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Celiac.com Article:Celiac Woman in COVID-19 Quarantine Waits Nearly Two Days for Gluten-Free Food

Jefferson Adams

By Jefferson Adams
in Publications & Publicity

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Jefferson Adams Grand Master
Jefferson Adams
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    • trents
      A year and a half of test confusion...

      By trents · Posted

      I just want to reinforce what Scott said and that is we have tended to think in these neat little black and white categories of it's either celiac or NCGS when in reality it may not be quite that neat. There's just a lot we don't know and the immune system is very complex. I often wonder if I had been gluten free as a child if I would have avoided developing celiac disease as an adult. I think there is also this misconception that if you have NCGS, gluten is not harmful, it just creates discomfort and inconvenience.
    • JA917
      A year and a half of test confusion...

      By JA917 · Posted

      I am actually in the middle of this article currently already!   Thank you.  This website is extraordinarily helpful.
    • Scott Adams
      A year and a half of test confusion...

      By Scott Adams · Posted

      This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
    • JA917
      A year and a half of test confusion...

      By JA917 · Posted

      Gotcha.  I'll give 100% gluten-free a whirl after my testing concludes.  I know the traditional endoscopy is the gold standard, but I've already had that done and it was normal, so my gastro wants to do a capsule endo to try to cover more surface area and see if she can see anything further than the traditional endo... If I do have Celiac, I just seem to be on the very early end, I think.
    • Scott Adams
      A year and a half of test confusion...

      By Scott Adams · Posted

      Given your long list of symptoms it would make sense to see if a 100% gluten-free diet helps relieve them, especially the anemia, and if so, it would make sense to just stay 100% gluten-free. Also, capsule endoscopy is not ideal for diagnosing celiac disease, as subtle villi damage cannot be detect by it.
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