Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):
    GliadinX



    Celiac.com Sponsor (A1-M):
    GliadinX


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Covid caused reoccurrence of DH without eating gluten


CDFAMILY

Recommended Posts

CDFAMILY Rookie

Hi, it has been years since I posted.  I think I was posting back when it first started sometime around 2003 or so???  It was so helpful and a wonderful site to find help with all the questions we had early on!

I probably had Celiac most of my life but was not Dx until 2005.  I first was diagnosed with Celiac and then had a DH breakout a few months later...so I have both.  I had Covid last April and recovered quickly and then I got covid again right after Christmas this year.  I lost my smell and taste both times.  This second time I also woke up about 3 days after onset with the horrible DH rash on both sides of my back and was wondering if this has happened to anyone else.  Our entire family including husband and 3 children have been dx with celiac so we never have gluten in the house.  I take lots of vitamins that are definitely gluten free and eat only organic/NonGMO and unprocessed foods.

Has anyone else experienced this?  My brother-in-law also experienced the same thing in November of this year.  He is also dx with DH.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):
Food for Life
Tierra Farm



Celiac.com Sponsor (A8-M):
Holidaily Brewing Co.


CDFAMILY Rookie
  On 1/24/2022 at 4:20 PM, CDFAMILY said:

Hi, it has been years since I posted.  I think I was posting back when it first started sometime around 2003 or so???  It was so helpful and a wonderful site to find help with all the questions we had early on!

I probably had Celiac most of my life but was not Dx until 2005.  I first was diagnosed with Celiac and then had a DH breakout a few months later...so I have both.  I had Covid last April and recovered quickly and then I got covid again right after Christmas this year.  I lost my smell and taste both times.  This second time I also woke up about 3 days after onset with the horrible DH rash on both sides of my back and was wondering if this has happened to anyone else.  Our entire family including husband and 3 children have been dx with celiac so we never have gluten in the house.  I take lots of vitamins that are definitely gluten free and eat only organic/NonGMO and unprocessed foods.

Has anyone else experienced this?  My brother-in-law also experienced the same thing in November of this year.  He is also dx with DH.

Expand Quote  

Also, I have not been vaccinated.

Scott Adams Grand Master

It's never too late to get vaccinated...that is, until it's too late! 🙂

And, welcome back! 

Although we've had reports here that the Covid-19 vaccine, or getting the virus itself, may have triggered celiac disease in some people, I've not heard that it could trigger a DH rash. To me it seems more likely that some gluten may have slipped into your diet, but who knows? It will be interesting to see if this has happened to others.

CDFAMILY Rookie
  On 1/25/2022 at 6:40 PM, Scott Adams said:

It's never too late to get vaccinated...that is, until it's too late! 🙂

And, welcome back! 

Although we've had reports here that the Covid-19 vaccine, or getting the virus itself, may have triggered celiac disease in some people, I've not heard that it could trigger a DH rash. To me it seems more likely that some gluten may have slipped into your diet, but who knows? It will be interesting to see if this has happened to others.

Expand Quote  

LOL, well, I have low Platelets/ITP/Thrombocytopenia and Low white counts so my Drs. advised me not to take the vaccines.  The first part of the covid Dec 28...was the typical flu with fever and headache that lasted less than 3 days.  I think the rash started then.  I thought wow this was easy but the next day the mucousy cough started that lasted about a week.  I lost my taste, but it is almost back now.  I did use Ivermectin and hydroxycloroquine.  Plus a lot of vitamins!  I did not get major fatigue.  My husband on the other had had a mild fever 102 and severe back pain at night and used IBpro. which he never uses...ever!  He also was better in about 3 days with this....but he then started the difficulty breathing and major fatigue...we had an oxymeter so we kept close watch and had a couple scary days but he finally turned the corner and is back to the gym.  What is interesting is, this probably came from a Xmas eve visit by my neighbors for 15 or so minutes...no one was sick but a few days later we got the call the mom and dad tested positive.  So, I had the same symptoms as the mom fever and mucousy cough and my husband had the same symptoms as the father.  The father was dx with pneumonia which we recently found out.

The possibility of gluten in my house is zero to none lol!  No one is allowed to bring gluten into my house and we hadn't been anywhere or eaten anyone else's food.

The strange thing is by brother-in-law who we also haven't seen in months had the same symptoms as my husband and also had breathing issues and itchy red rash on his back...he was dx last year with DH.

 

 

ravenwoodglass Mentor
  On 1/30/2022 at 6:20 PM, CDFAMILY said:

  I did use Ivermectin and hydroxycloroquine. 

.

 

 

Expand Quote  

Likely one or the other or both of these drugs were not gluten free.

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):
    Food for Life



  • Member Statistics

    • Total Members
      129,167
    • Most Online (within 30 mins)
      7,748

    Krys
    Newest Member
    Krys
    Joined

  • Celiac.com Sponsor (A20):
    Smith & Truslow


  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      71.5k

  • Celiac.com Sponsor (A22):
    GliadinX




  • Celiac.com Sponsor (A21):
    Daura Damm



  • Upcoming Events

  • Posts

    • cococo
      My kids take Whole Earth & Sea Kid’s Multivitamin as per our naturopath’s recommendation. They’re chewable but can be crushed and added to juice or food. No gums or citric acid. GMO free and gluten free too.
    • Murilo P
      It has been a while and I would like to post an update. The hallucinations are completely gone. Thanks to one bottle of B1 as benfotiamine and one of B3 as niacin, both taken together. I will buy more. The other symptoms are still being treated. Now I can already affirm that the symptoms are part of Borderline Personality Disorder. Yet I do have hopes that we will achieve the remission of BPD symptoms over the next couple of years. I think her issues come from this chain of events: Nutritional deficiencies at birth, due to being twin and having low birth weight. Low levels of Omega-3 during pregnancy and first years resulting in weak HPA axis development (predisposition for BPD). Consumption...
    • Jsingh
      Hi, My six year old has been complaining of tingling in the legs off late. This used to be pretty common thing with her pre-diagnosis and a couple of weeks after the diagnosis as well. And now it is back again. I am not sure if it's a glutening symptom, or she could be deficient in something. I got her Pure Encapsulations' multivitamin capsule, which she is ok taking, but she began reacting to cellulose in the capsule. I don't know if I can just break the capsule and she could drink it in a smoothie. I haven't tried that yet, so do not know whether it'll be palatable to her.  If any of you know of a CGF multivitamin that do not contain any gums and are preferably free of citric acid, I'd greatly...
    • Dora77
      It wasnt really eye catching, but they were small stains which looked like dried out liquid. I dont know if it was normal or shouldve been just completely clean. But if someone didnt pay attention, it wouldnt be noticeable.
    • RMJ
      If there were stains or particles on a drink can in an area that would either contact the drink or my lips, I would wash that can whether or not I had celiac disease.
×
×
  • Create New...