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Recent Activity
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- trents replied to lizzie42's topic in Coping with Celiac Disease7
New diagnosis for 3 year old. Help!
I do not think that foregoing the biopsy when the ttg-iga is 10x normal has yet been adopted as a universal protocol in the U.S. We are not quite as far along on that one as they are in Europe I believe. One option is to trial a gluten free diet and then attempt a "gluten challenge" later on if for some reason it becomes important to distinguish between having... -
- lizzie42 replied to lizzie42's topic in Coping with Celiac Disease7
New diagnosis for 3 year old. Help!
Thank you! That's so encouraging. We are planning to go 100 percent gluten-free at home apart from continuing to feed the other kids gluten till they get their tests. I assume that if you have zero gluten in the kitchen eventually cross contamination ends! It does seem overwhelming at first! Once they've been gluten free for awhile is it obvious... -
- Jsingh replied to lizzie42's topic in Coping with Celiac Disease7
New diagnosis for 3 year old. Help!
Hi, I am mother of a six year old who was organized a year ago when she was fine. to answer your question about removing gluten from your kitchen- it will be a mammoth task but your entire kitchen has to be free of gluten for her to be safe. Now I’ve learnt from this forum and others that different celiac patients show different level sensitivities t... -
- lizzie42 replied to lizzie42's topic in Coping with Celiac Disease7
New diagnosis for 3 year old. Help!
Thank you! This is helpful. I actually read her results wrong. It looks like her tTG test was just higher than the test goes (it only goes up to 100 and hers was higher than that so it just said greater than 100 and 0-3 would have been normal). And the 109 was a different iga test (immunoglobulin A, Qn, Serum). The ema was just a straight positive. I think... -
- Deborah123 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms0
Testing
My 5 year old had the blood test in August 2023, which came back negative. We just had a well-visit & he has lost weight over the last 6 months. My new Dr thinks its ENT issues causing his irritability & fatigue. We recently switched pediatricians, and I'm not sure how much to push for a celiac re-test. Obviously I'm not a Dr, but my gut...
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