagnosis. However, there are some rare instances where elevated tTG-IgA levels have been reported in conditions other than celiac disease. While these cases are not common, they have been documented in the literature. Below are some examples and references to studies or reviews that discuss these scenarios:  1. Non-Celiac Gluten Sensitivity (NCGS)    - NCGS typically does not cause elevated tTG-IgA levels, as it is not an autoimmune condition. However, some individuals with NCGS may have mild elevations in tTG-IgA due to intestinal inflammation or other factors, though this is not well-documented in large studies.    - Reference: Catassi, C., et al. (2013). *Non-Celiac Gluten Sensitivity: The New Frontier of Gluten-Related Disorders*. Nutrients, 5(10), 3839–3853. [DOI:10.3390/nu5103839](https://doi.org/10.3390/nu5103839)  2. Autoimmune Diseases    - Elevated tTG-IgA levels have been reported in other autoimmune conditions, such as type 1 diabetes, autoimmune hepatitis, and systemic lupus erythematosus (SLE). This is thought to be due to cross-reactivity or polyautoimmunity.    - Reference: Sblattero, D., et al. (2000). *The Role of Anti-Tissue Transglutaminase in the Diagnosis and Management of Celiac Disease*. Autoimmunity Reviews, 1(3), 129–135. [DOI:10.1016/S1568-9972(01)00022-3](https://doi.org/10.1016/S1568-9972(01)00022-3)  3. Chronic Liver Disease    - Conditions like chronic hepatitis or cirrhosis can sometimes lead to elevated tTG-IgA levels, possibly due to increased intestinal permeability or immune dysregulation.    - Reference: Vecchi, M., et al. (2003). *High Prevalence of Celiac Disease in Patients with Chronic Liver Disease: A Role for Gluten-Free Diet?* Gastroenterology, 125(5), 1522–1523. [DOI:10.1016/j.gastro.2003.08.031](https://doi.org/10.1016/j.gastro.2003.08.031)  4. Inflammatory Bowel Disease (IBD)    - Some patients with Crohn’s disease or ulcerative colitis may have elevated tTG-IgA levels due to intestinal inflammation and damage, though this is not common.    - Reference: Walker-Smith, J. A., et al. (1990). *Celiac Disease and Inflammatory Bowel Disease*. Journal of Pediatric Gastroenterology and Nutrition, 10(3), 389–391. [DOI:10.1097/00005176-199004000-00020](https://doi.org/10.1097/00005176-199004000-00020)  5. Infections and Parasites    - While infections (e.g., giardiasis) are more commonly associated with false-positive tTG-IgA results, chronic infections or parasitic infestations can sometimes lead to elevated levels due to mucosal damage.    - Reference: Rostami, K., et al. (1999). *The Role of Infections in Celiac Disease*. European Journal of Gastroenterology & Hepatology, 11(11), 1255–1258. [DOI:10.1097/00042737-199911000-00010](https://doi.org/10.1097/00042737-199911000-00010)  6. Cardiac Conditions    - Rarely, heart failure or severe cardiovascular disease has been associated with elevated tTG-IgA levels, possibly due to gut ischemia and increased intestinal permeability.    - Reference: Ludvigsson, J. F., et al. (2007). *Celiac Disease and Risk of Cardiovascular Disease: A Population-Based Cohort Study*. American Heart Journal, 153(6), 972–976. [DOI:10.1016/j.ahj.2007.03.019](https://doi.org/10.1016/j.ahj.2007.03.019)  Key Points: - Elevated tTG-IgA levels are highly specific for celiac disease, and in most cases, a positive result strongly suggests celiac disease. - Other conditions causing elevated tTG-IgA are rare and often accompanied by additional clinical findings. - If celiac disease is suspected, further testing (e.g., endoscopy with biopsy) is typically required for confirmation. If you’re looking for more specific studies, I recommend searching PubMed or other medical databases using terms like "elevated tTG-IgA non-celiac" or "tTG-IgA in non-celiac conditions." Let me know if you’d like help with that!
    • MaryMJ
      I called zero water and they state their filters do not contain gluten or gluten containing ingredients. 
    • trents
      I agree. Doesn't look like you have celiac disease. Your elevated DGP-IGG must be due to something else. And it was within normal at that after your gluten challenge so it is erratic and doesn't seem to be tied to gluten consumption.
    • Jack Common
      Hello! I want to share my situation. I had symptoms like some food intolerance, diarrhea, bloating, belching one year ago. I thought I could have celiac disease so I did the blood tests. The results were ambiguous for me so I saw the doctor and he said I needed to do tests to check whether I had any parasites as well. It turned out I had giardiasis. After treating it my symptoms didn't disappear immediately. And I decided to start a gluten free diet despite my doctor said I didn't have it. After some time symptoms disappeared but that time it wasn't unclear whether I'd had them because of eliminating gluten or that parasite. The symptoms for both are very similar. Giardiasis also damages the small intestine. The only way to check this was to start eating bread again as I thought. Now about my results.   These are my first test results (almost a year ago) when I had symptoms: The Tissue Transglutaminase IgA antibody - 0.5 U/ml (for the lab I did the tests 0.0 - 3.0 is normal) The Tissue Transglutaminase IgG antibody - 6.6 U/ml (for the lab I did the tests 0.0 - 3.0 is normal) Immunoglobulin A - 1.91 g/l (for the lab I did the tests 0.7 to 4 g/l is normal) IgA Endomysial antibody (EMA) - < 1:10 titer (for the lab I did the tests < 1:10 titer is normal) IgG Endomysial antibody (EMA) - < 1:10 titer (for the lab I did the tests < 1:10 titer is normal) Deamidated gliadin peptide IgA - 0.3 U/ml (for the lab I did the tests 0.0 - 6.0 is normal) Deamidated gliadin peptide IgG - 46.1 U/ml (for the lab I did the tests 0.0 - 6.0 is normal)   Then I didn't eat gluten for six months. Symptoms disappeared. And I started a gluten challenge. Before the challenge I did some tests. My results: The Tissue Transglutaminase IgG antibody - 0.5 U/ml (for the lab I did the tests < 20 U/ml is normal)) Deamidated gliadin peptide IgG - 28 U/ml (for the lab I did the tests < 20 U/ml is normal)   During the challenge I ate 6 slices of wheat bread. After the challenge my results are: The Tissue Transglutaminase IgA antibody - 2.0 U/ml (for the lab I did the tests < 20 U/ml is normal) The Tissue Transglutaminase IgG antibody - 2.0 U/ml (for the lab I did the tests < 20 U/ml is normal) Immunoglobulin A - 1.31 g/l (for the lab I did the tests 0.7 to 4 g/l is normal) Deamidated gliadin peptide IgA - 2.0 U/ml (for the lab I did the tests < 20 U/ml is normal) Deamidated gliadin peptide IgG - 2.13 U/ml (for the lab I did the tests < 20 U/ml is normal)   To be sure I continued consuming gluten. I ate a lot each day. Two months after I did the tests again. My results I got today are: The Tissue Transglutaminase IgA antibody - 0.7 U/ml (for the lab I did the tests < 20 U/ml is normal) Immunoglobulin A - 1.62 g/l (for the lab I did the tests 0.7 to 4 g/l is normal) Deamidated gliadin peptide IgG - 25.6 U/ml (for the lab I did the tests < 20 U/ml is normal)   Nowadays I didn't have any symptoms except tiredness but I think it's just work. I think it was this parasite because two years ago, for example, and before I didn't have these symptoms and I always ate gluten food. But I'm still not sure especially because the Deamidated gliadin peptide IgG results are sometimes high. What do you think? @Scott Adams
×
×
  • Create New...