Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Covid caused reoccurrence of DH without eating gluten


CDFAMILY

Recommended Posts

CDFAMILY Rookie

Hi, it has been years since I posted.  I think I was posting back when it first started sometime around 2003 or so???  It was so helpful and a wonderful site to find help with all the questions we had early on!

I probably had Celiac most of my life but was not Dx until 2005.  I first was diagnosed with Celiac and then had a DH breakout a few months later...so I have both.  I had Covid last April and recovered quickly and then I got covid again right after Christmas this year.  I lost my smell and taste both times.  This second time I also woke up about 3 days after onset with the horrible DH rash on both sides of my back and was wondering if this has happened to anyone else.  Our entire family including husband and 3 children have been dx with celiac so we never have gluten in the house.  I take lots of vitamins that are definitely gluten free and eat only organic/NonGMO and unprocessed foods.

Has anyone else experienced this?  My brother-in-law also experienced the same thing in November of this year.  He is also dx with DH.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CDFAMILY Rookie
5 minutes ago, CDFAMILY said:

Hi, it has been years since I posted.  I think I was posting back when it first started sometime around 2003 or so???  It was so helpful and a wonderful site to find help with all the questions we had early on!

I probably had Celiac most of my life but was not Dx until 2005.  I first was diagnosed with Celiac and then had a DH breakout a few months later...so I have both.  I had Covid last April and recovered quickly and then I got covid again right after Christmas this year.  I lost my smell and taste both times.  This second time I also woke up about 3 days after onset with the horrible DH rash on both sides of my back and was wondering if this has happened to anyone else.  Our entire family including husband and 3 children have been dx with celiac so we never have gluten in the house.  I take lots of vitamins that are definitely gluten free and eat only organic/NonGMO and unprocessed foods.

Has anyone else experienced this?  My brother-in-law also experienced the same thing in November of this year.  He is also dx with DH.

Also, I have not been vaccinated.

Link to comment
Share on other sites
Scott Adams Grand Master

It's never too late to get vaccinated...that is, until it's too late! 🙂

And, welcome back! 

Although we've had reports here that the Covid-19 vaccine, or getting the virus itself, may have triggered celiac disease in some people, I've not heard that it could trigger a DH rash. To me it seems more likely that some gluten may have slipped into your diet, but who knows? It will be interesting to see if this has happened to others.

Link to comment
Share on other sites
CDFAMILY Rookie
On 1/25/2022 at 1:40 PM, Scott Adams said:

It's never too late to get vaccinated...that is, until it's too late! 🙂

And, welcome back! 

Although we've had reports here that the Covid-19 vaccine, or getting the virus itself, may have triggered celiac disease in some people, I've not heard that it could trigger a DH rash. To me it seems more likely that some gluten may have slipped into your diet, but who knows? It will be interesting to see if this has happened to others.

LOL, well, I have low Platelets/ITP/Thrombocytopenia and Low white counts so my Drs. advised me not to take the vaccines.  The first part of the covid Dec 28...was the typical flu with fever and headache that lasted less than 3 days.  I think the rash started then.  I thought wow this was easy but the next day the mucousy cough started that lasted about a week.  I lost my taste, but it is almost back now.  I did use Ivermectin and hydroxycloroquine.  Plus a lot of vitamins!  I did not get major fatigue.  My husband on the other had had a mild fever 102 and severe back pain at night and used IBpro. which he never uses...ever!  He also was better in about 3 days with this....but he then started the difficulty breathing and major fatigue...we had an oxymeter so we kept close watch and had a couple scary days but he finally turned the corner and is back to the gym.  What is interesting is, this probably came from a Xmas eve visit by my neighbors for 15 or so minutes...no one was sick but a few days later we got the call the mom and dad tested positive.  So, I had the same symptoms as the mom fever and mucousy cough and my husband had the same symptoms as the father.  The father was dx with pneumonia which we recently found out.

The possibility of gluten in my house is zero to none lol!  No one is allowed to bring gluten into my house and we hadn't been anywhere or eaten anyone else's food.

The strange thing is by brother-in-law who we also haven't seen in months had the same symptoms as my husband and also had breathing issues and itchy red rash on his back...he was dx last year with DH.

 

 

Link to comment
Share on other sites
ravenwoodglass Mentor
16 hours ago, CDFAMILY said:

  I did use Ivermectin and hydroxycloroquine. 

.

 

 

Likely one or the other or both of these drugs were not gluten free.

Link to comment
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      125,762
    • Most Online (within 30 mins)
      7,748

    Jody-JS
    Newest Member
    Jody-JS
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.8k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • julie falco
    • Dhruv
      @trents I absolutely understand the perspective of getting off completely from wheat,  but sometimes situation may occur that you won't have choice to eat other than wheat,  my son travels a lot, since they travel in team, it's not easy to go out and find him a gluten free every single time! I have seen, even in NJ I m struggling to find out gluten free stuff, in this country we don't get fresh food in stores, other day i saw gluten free bread so hard that will never feel to eat it! Once in while means once in a while, when there is no absolute option. Here all goes by book, there is no enough scientific research done yet on eating gluten with celiac,  everyone has there own narrative,  only it being said don't eat wheat, but Noone has come up with the experience. And moreover my sons diagnosis is yet to define, whether he has celiac or NCGS. last time his endoscopy came negative hence doctor did not bother to tell us. I hope this time it will be the same case. We are figuring out why his billirubin is high, may be that could be the reason his igg iga test is high, will get check on all and come to the conclusion. My son and us is absolutely fine not eating gluten, but one can't guarantee that every time they will get the gluten free food other than home. I also don't trust under the table of "gluten free products" have see people still have same iga igg count even after following the diet. This is all learnings, will keep him under observation and go through the regular testing to find out how his body reacts to what.  I may sound like a fool, but medical is scam in US, hence i would consult doctors in India. 14 years ago they have announced i had a breast cancer, which was not, since then I don't trust medical system here.
    • Scott Adams
      Here are two older articles we've done on this topic which might be helpful:  
    • Rogol72
      I've been to Italy recently for a wedding and it was excellent. I made my own gluten-free sandwiches/pannini to take on the flights.  Spain is good and you can get good gluten-free breads in the supermarkets there. The UK and Ireland are very good also. Australia would be good since Coeliac Disease is fairly common there ...1 in 70 as opposed to 1 in 100 in other countries. You have to advocate for yourself in restaurants when eating out. I've read about several Coeliacs being cross contaminated from preordered gluten-free meals on airlines. Personally, I wouldn't trust a gluten-free meal on an airline especially long haul. Try the hashtag celiactravel on tiktok and instagram. Loads of Coeliacs posting about their experiences with plenty travel tips. The Atly app has a list of gluten-free friendly restaurants worldwide.
    • Pat Denman
      "Do not follow after the crowd to do what is bad." Bible. The world is full of crazy people who have little love for their neighbor. Eat what is best for you and ignore their recommendations. 
×
×
  • Create New...