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Creon

beegal
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beegal Rookie
beegal
Posted

Hi There,

I saw some older posts about Creon. I was prescribed this recently and tried calling the manufacturer (on hold over an hour with transferred three times), and still no one could confirm that this is gluten free. I am so frustrated with trying to call manufacturers about meds only to be told they do not have that information and will escalate it to their medical department. How can a company not know if their product contains gluten?! I know one thing for sure, I want to get involved with lobbying for better laws/ regulations for labeling prescription meds. I take very few, but anytime I have been prescribed something and want to confirm the med Is gluten free, it's like pulling teeth to get any info, and never timely. I have taken digestive enzymes for years, and that always helps, but does anyone know of something similar to Creon that is gluten free? I also want to check out the gliadin x, even though I know this is specific for breaking down gluten. I already have an enzyme from a different company for this/ any cross contamination. The Creon would be for diarrhea I still have/ and a diagnosis of bile acid diarrhea.

Thanks for your thoughts!

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RMJ Mentor
RMJ
Posted

Looking at the prescribing information (see section 11 in link) CREON does not have any ingredients that would be expected to contain gluten. The ingredients are all pretty refined and thus also unlikely to be contaminated.

If the enzymes were produced by bacteria one would have to look into the media the bacteria were grown in, but this is NOT the case.  In CREON the enzymes are an extract from pig pancreatic glands.

I think it is unlikely that CREON contains gluten. I agree, it would be so nice if manufacturers had to label drugs that contained gluten.

CREON prescribing information

beegal Rookie
beegal
Posted
  • Author
3 minutes ago, RMJ said:

Looking at the prescribing information (see section 11 in link) CREON does not have any ingredients that would be expected to contain gluten. The ingredients are all pretty refined and thus also unlikely to be contaminated.

If the enzymes were produced by bacteria one would have to look into the media the bacteria were grown in, but this is NOT the case.  In CREON the enzymes are an extract from pig pancreatic glands.

I think it is unlikely that CREON contains gluten. I agree, it would be so nice if manufacturers had to label drugs that contained gluten.

CREON prescribing information

Agree with all you said too...!

Scott Adams Grand Master
Scott Adams
Posted

You can see the active and inactive ingredients here, and it looks gluten-free but I did not look at every version:

https://dailymed.nlm.nih.gov/dailymed/

  • 1 year later...
Katie17 Newbie
Katie17
Posted

I just spent 30 minutes on hold with Abbvie to be told their CREON doesn't contain gluten ingredients but they do not test it to confirm it's safe for Celiac patients. I'm curious if your script was from this same manufacturer and if you took it safely? Thanks so much.

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    • trents
      Family education

      By trents · Posted

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      Hi @sillyyak52, I empathize with you. I would suggest showing them pictures of "dermatitis herpetiformis" which is a complication of undiagnosed/untreated Coeliac Disease. You can find them on Google images. It's pretty alarming to see and it may be the wake up call they need to visually understand what gluten can really do to the body. In this case the skin ... The Coeliac rash that won't go away without a strict gluten free diet and Dapsone treatment (a toxic antibiotic). I'd also look at @glutenhatesmyguts on youtube  ... a funny educational take on Coeliac Disease ... the clips titled as follows may help ... "Celiac Disease Explained | Why Gluten REALLY Hates My Guts!" and "Story time: I almost ..." This person is on Tiktok also and has a category "Coeliac & gluten-free Info ". There's plenty of Coeliacs on Tiktok and IG posting frequently and advocating for themselves about the need to be strict and what happens when they get glutened.    Celiac Canada also has good resources on YT, both long and short educational clips  ... @CCACeliac . Do you know any Coeliacs in your area who could help you explain the need to be so strict? Some Coeliacs have mild symptoms while others have awful reactions to just a few crumbs. Or maybe the nurse could put you in contact with some other Coeliacs or a support group to help you with your family. Hope this helps you. And keep advocating for yourself no matter what.
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      Dangerously underweight, Perfect gluten free and insomnia

      By trents · Posted

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