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- trents replied to Jodi Lee K's topic in Related Issues & Disorders3Worsening oral health with celiac
Do you have any sense of how long before your diagnosis the onset of your celiac disease may have been? For most of us, there are years that pass between the onset and finally getting a diagnosis and by that time damage has already been done to body systems. May we ask your age? Also, have you had any follow-up testing since diagnosis to check for celiac... -
- Jodi Lee K replied to Jodi Lee K's topic in Related Issues & Disorders3Worsening oral health with celiac
Sorry about that! Yes, my diagnosis was 2 years and some change- going on 3 years ago! Yes I have been gluten free the entire time! -
- trents replied to Jodi Lee K's topic in Related Issues & Disorders3
Worsening oral health with celiac
Welcome to the forum, @Jodi Lee K! You say you have had celiac for three years. By that, do you mean you were diagnosed with celiac disease three years ago? Have you been practicing gluten free eating that entire three year time? -
- Jodi Lee K posted a topic in Related Issues & Disorders3
Worsening oral health with celiac
Hi. I was wondering if many people have had oral health issues pop up after going gluten free from celiac disease? I just graduated in December and am now a RDH. But I’ve had celiac going 3 years and when I have the best home care I’ve ever had, now my oral health is plummeting. Minimal calculus…but new decay, plaque, and overall inflammation. -
- Scott Adams replied to Jhona's topic in Meet Up Room7Does anyone here also have Afib
It’s frustrating how little awareness there is around celiac complications, even among doctors. Your discovery about histamine intolerance makes so much sense. It’s interesting how interconnected these reactions can be (heart arrhythmias from food? No one warns you about that). It’s great that antihistamines helped, and the ranitidine connection is a ...
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Do you have any sense of how long before your diagnosis the onset of your celiac disease may have been? For most of us, there are years that pass between the onset and finally getting a diagnosis and by that time damage has already been done to body systems. May we ask your age? Also, have you had any follow-up testing since diagnosis to check for celiac antibody levels or healing of the villi? -
By Jodi Lee K · Posted
Sorry about that! Yes, my diagnosis was 2 years and some change- going on 3 years ago! Yes I have been gluten free the entire time! -
Welcome to the forum, @Jodi Lee K! You say you have had celiac for three years. By that, do you mean you were diagnosed with celiac disease three years ago? Have you been practicing gluten free eating that entire three year time?
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By Jodi Lee K · Posted
Hi. I was wondering if many people have had oral health issues pop up after going gluten free from celiac disease? I just graduated in December and am now a RDH. But I’ve had celiac going 3 years and when I have the best home care I’ve ever had, now my oral health is plummeting. Minimal calculus…but new decay, plaque, and overall inflammation. -
By Scott Adams · Posted
It’s frustrating how little awareness there is around celiac complications, even among doctors. Your discovery about histamine intolerance makes so much sense. It’s interesting how interconnected these reactions can be (heart arrhythmias from food? No one warns you about that). It’s great that antihistamines helped, and the ranitidine connection is a huge clue. Have you looked into low-histamine diets or DAO enzyme supplements? Some celiacs find relief there, especially with reflux and heart palpitations. And yeah, the ‘hidden gluten’ struggle is real—even after years of being careful, cross-contamination or sneaky ingredients (like maize starch or oats) can keep the inflammation cycle going. If you’re open to it, a functional medicine doctor (or even a telehealth specialist in celiac/histamine issues) might offer more tailored help than the NHS. Keep us posted!
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