Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Amy, I Thought You Were My Friend!

penguin

Glutened by Amy's!  

35 members have voted

You do not have permission to vote in this poll, or see the poll results. Please sign in or register to vote in this poll.

Recommended Posts

jerseyangel Proficient
jerseyangel
Posted

Yea--sounds like they're trying...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jenvan Collaborator
jenvan
Posted

I think Amy's proved their genuine concern and desire to create safe products in how they responded to Berneses last year. If you want to help improve their products, save the upcs and give them to Amy's so they can track the batches and investigate like Berneses did.

Guest cassidy
Guest cassidy
Posted
Cash? That's really, really strange!

I don't know of any reputable company that wouldn't send you a money order or cheque as refund your money.

Was the note on any type of letterhead?

Karen

It was a hand written note in a notecard like you would send to someone who bought you a birthday present. The money was folded up inside. I had 7 items including a pizza so I think they gave me $35. It was strange. I think someone should let them know about the results of this poll. If have the people have been glutened by them, they need to know that it is a real problem.

Guest nini
Guest nini
Posted

I do think that as a company they are really trying, and genuinely seem to be concerned when someone has an issue with cross contamination. Let's just keep the lines of communication open with Amy's and hopefully they will get this all worked out. There are so many of their products that I absolutely love and am not willing to give up. I have had a few episodes where there may have been cc with an Amy's product, but it doesn't happen all the time and I've noticed the labeling on the box where even if it says Gluten Free, it still has the disclaimer that it is made in a facility that also produces products with Wheat and so on... they are trying, I'll give them that. I think because they are a smaller company, they don't have the resources to be able to do them all in a dedicated facility, but it certainly appears that they would like to be able to.

penguin Community Regular
penguin
Posted
  • Author

So I talked to this Marsha lady, and she was concerned. She did, however, imply that Amy's wasn't what made me sick. She said they're going to do the testing on the lot, but that that product has never tested positive for gluten. They are definitely concerned about it, albeit defensive. I did make sure and tell her that I commend what they do by making gluten-free products, and how helpful it is, and that I realized they put themselves at risk by labelling things gluten-free.

I was a little insulted that she implied I wasn't gluten-free long enough to know when I'd been glutened, and that I'd be able to pick up the source. That was a bit annoying, but I do understand where she was coming from. Also, I had the same reaction all four times I've eaten Amy's, that would be a quite amazing coincidence.

I very much respect the company, but I'm not sure I will buy their products anymore.

Well, maybe the mac and cheese, since she specifically sited that until 8 mos. ago their tapioca starch supplier shared lines with wheat, but that that has been resolved.

penguin Community Regular
penguin
Posted
  • Author

Marsha lady just sent this to me, boy are they on top of things!!!

Chelsea,

Thanks for getting back to me so quickly. The product you ate was manufactured on October 26, 2005. We made 25,000 meals on that day. I checked the Consumer Services Database that we use to track any problems with products and nothing has been reported for this lot (or for any lot of Santa Fe Enchilada).

I have asked the Quality Assurance Department to pull the retain for this product and we will send it in to University of Nebraska for testing. It usually takes them about a week to complete the testing. So I might not be able to get back to you until the week after this with the result. In the meantime, I will check the production and QA records to see if there were any unusual occurrences on that day.

Thanks so much for you patience. I will get back to you as soon as I have anything to report.

Kind regards,

Marsha Kopral

Tech Service

happygirl Collaborator
happygirl
Posted

I have eaten them pretty regularly (usually their mexican ones...enchilada) and have yet to get sick from them (knock on wood). I hope you get some good answers, girl!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jenvan Collaborator
jenvan
Posted

Like I said earlier...they are a rare company ! Most companies wouldn't even conceive of testing if one person reports a problem! Keep us updated when you get the results!

Carriefaith Enthusiast
Carriefaith
Posted
Chelsea,

Thanks for getting back to me so quickly. The product you ate was manufactured on October 26, 2005. We made 25,000 meals on that day. I checked the Consumer Services Database that we use to track any problems with products and nothing has been reported for this lot (or for any lot of Santa Fe Enchilada).

I have asked the Quality Assurance Department to pull the retain for this product and we will send it in to University of Nebraska for testing. It usually takes them about a week to complete the testing. So I might not be able to get back to you until the week after this with the result. In the meantime, I will check the production and QA records to see if there were any unusual occurrences on that day.

Thanks so much for you patience. I will get back to you as soon as I have anything to report.

Kind regards,

Marsha Kopral

Tech Service

Wow. Keep us posted on the results.

  • 2 months later...
Lister Rising Star
Lister
Posted

yeah i think i may have gotten glutend from it as well i just ate one about a hour ago and feel like crap and am having problems, but i cant be sure yet since i still ahve normal bms and i have not puked i could just be in one of my rollercoaster modes

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      128,033
    • Most Online (within 30 mins)
      7,748
    BigMamaBex5
    Newest Member
    BigMamaBex5
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.6k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • kate g
      Are they close to a drug that will help celiacs with cross contamination

      By kate g · Posted

      Ive read articles that there is stage 2 research being conducted for drugs that will limit damage to celiacs through cross contamination- how close are they to this will there be enough funding to create a mainstream drug? 
    • cristiana
      Celiac pain relief

      By cristiana · Posted

      Hi @Karmmacalling I'm very sorry to hear you are feeling so unwell.  Can you tell us exactly what sort of pain you are experiencing and where the pain is?  Is it your lower abdomen, upper abdomen etc?  Do you have any other symptoms? Cristiana
    • trents
      How many people here are aware that there are 9 types of gluten that Celiacs should be aware of?

      By trents · Posted

      The NIH article you link actually supports what I have been trying to explain to you: "Celiac disease (celiac disease) is an autoimmune-mediated enteropathy triggered by dietary gluten in genetically prone individuals. The current treatment for celiac disease is a strict lifelong gluten-free diet. However, in some celiac disease patients following a strict gluten-free diet, the symptoms do not remit. These cases may be refractory celiac disease or due to gluten contamination; however, the lack of response could be related to other dietary ingredients, such as maize, which is one of the most common alternatives to wheat used in the gluten-free diet. In some celiac disease patients, as a rare event, peptides from maize prolamins could induce a celiac-like immune response by similar or alternative pathogenic mechanisms to those used by wheat gluten peptides. This is supported by several shared features between wheat and maize prolamins and by some experimental results. Given that gluten peptides induce an immune response of the intestinal mucosa both in vivo and in vitro, peptides from maize prolamins could also be tested to determine whether they also induce a cellular immune response. Hypothetically, maize prolamins could be harmful for a very limited subgroup of celiac disease patients, especially those that are non-responsive, and if it is confirmed, they should follow, in addition to a gluten-free, a maize-free diet." Notice that those for whom it is suggested to follow a maize-free diet are a "very limited subgroup of celiac disease patients". Please don't try to make your own experience normative for the entire celiac community.  Notice also that the last part of the concluding sentence in the paragraph does not equate a gluten-free diet with a maize-free diet, it actually puts them in juxtaposition to one another. In other words, they are different but for a "limited subgroup of celiac disease patients" they produce the same or a similar reaction. You refer to celiac reactions to cereal grain prolamins as "allergic" reactions and "food sensitivity". For instance, you say, "NIH sees all these grains as in opposition to celiacs, of which I am one and that is science, not any MD with a good memory who overprescribes medications that contain known food allergens in them, of which they have zero knowledge if the patient is in fact allergic to or not, since they failed to do simple 'food sensitivity' testing" and "IF a person wants to get well, they should be the one to determine what grains they are allergic to and what grains they want to leave out, not you. I need to remind you that celiac disease is not an allergy, it is an autoimmune disorder. Neither allergy testing nor food sensitivity testing can be used to diagnose celiac disease. Allergy testing and food sensitivity testing cannot detect the antibodies produced by celiac disease in reaction to gluten ingestion.  You say of me, "You must be one of those who are only gluten intolerant . . ." Gluten intolerance is synonymous with celiac disease. You must be referring to gluten sensitivity or NCGS (Non Celiac Gluten Sensitivity). Actually, I have been officially diagnosed with celiac disease both by blood antibody testing and by endoscopy/positive biopsy. Reacting to all cereal grain prolamins does not define celiac disease. If you are intent on teaching the truth, please get it straight first.
    • Bebygirl01
      How many people here are aware that there are 9 types of gluten that Celiacs should be aware of?

      By Bebygirl01 · Posted

      Perhaps you would still like to answer the questions I posed on this topic, because that is all I asked. I am curious to know the answers to those questions, I do not care about the background of Dr. Osborne as I am more aware of the situation than you are, and he is also one of the best known authors out there on Celiac disease. But did you even bother to read the three Research Papers I posted by NIH? You must be one of those who are only gluten intolerant and not yet reacting to all glutens aka grains, but I AM one of those who react to ALL the glutens, and again, that is one of the two questions I originally posted on this matter. NIH sees all these grains as in opposition to celiacs, of which I am one and that is science, not any MD with a good memory who overprescribes medications that contain known food allergens in them, of which they have zero knowledge if the patient is in fact allergic to or not, since they failed to do simple 'food sensitivity' testing. I started with the failed FDA explanation of what Gluten Free is and I stayed sick and got even sicker. It wasn't until I came across NIH's papers and went off all grains that I realized that in fact, I am Celiac and reacting to all the glutens. IF a person wants to get well, they should be the one to determine what grains they are allergic to and what grains they want to leave out, not you. Those who are just getting started with learning about grains etc., can take it easy by just being "grain free' and eating a lot of meat, vegetables, etc. or whole foods as God has intended, without buying so called gluten free garbage out there that is making them sick and the whole reason they are not better. I tried the stupid gluten free garbage and it didn't work, and that will make anyone want to give up, it is better to teach the entire truth and let the patient decide, rather than give them misinformation and lies.
    • Nicola McGuire
      My son newly diagnosed

      By Nicola McGuire · Posted

      Thank you so much I will speak to the doctor for dietician apt . Thank you for your advice Beth much appreciated 
×
×
  • Create New...