Are there any Gluten Free Bread that doesn’t have rice?

[CoachJohnOK]

I have just been diagnosed with Celiacs this past week.  I am shocked because it took 10 years to be diagnosed.  I also had a food allergy test that showed I am allergic to both white and brown rice.  My question is how do I find a gluten free bread that is not made with rice?  One not is that I am not able to cook so I am looking for bread that is already made.  I am also looking for crackers.

[trents]

Coach, welcome to the forum!

You will be hard pressed to find ready made gluten free bread without rice. I see some recipes for baking your own, however. You just might need to start doing that. Here's one made from buckwheat flour. Buckwheat, despite what it sounds like, is not related to wheat: https://www.thespruceeats.com/gluten-free-buckwheat-bread-recipe-1451073

I can help with the rice free-gluten free crackers, however. I actually use some myself. They are called "Glutino Gluten Free Table Crackers (original)." They are made from corn and soy flour and taste something like wheat saltines without salt.

[Scott Adams]

Check out the breads from this company:

https://www.grindstonebakery.com/category/GF-STORE.html

[trents]

Two things about Scott's recommendation here:

1. Millet is a type of wild rice. Not sure if it would cause the same allergy issues that regular rice does. The company Scott linked sells some bread products without millet. Just beware of the millet issue.

2. Spendy! And then add shipping unless you live close by their bakery.

[Scott Adams]

I don’t think millet is in the rice family so should be ok:

https://pediaa.com/what-is-the-difference-between-rice-and-millet/amp/ 

[CoachJohnOK]

14 hours ago, trents said:

Coach, welcome to the forum!

You will be hard pressed to find ready made gluten free bread without rice. I see some recipes for baking your own, however. You just might need to start doing that. Here's one made from buckwheat flour. Buckwheat, despite what it sounds like, is not related to wheat: https://www.thespruceeats.com/gluten-free-buckwheat-bread-recipe-1451073

I can help with the rice free-gluten free crackers, however. I actually use some myself. They are called "Glutino Gluten Free Table Crackers (original)." They are made from corn and soy flour and taste something like wheat saltines without salt.

Thank you  so much.  I realize that it what I might have to do especially with the amount of things I am allergic to.  I plan on starting my detox for 3 weeks on things that I am allergic to this Monday and then follow up with the gluten free menu next Monday.  Trying to wrap my brain around this.  I have never been much of a cook, but looks like that is about to end.  

I am allergic to millet and sorghum so most whole grain options are out.  I am thankful I found this site and I will post questions as I come upon them.

Right now I am still in the shock phase.

 

Thanks,
John

[CoachJohnOK]

41 minutes ago, Scott Adams said:

Check out the breads from this company:

https://www.grindstonebakery.com/category/gluten-free-STORE.html

Thanks for this site.  I did find one bread that I might try.  I am going to look into eventually making my own bread.  To start this will work.

 

John

[Russ H]

On 1/29/2022 at 6:54 PM, CoachJohnOK said:

Thank you  so much.  I realize that it what I might have to do especially with the amount of things I am allergic to.  I plan on starting my detox for 3 weeks on things that I am allergic to this Monday and then follow up with the gluten free menu next Monday.  Trying to wrap my brain around this.  I have never been much of a cook, but looks like that is about to end.  

I am allergic to millet and sorghum so most whole grain options are out.  I am thankful I found this site and I will post questions as I come upon them.

Right now I am still in the shock phase.

 

Thanks,
John

Not a bird keeper by any chance?

[trents]

Coach,

Can you elaborate more on your food allergy testing? What kind of test was it? Skin prick test? ALCAT? ELISA?

Keep in mind that these tests can produce false positives and the results can vary significantly when the same blood sample is sent to different labs. Often there is the problem of food allergy testing turning up a list of reactions as long as your arm and you wind up concluding, "How can I do this. I've got to eat something!" The ALCAT test I understand rates the degree of reaction to various foods. If it would be impossible to eliminate all of the foods turned up by the test, pick the strongest reactions. And always compare the test results with what you actually experience in real life eating.

[CoachJohnOK]

18 minutes ago, trents said:

Coach,

Can you elaborate more on your food allergy testing? What kind of test was it? Skin prick test? ALCAT? ELISA?

Keep in mind that these tests can produce false positives and the results can vary significantly when the same blood sample is sent to different labs. Often there is the problem of food allergy testing turning up a list of reactions as long as your arm and you wind up concluding, "How can I do this. I've got to eat something!" The ALCAT test I understand rates the degree of reaction to various foods. If it would be impossible to eliminate all of the foods turned up by the test, pick the strongest reactions. And always compare the test results with what you actually experience in real life eating.

Thanks for that Trents.  

I have had two test.  One was ALCAT and one was done online which was a different one.  I actually looked at both to compare and ruled out the one that was not on now but was on the earlier one.  There was certain items like Egg Whites, Bananas, Rice and the other 20 which I was informed by older sister I was allergic to as a kid.  I had so many allergies as a kid.  I really thought I was good.  Apparently I wasn't.  I do know when I use Gluten Free crust for pizza, I don't have any issues and when I have regular crust, I have lots of issues.  The cool thing is I don't eat much in the way of high sugar and I haven't for years.  This seems to be an addition to my already hard diet.  I do feel good about the things that were selected.   The whole celiac thing was a shock at first.  I think I am starting to feel good about it.  I am on day 2 of elimination.  Am I being perfect about it.  Heck no.  If I get it 80% right, it is better than I was doing.  

 

John

[trents]

Coach, I hope you will apply a stricter standard than 80% as far as gluten goes. Other food allergies will not likely damage your body but for a celiac, gluten does damage the body. It creates inflammation of the small bowel lining which, in turn, blunts the "villi." The villous lining of the small bowel is where all nutrition is absorbed from what you eat. Blunting of the villi reduces the efficiency of the nutrient absorption. Thus, many health problems associated with celiac disease are connected to vitamin and mineral deficiencies. And celiac disease is not an allergy. It is an autoimmune disease, an autoimmune response triggered by a food component - gluten. For healing to take place in the small bowel villi you must totally eliminate gluten. And that means educating yourself as to how and where gluten finds its way into what you eat. This might be of help:

If you are not diligent about eliminating gluten you will compromise healing of the villi.

The other thing I would say is that in my experience with food allergy testing and real life experience is that many of the things that show up as allergies in testing I can eat limited amounts of or eat occasionally and I'm not bothered much by them. Too much or too often is what gives me issues.

[CoachJohnOK]

7 minutes ago, trents said:

Coach, I hope you will apply a stricter standard than 80% as far as gluten goes. Other food allergies will not likely damage your body but for a celiac, gluten does damage the body. It creates inflammation of the small bowel lining which, in turn, blunts the "villi." The villous lining of the small bowel is where all nutrition is absorbed from what you eat. Blunting of the villi reduces the efficiency of the nutrient absorption. Thus, many health problems associated with celiac disease are connected to vitamin and mineral deficiencies. And celiac disease is not an allergy. It is an autoimmune disease, an autoimmune response triggered by a food component - gluten. For healing to take place in the small bowel villi you must totally eliminate gluten. And that means educating yourself as to how and where gluten finds its way into what you eat. This might be of help:

If you are not diligent about eliminating gluten you will compromise healing of the villi.

The other thing I would say is that in my experience with food allergy testing and real life experience is that many of the things that show up as allergies in testing I can eat limited amounts of or eat occasionally and I'm not bothered much by them. Too much or too often is what gives me issues.

OMG!  Thank you so much.  This is a big help.  I am taking the GLUTEN part really serious.   That part I am not doing 80%.  I meant the food allergies.   The test shows that I have a moderate reactive to GLUTEN and GLIADON and they tell me to eliminate the following foods which have a mild reaction BARLEY and SPELT and no reaction to Malt Rye and Wheat.  

It also says I have a mild reaction to CASEIN and WHEY so it says to eliminate COWS MILK and GOATS milk.  The other thing it says is I have a mild reaction to CANDIDA ALBICANE which includes eliminating CAIN SUGAR, FRUCTOSE, HONEY which are mild and Maple sugar that has no reaction.

My doctor said it was good to eliminate the above for 3 months.  I am still questioning why I need to eliminate the ones that have no reaction.

Thanks so much for your help!

 

COACH JJ

[trents]

Coach, I feel you are not grasping that celiac disease is not an allergy. It is an autoimmune condition. It cannot be diagnosed by any kind of allergy testing. Celiac disease engages an entirely different immune system pathway than do allergies.

So all this leads me to ask, how were you diagnosed with celiac disease? What kind of physician diagnosed you and what kind of tests did he do to arrive at the conclusion that you have celiac disease?

There are two recognized ways to test for celiac disease:

1. Blood antibodies. The most common test run is the tTG-IGA but there are also other antibody tests that can be run. Here is an overview: https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/

The blood antibody test is the first stage of testing.

2. An endoscopy with biopsy of the small bowel lining:

Have you had either of these tests done? I ask because you declare that you have been diagnosed with celiac disease in your fist post but you never say how that was done. Then immediately you launch into food allergy testing.

[CoachJohnOK]

1 hour ago, trents said:

Coach, I feel you are not grasping that celiac disease is not an allergy. It is an autoimmune condition. It cannot be diagnosed by any kind of allergy testing. Celiac disease engages an entirely different immune system pathway than do allergies.

So all this leads me to ask, how were you diagnosed with celiac disease? What kind of physician diagnosed you and what kind of tests did he do to arrive at the conclusion that you have celiac disease?

There are two recognized ways to test for celiac disease:

1. Blood antibodies. The most common test run is the tTG-IGA but there are also other antibody tests that can be run. Here is an overview:d

The blood antibody test is the first stage of testing.

2. An endoscopy with biopsy of the small bowel lining:

Have you had either of these tests done? I ask because you declare that you have been diagnosed with celiac disease in your fist post but you never say how that was done. Then immediately you launch into food allergy testing.

You are right Trents.  I did take a test and my IGA was <5 with the range being <5 with the reference range being 47-310.  I have not had an endoscopy because my doctor wanted to do further testing and I have not spoken to her since.  I have had a endoscopy through the VA (I am a 10 year veteran) and they have found issues they couldn't explain.  After reviewing your document, I see that there is a chance for false positives for people with Hoshimotos disease which she said that my thyroid numbers were high showing Hoshimotos.  Long story short, we haven't finished testing, but I am thankful that God lead me to this site.  Your articles have been enlightening.  I have been on a 10 year journey to figure out what is wrong.  This is the first time I feel like I am on the correct path.  I will not post anything further until I have a firm diagnosis.  Thank you again for your insight! 

CoachJohnOK 

[knitty kitty]

@CoachJohnOK,

Please stay and keep posting your questions.  You don't need a diagnosis to learn about Celiac Disease.  There's a lot to learn.  

Ask the VA hospital for a copy of their endoscopy report be sent to your doctor.  The issues they found but couldn't explain need to be reviewed by a pathologist familiar with Celiac Disease.  Perhaps your answer is there already.  

There is a difference between allergies and Celiac Disease, but you can have both.  You can have Celiac Disease and also be allergic to wheat and other things.  Allergies can be kept under control by avoiding the allergen (what you are allergic to) and medications like antihistamines or an epi pen.  The only way to control Celiac Disease is complete lifelong avoidance of the gluten containing grains wheat, barley, and rye.  (If you're not reacting to all of them now, there's a good chance you will become sensitized to them in future.)  Gluten and gliadin are proteins in wheat, barley and rye that trigger the autoimmune response in Celiac Disease.  Milk protein, casein, resembles gluten and gliadin proteins enough that the body launches an autoimmune response against it, too.  (There's other foods that can look similar enough to elicit an autoimmune response in some Celiacs: rice, corn, oats, chicken meat and yeast.)

Celiac Disease and Hashimoto's thyroiditis are both autoimmune diseases where the body attacks  its own organs and tissues, like a case of mistaken identity.  A gluten free diet is required to prevent damage in Celiac, but is beneficial in Hashimoto, too.  

Candida Albicans is a yeast that grows inside our intestines.  Sometimes it grows outside and can cause UTI's and thrush.  Candida likes to eat sugar.  The best way to get rid of Candida is to starve it.  This is why you were asked to eliminate all those different kinds of sugars from your diet whether you are allergic to them or not.  

A most helpful book is "The Paleo Approach", written by Dr. Sarah Ballantyne, a Celiac herself, who designed a diet that has been shown in scientific studies to promote healing in autoimmune diseases like Celiac and Hashimoto.  This diet plan also eliminates many allergens, too.  Seems a good way for you to get started without having to reinvent the wheel by yourself.  

Keep posting on your progress! 

 

[trents]

Coach,

From the IGA numbers you gave it sounds like your total IGA is low, which can skew the specific IGA tests for celiac disease downward. One thing you don't want to do is to attempt gluten free eating before all testing specific for celiac disease is complete. If you go gluten free before testing is done, the inflammation in the small bowel lining will begin to subside and that will allow healing to happen. Both the blood antibody test and the endoscopy/biopsy are designed to detect the damage caused by inflammation to the villi that line the small bowel. The Mayo Clinic recommends consuming an amount of gluten equivalent to two slices of wheat bread for 6-8 weeks before the blood antibody test and for two weeks prior to the endoscopy/biopsy.

You say you had IGA testing done but you do not say what specific IGA tests were run, such as the tTG-IGA, that would be used when looking for celiac disease. The IGA value you did post appears to be total IGA which doesn't tell much. Do you have access to the more detailed information and would you be willing to post it here?

Same with the endoscopy you mentioned having. Endoscopies can be done for many reasons. Do you know if there was a biopsy taken to specifically check for celiac disease and do you have access to that report? Would you be willing to post it here?

[CoachJohnOK]

10 minutes ago, trents said:

Coach,

From the IGA numbers you gave it sounds like your total IGA is low, which can skew the specific IGA tests for celiac disease downward. One thing you don't want to do is to attempt gluten free eating before all testing specific for celiac disease is complete. If you go gluten free before testing is done, the inflammation in the small bowel lining will begin to subside and that will allow healing to happen. Both the blood antibody test and the endoscopy/biopsy are designed to detect the damage caused by inflammation to the villi that line the small bowel. The Mayo Clinic recommends consuming an amount of gluten equivalent to two slices of wheat bread for 6-8 weeks before the blood antibody test and for two weeks prior to the endoscopy/biopsy.

You say you had IGA testing done but you do not say what specific IGA tests were run, such as the tTG-IGA, that would be used when looking for celiac disease. The IGA value you did post appears to be total IGA which doesn't tell much. Do you have access to the more detailed information and would you be willing to post it here?

Same with the endoscopy you mentioned having. Endoscopies can be done for many reasons. Do you know if there was a biopsy taken to specifically check for celiac disease and do you have access to that report? Would you be willing to post it here?

Trents,

You gave me some interesting things to ask my doctor.  I am not sure exactly what test she did.  I will ask her.  As for my IGA numbers, she went back and looked at the other iga numbers, iga g was 1287 which is showing green as the range is 600 - 1640.  My iga m is 51 where the range is 51 - 300.  

I am not sure what all these means, but I do have a call coming up with her soon to discuss.  I am on a 3 week fast from all the foods that showed up on the Allcat test.  As for the Gluten Free items, I have not really started that yet.

There is one call Tissue Transglutamine SE AB IG that shows < 1.0 that she said was so low that it didn't register.  I am not sure what that means and I am still trying to process all this information.

I am definitely taking notes as to questions I need to ask.  You would think at my age of 58, I would be good, but this is all so new to me.  

I appreciate your help!

CoachJJ

[trents]

The endoscopy with biopsy to check for villi blunting is considered the gold standard test for celiac disease.

From the additional antibody blood work numbers you have shard it looks like maybe your IGA tests were normal but your IGG test  was elevated. Since your total IGA was on the low end of normal, which could have repressed your tTG, your doctor may have been relying on the IGG positive to conclude you have celiac disease. IGG tests are sometimes run when total IGA counts are low. IGG can sometimes catch those people who actually do have celiac disease whose IGA test results are atypical. These people have celiac symptoms but there immune response with regard to the blood antibodies is atypical.

[trents]

Coach,

I know all this is very confusing to you as a noob. So, let's just keep it simple. When you talk to your doctor, just ask her two simple questions:

1. Do any of the blood antibody tests point to celiac disease. If so, which ones?

2. Did the biopsy taken from the endoscopy show the villous atrophy characteristic of celiac disease?

[CoachJohnOK]

7 hours ago, trents said:

Coach,

I know all this is very confusing to you as a noob. So, let's just keep it simple. When you talk to your doctor, just ask her two simple questions:

1. Do any of the blood antibody tests point to celiac disease. If so, which ones?

2. Did the biopsy taken from the endoscopy show the villous atrophy characteristic of celiac disease?

Yes it is very confusing.  I have been experiencing issues with my health for over 10 years.  Each doctor would do their simple blood work and everything would be okay and then just diagnose me with anxiety and try to give me drugs. I never felt that anxiety was the root.  I felt like it was a symptom of a biological issue.  I did find that my blood sugar was dropping while at Walmart and I got real angry with my spouse.  I automatically went for a candy bar which made me feel better.  I went in for a test that showed that my sugar was low but not enough to take meds.  I changed my eating to cut out added sugar which for the most part helped me but never fully.  Long story short I have had 3 major occurrences of that.  I was definitely diagnosed by my doctor with hashimotos which I have am appointment for an ultrasound tomorrow to check for nodules.  That is a little of my background which has nothing to do with celiac so when I go back to my doc, I will ask the questions you asked. 
 

thanks!

john

[CoachJohnOK]

13 hours ago, knitty kitty said:

@CoachJohnOK,

Please stay and keep posting your questions.  You don't need a diagnosis to learn about Celiac Disease.  There's a lot to learn.  

Ask the VA hospital for a copy of their endoscopy report be sent to your doctor.  The issues they found but couldn't explain need to be reviewed by a pathologist familiar with Celiac Disease.  Perhaps your answer is there already.  

There is a difference between allergies and Celiac Disease, but you can have both.  You can have Celiac Disease and also be allergic to wheat and other things.  Allergies can be kept under control by avoiding the allergen (what you are allergic to) and medications like antihistamines or an epi pen.  The only way to control Celiac Disease is complete lifelong avoidance of the gluten containing grains wheat, barley, and rye.  (If you're not reacting to all of them now, there's a good chance you will become sensitized to them in future.)  Gluten and gliadin are proteins in wheat, barley and rye that trigger the autoimmune response in Celiac Disease.  Milk protein, casein, resembles gluten and gliadin proteins enough that the body launches an autoimmune response against it, too.  (There's other foods that can look similar enough to elicit an autoimmune response in some Celiacs: rice, corn, oats, chicken meat and yeast.)

Celiac Disease and Hashimoto's thyroiditis are both autoimmune diseases where the body attacks  its own organs and tissues, like a case of mistaken identity.  A gluten free diet is required to prevent damage in Celiac, but is beneficial in Hashimoto, too.  

Candida Albicans is a yeast that grows inside our intestines.  Sometimes it grows outside and can cause UTI's and thrush.  Candida likes to eat sugar.  The best way to get rid of Candida is to starve it.  This is why you were asked to eliminate all those different kinds of sugars from your diet whether you are allergic to them or not.  

A most helpful book is "The Paleo Approach", written by Dr. Sarah Ballantyne, a Celiac herself, who designed a diet that has been shown in scientific studies to promote healing in autoimmune diseases like Celiac and Hashimoto.  This diet plan also eliminates many allergens, too.  Seems a good way for you to get started without having to reinvent the wheel by yourself.  

Keep posting on your progress! 

 

Thank you so much for this info!  I will look into that book.  I appreciate you allowing me to be part of this group.  Right now I feel like I am being reactive which is not a good place.  I also just had to have my knee totally redone from a knee replacement done 5 years ago due to a doctor error.  I will have to have my right one redone next year so I am working with that.  This is a lot. I do feel like I got answers on both but it still scares me.  
 

 

[trents]

Oh, my coach! You have been through a lot of health-related trials. I certainly can understand how frustrating it would be to always have something going wrong like that and not have firm answers. Many on this forum will testify that it took many years to get their celiac disease diagnosed only to find that it was at the foundation of their medical problems all along. It just isn't on the radar of many physicians and they treat you for everything in the world but what the problem is. You are blessed to have a doc who thought to check for celiac disease.