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Ttg levels went up 20 month old

Laulau
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Laulau Rookie
Laulau
Posted

Can someone explain this? My daughter has been off gluten since May (ttg was 129) and last week her result from the ttg iga test was at 159. Dr will be calling but just received the results and am anxious to understand. She’s been doing fantastic since about a week after stopping gluten. No mishaps and daycare has been amazing with taking all precautions. Could this be wrong?

She had gotten super sick, lethargic and was actually hospitalized in May.
This is how we found out she had celiac disease. They did all the tests to see what was wrong..So since that day she went gluten free, and had a complete turnaround (within a week). She has been amazing, thriving, growing great and there have been no known mishaps since. We know you can be a silent celiac but since she got so sick from the original diagnosis we don’t understand how she could still be exposed to gluten without any response. We are so confused. Also. We are a gluten free household and use gl products like lotion and toothpaste 

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trents Grand Master
trents
Posted

Is she still consuming dairy? https://glutenfreeworks.com/blog/2021/07/15/bovine-beta-casein-enteropathy-celiac-disease-cause-villous-atrophy/

Laulau Rookie
Laulau
Posted
  • Author

Hi! Thanks for your response…yes, lots of dairy! I can’t imagine taking her off of it. Her igg and iga results where in the normal range as well…

trents Grand Master
trents
Posted

It's very common for celiacs to be intolerant of dairy. In many cases, once there has been healing of the villi, dairy can be added back in. Something to think about.

Laulau Rookie
Laulau
Posted
  • Author

Got it, thank you! Do you think this could be the case even though she has had no symptoms since being diagnosed in May?

also, just to throw out there. She had the stomach bug just before having these tests done. I wonder if this could throw off the results?

trents Grand Master
trents
Posted

Ah! The stomach bug. I would guess that could cause inflammation of the small bowel lining. At any rate, I would have those tests repeated. The higher numbers could be a temporary anomaly.

Laulau Rookie
Laulau
Posted
  • Author

You are awesome…. Thanks for your input. Am going to contact our dr tomorrow. 
 

will follow-up on here! Thank you.

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  • Recent Activity

    1. Ann13
      - Ann13 replied to Iris Kraft's topic in Gluten-Free Foods, Products, Shopping & Medications
      14

      Inhaler problem

      Not everyone will be allergic to whatever they're using in food. There is another forum re people who are posting they have vocal cord & throat issues after they eat breads & pastas which stopped after they removed those foods from their diets. Same as me...gluten doesn't react as gastrointestinal it reacts orally. Which is why I'm saying ensure all...
    2. trents
      - trents replied to Iris Kraft's topic in Gluten-Free Foods, Products, Shopping & Medications
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      - trents replied to Iris Kraft's topic in Gluten-Free Foods, Products, Shopping & Medications
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  • Posts

    • Ann13
      Inhaler problem

      By Ann13 · Posted

      Not everyone will be allergic to whatever they're using in food. There is another forum re people who are posting they have vocal cord & throat issues after they eat breads & pastas which stopped after they removed those foods from their diets. Same as me...gluten doesn't react as gastrointestinal it reacts orally. Which is why I'm saying ensure all your food isn't what you're having a reaction to.  ...& I used Cornflakes as an example because some gluten free people would assume it's gluten free but if they're allergic to barley they will have a reaction...nothing to do with their inhaler.  You're missing my points a lot & frustrating so I'm done commenting. You really need to ensure your food isn't what's causing the issue. I am checking with symbicort manufacturer to check their ingredients.  Good bye... I'm done with this. 
    • trents
      Inhaler problem

      By trents · Posted

      I certainly agree with all that. However, you also mentioned cornflakes with barley malt but that would obviously not be gluten free since barley is a gluten-containing grain. And the chemicals they spray on grains would affect everyone, not just those with gluten disorders. I'm just trying to figure out what this thread has to do with the main subject this online community is focused on. Is the point of this thread that having a gluten disorder makes someone more susceptible to reacting adversely to inhalers? That could be but it may have nothing to do with the inhaler having gluten. It could have to do with, say, having higher systemic yeast counts because the celiac community generally suffers from gut dysbiosis. So it would be easier for celiacs using inhalers to develop thrush.
    • Ann13
      Inhaler problem

      By Ann13 · Posted

      Re food,  I said the gluten free thing isn't necessarily about gluten itself, but chemical sprays they use on GRAINS which cause allergic throat & vocal cord issues regardless of the inhaler you're using.  Your issue may not be the inhaler but eating gluten free food that still will bother you because they have been sprayed with certain chemicals. Barley & oats cause vocal and throat issues with me as well as gluten free flours. We didn't have gluten issues in the world yrs ago...the food changed somehow or they're using sprays that cause reactions in some people.  Re inhaler: Symbicort is registered as gluten free but companies can change their ingredients at any time so you may want to check with the company who makes it and get an ingredient list.  I don't believe I'm reacting to the inhaler...I believe it's a gluten free pasta I've been eating so I'm taking it out of my diet. I've used the inhaler for over 1 year and no problems up until now so I suspect it's the pasta. 
    • trents
      Inhaler problem

      By trents · Posted

      There could be other reasons you are reacting to the inhalers. There is no concrete evidence to believe they contain gluten. Anecdotal experiences can be misleading do not establish fact.
    • trents
      Inhaler problem

      By trents · Posted

      Are you saying you believe there is gluten in the inhaler products? I mean you talk a lot about reacting to foods that are supposed to be gluten free but this thread is about inhalers. 
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